I have looked after children with this disease and boy do they ever suffer. Some of them I couldn't even touch them or the pain would be too excrutiating.
Wishing you didn't suffer so badly.
My thoughts and prayers are with you.
Chronic, severe and continuous bilateral temporal headaches since April 2000.
Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!
Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to try to break the pain cycle by resetting the receptors
Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada