Stephanie, I am sorry the doctors are having trouble diagnosing your pain. That's an awful feeling, knowing you hurt, but not being able to find the source to address the issue.
I can sympathize, because I'm somewhat in the same boat as you. My medical team THINKS they know what is causing my chronic pelvic pain, but nothing that we've done so far to help has made a difference, which leads them to question if they are treating me appropriately. I had one doctor who completely disregarded an MRI that was done that clearly shows problems with my right hip (FAI - the femur doesn't fit into the hip socket properly) - he told me that the results of the MRI were irrelevant and that what was ACTUALLY wrong with me was completely different (including mild scoliosis, SI issues, blah blah blah). This doctor recommended I see the physio he works with so I did...and his physio completely denounced this doctors opinion and agreed that the MRI was clearly indicating a problem that could be contributing to my pelvic pain. So, what they think is going on is permanent muscle damage in the lower right pelvic region, most likely caused by one of my many surgeries in the past few years (which makes sense as it only started after surgery). They are not positive though, as neither of the 2 Botox injections I've had made much difference.
Long story short it sounds like you have a great doctor who really wants to get to the bottom of this. The big issues we face in chronic pain is that it's hard to be sure you are right with your diagnosis in the beginning, and sometimes you follow false trails when you think you're on the right track. Try not to be frustrated with your doctor...and as hard as it is, have patience. Unlike many people who are waiting to get in to see a doctor for treatment, you have people working with you to find answers.
Good luck Stephanie...I hope things start moving faster for you and you can get the answers you need fast!!!
PS: Edited to add a comment that I didn't mean to make this about
me. I just wanted to explain my situation, so you could see the delay issues aren't just yours, and that there are others in the same boat as you. Sorry about
turning the attention to my problems.
Conditions: Fibromyalgia, Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily
Post Edited (MsBunky) : 5/13/2010 10:09:52 AM (GMT-6)