Hi there and welcome. I have severe TMJ to the point that my joints have disinigated and even when talking I make a 'crunching sound'. I was told by an oral surgeon that the trigeminal nerve is 25 miles long...seems impossible but that's what he told me. If inflamed it can cause pain in every area of the face, neck, jaw, ears, back, nose, teeth, gums roof of the mouth, tongue and eyes. I have never been dx'd with TN, but I certainly have felt the pain from the nerve...the worst being in my eyes, teeth and the hard palate. Apparently, the nerve becomes inflamed from chronic bruxism, which I don't realize I am doing. In sleep, I chew raw spots on the inside of my cheeks. I had a mouth guard made but I couldn't wear it...gave me cankor sores. Wish I could help more but all I can do is relate to the pain!
fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ Meds: valium Advil