Thank you so much for your encouragment. You all have a way of making me feel much stronger than I really am. It means a great deal to me, and helps alot especially during right now.
Hehe, Yes I went to disney world! I wish I could say I rode the rides and walked all over and saw everything! But, I didnt...but come to think of it, my trip there turned out better than I expected it to.....
We got to the park after being lost inside the road system within "disney park freeway system"..so about 30 mins or so of being lost. Once we got into the right area called "Magic Kingdom" we were directed to parking spot. When we go out of the car we were then directed to a .."golf cart" type "train" which took us to the "Tram Train". The ride was ruff, to say the least. When we were dropped off by the "gulf cart train" we then had to climb 2 to 3 flights of stairs to get to the loading doc of the "tram". That ride was rather painful aswell. After that, we departed the train and made the long trek to the "Magic Kingdom" entrance. Once we got inside the entrance I was already having a really hard time. I wasnt and hadnt been doing very good and had been struggling with my pain levels ever since the girls birthday party on saturday.... the trip up to the park did me in. I was frustraited with my body to say the least.
There are something like 5 or 6 "themes" in Disney World. So, I was deposited in the middle of each area. FOr instance in "Fantasy Land" I sat at a bench in the shade in front of "Minnie Mouse's House" while everyone went out to the rides, stores, whatever. So basically like a "home base" of each "theme area". I kept all our bags and buggy, unbrellas, purses, drinks with me. So..I was kinda like a "meet point". So that made things very easy on me. Honestly, I cant say that I had wished I could have done more..because the fact is that me being stationary helped keep my pain levels stay at about 9, but also I turned out getting fantastic video and pictures of everything. You know like of the kidds and grandma and daddy doing down the speed way. Both grandmas and the girls going in roller coaster. Grandpa-daddy-girls going on space mountian. Which was good, everyone else was so occupied it looks like I was the only one who got good pictures and video. I guess everyone else must have been having a good time too. It was really neat to be able to catch the "excitment" in my familys faces during moments of the day. I really think I will suprise everyone with all the pictures and moments I was able to capture! I cant wait to load them up at home! Oh, but you know what I did go on a ride, I went on this little train that took up around the whole park area. It was a little "jerky" movements, but not to bad. The heat though was swealtering, so I only went once I got great pictures of that ride too. Im excited to get home and show you all the pictures.
I wish I had good news to report but I don't. The last few days have been so hard. The pain is increasing badly. I wasnt able to do much of anything yesterday and today. I've been stuck in the hotel this entire time. The base of my spine has hard swollen ball the size of a grapefruit. It is rather painful, to say the least. Not really sure what the heck is going on. It is very hott, swollen and feels like a "burn" when I touch it even slightly with my fingers.... Gosh this isnt good at all.
I guess the majority of my frustraition is because the new muscle relaxor was added in because I had delt with ..crazy pain increase the last month. I would think, that THIS much medicine would keep me from having pain spikes this bad. The nausa is, overhweming, the pain is..well beyond anything I have ever experienced and continues to spread. It is hott and ....holy cow. Today especially is well beyond what my experience with pain has ever been. Well, yesterday I had thought to myself, "well, this is beyond anything I have ever experienced. I will have to mention it or call spine specialist when I get back." and now today I find myself thinking,"Whoa. Is this really happening? Holy cow.... How am I going to get home like this?...." I've basically been stuck in this hotel room since we got back tuesday. Theres nothing I can do. And now this morning I have this area that is hard and tender and hott, the size of a grapefruit at the base of the right hand side of my spine. On tuesday when we went to the Disney world place, I had thought that I felt a "tender area" at the same place, not hard thou. about the size..well a little bigger than the size of a silver dollar. But at the time, you know it was a hard trip in the park, and I had just gotten to where I was getting comfortable.. Basically, I thought, "oh well that is weird". But never gave it another thought until thursday. Now, well "it" is much bigger and hard, hot, inflammed. I cannot believe this is happening right now. I .. Im floored and frankly frightened. Trying to just stand is , overwhelming and causing nausa with the waves of pain. Its so overwhelming, I look at the clock and cannot believe that the day is nearly through... not good. Im hoping and praying tomorrow is better as it is my last day here. Sunday I make the long trip back home.
I will feel much better to be home at this point. I hate to say it but I would raather be home and experiencing this, with help not far away.
Heres hoping I can make better use of tomorrow. All my stuff is packed a ready to go with just toiletries and 2 days of clothing left out.
Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator