Spine specialist

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Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 5/26/2010 1:52 PM (GMT -6)   
     Went to spine specialist. No word on genetic / chromosonal testing. No game plan until it is approved. I was told to "Please take is easy. Do not hurt yourself." No steroids allowed, again. I was asked to begin adding in "Baclofen" to my pain medicine cocktail. I took it a while ago, but I am very sleepy. I was told to try to walk as little as possible and "pace yourself". "Your knees may have degenerative problems or it may be structural." ...gosh, im sorry I am just so sleepy. Will be back later, I think maybe I could use a nap.

Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator

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Date Joined Feb 2010
Total Posts : 914
   Posted 5/26/2010 2:36 PM (GMT -6)   
Hey Sweet Dani Girl , please be careful with yourself , taking a medecine that makes you sleepy , well it means you could trip or fall and we do not won't that at all !! Please try to follow the doctors advice and be very , very careful and try to be patient . I'm thinking of you and praying for you my friend , may only good things happen for you always . Mikel

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Date Joined Sep 2008
Total Posts : 1670
   Posted 5/26/2010 5:43 PM (GMT -6)   
Knees take the brunt of the crooked spine, its no wonder they're "at" you. Sorry to hear more meds into the cocktail, will you get use to the baclofen? I hate the doppy meds, sort of lose yourself in a fog.

Its taken me weeks to recover from all the meds they pumped into me in hospital, in fact my brain still feels a bit slow on the uptake. I can't imagine how you're feeling now. But we're there for you, sweetie.

Best wishes, golitho

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Date Joined Feb 2003
Total Posts : 16783
   Posted 5/26/2010 6:17 PM (GMT -6)   
Dani when the the dr first put me on Baclofen which is  for muscle spasms I got a little sleepy too but eventually this will go away. I think WhiteBeard is also on Baclofen for muscle spasms, I hope it works for you. I am ok with it, but prefer Zannaflex for muscle spasms.
I have been meaning to ask, didn't you say your Bone Density test came back positive for osteoporosis? There is a scale ranging from mild to severe. If this is correct have you been started on medication for this, if not you should be, it will not correct any previous damage due to osteoporosis, but it can prevent further damage.  Also, vitamin D is a must too. If none of your drs have placed you on any meds talk to your PCP, that is who ordered my Bone Density and started me on medication. I use a nose spray every day, rather do that than swallow another pill. There is also an infusion drug but I am thinking you have to be 60 yrs old or more to qualify for that and it is given once a year. Take care.


crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

Post Edited (straydog) : 5/26/2010 5:31:08 PM (GMT-6)

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   Posted 5/26/2010 7:40 PM (GMT -6)   


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Total Posts : 702
   Posted 5/26/2010 9:01 PM (GMT -6)   
Just wanted to let you know I was thinking of you. I really wish you didnt have any pain.

Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few

Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 5/26/2010 11:11 PM (GMT -6)   
.............Havnt napped like that in years. I sure hope the sleepyness wears off, im supposed to be taking this three times a day.
      Susie, I take 50,000UI Drisdol each week. And yes, I have osteoperosis, but It has been under control since beginning the of feburary (confirmed). I will have to take the medication for the rest of my life as well as have my blood and urine measured and tested every other month to make sure my levels are where the should be. The Endocrinologist makes adjustments depending on the results, but he seems to like me to be between 45 - 50. I am at 0.0026 (0.0025) rate, so I have to consume alot to keep my levels up. I was told the bone density will be done "peroidically" but I never asked how long. I think only 6mo. or 1 per year??? Only hard part is the diet ...I cannot have caffiene. Thats hard beacuse I love soda pop, but also if the level is low he knows if I am fibbing about drinking soda pop smhair But I dont mind the other precautions being life long. I will do just about anything to keep the boneloss (osteoperosis = absorption rate) and hypoparathyroidism under control.
     The spinal deformity was classified as mild. Estimate at either around 26yrs OR 16yrs+ / puberity undiagnosed. I was progressing slowly, less 2% increases before the bone loss. Only damage normal for levoscoliosis "rotation on the vericle axis, narrowing of canal & disc space" . When the boneloss hit, it did damage to already damaged / rotated areas in my spine. What is "normal" for bone loss IE "degeneration, sclerosis/hardening, arthropy". All normal problems that accompany boneloss. The hypoparathyroidism came with problems of its own...my teeth, cataracts, tetany, parathesis, et al.
      Now that the rate (boneloss - osteoperosis) and hypoparathyroidism are both stabalized everything should have slowed down... But that isnt whats happened. Instead the deformity has not only progressed to "moderate cobb angle in primary (lumbar)" but has also formed a entirley new secondary (thoratic). That is a +40* deg jump for my primary curve. It continues to progress rather rapidly despite all other factors being under control. My cervical is showing "possible" signs, but I don't want to worry about it right now. Like Doctor says we will face that hurdle when we get there. So, I am waiting on genetic / chromosonal testing. They had sought it a while ago, but the insurance company asked to recieve copys of my medical records and 45 days to make their decision on weather or not they will approve it. I am not sure if I will be a candidate for any counter measures against the curves progressions once the testing is done. But, my bones are and have been, stable for a few months now. So, that is one battle already won. Just need this testing done so they can start to make some long term planns for my spine care and stop progression. Currently, I am having a hard time with basic functions. Even the bottom of my ribbs are only a half inch from the tip of my right hip... kinda gives an idea how hard it is getting around. I am just plain worn out and exhausted to my very core.
     They are concerned about the increases in the last month. She concerned that I have begun rotating towards the rear. I was worried she would want more X rays before I left, but I dont need to until I get back. ..frustraiting because I just had X Rays taken in March. Soon I wont even need my night light anymore.... just glow like a lightning bug before too long.
      The nice thing is she made sure everything was taken care of (medicine, refills while out there, extra).  She has added in baclofen to help counter the pain increase. I was hoping the medicine wouldnt be so bad, but I can see it will take me a bit to get used to... smhair I never even thought about asking to be switched or try a new antidepressant. So much came up about my back and my hip rotation that I just completly forgot about it! Normally I take a list... just hate this kind of pain, it turns my brain stupid and I have a hard time functioning, let alone thinking logically. I wish something more could be done. But, after being "grilled" and "ganged up on" by nurse, doctor and my TRAITOR husband... I will try hard to keep from walking and "understand that I need to go slow and take it easy"........which is like asking a cricket to be quiet. argh, what ever.
      Just wish the pain and progression would slow down already. Ive lost so much. It take all I have in me to do the smallest things. This is so frustraiting.
      .....and of course my horrible vanity! Scared to death of how my husbands family will react when they see me!!!!! Gosh I sure hope I dont embarrass anyone.
       Okay, obviously rambling a bit too much. Im sorry. Think I am gonna go get back on my heating pad. Pretend to not be so frustraited and scared.

Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator

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Date Joined Apr 2008
Total Posts : 605
   Posted 5/27/2010 3:37 AM (GMT -6)   
No chance of you be in embarresed if they only see the good things about you and if they cant see your giving heart and sweet disposition then to heck with them!!

The baclofen shouldnt make you feel woozy for more than a week. It made me very woozy too.  I take it 3 times a day too and I sure know when Ive missed a dose, its then that I realize how much it has helped my pain so I wish you good luck with taking it.

Dani,you are such a lovely lady and I do cherish all the love you have brought to me in your words. Always know that you are a great person and your hubby shouldnt have a care in the world if you are as nice to him as you are to us. Take care sweetie.

Love and Hugs,

Mom of one gramma to 4 lover to One
Fibromyalgia,IBS,Stroke x3,endometriosis,Diabetes type 2,neuropathic pain,high blood pressure,severe nausea,atrophy,chronic pain,over 30 surgeries,torn hip joint,hypoglycymic

Post Edited (QTKaren) : 5/27/2010 2:45:52 AM (GMT-6)

Pete trips again!
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Date Joined Nov 2006
Total Posts : 1899
   Posted 5/27/2010 5:03 AM (GMT -6)   
Dani, I'm so sorry you have to live w/ all the pain and worries you do. Like Karen said, you are such a beutiful person, you have nothing to worry about!!! If people can't see that and only look at the physical problems you have>> The hell w/ them!!! You won't have to worry about how you look down here w/ us in Fla!!!!! I have told my wife all about you and your family and we can't wait to meet all Y'all in person!! I also told all our pets about you and that you are coming w/ two little ones> All our pet family love little ones when they visit almost as much as I do!! I miss having little kids around, it brings me so much joy to have them around once in a while!!!
Big Hugz from your buddy,

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Date Joined Aug 2006
Total Posts : 9664
   Posted 5/27/2010 5:20 AM (GMT -6)   
Take it easy while your away and I hope things will go good for you...
Make sure Pete keeps an eye on you and don't over do things, okay....
Lots of soft healing hugz and I hope your heating pad helps...
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


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