What a nightmare....

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Regular Member

Date Joined May 2010
Total Posts : 40
   Posted 6/9/2010 5:03 PM (GMT -6)   
Hello everyone!  How are you all doing????  I hope everyone is having a low pain day.

This week has just been terrible for me.  I have been in so much pain it has been so incredibly hard for me.   I am hurting so bad it isn't even funny.  I have two hours of work left.  mad
So tomorrow, I start an 8 week chonic pain class.  We will meet once a week for an hour and a half.  It's supposed to help you deal with living in so much pain.  It has a major focus on meditation, deep breathing, etc.  I hope it will help me.  Has anyone been through a program like this?  Has it helped you?
Also, on Friday I have my first appt with UCSF.  Kaiser referred me to them because they can't figure out what's wrong with me.  They thought I had pelvic pain but now they aren't sure.  It is so frustrating not knowing what is going on.  I had an MRI done on Friday.  That was a joke.  It was SO LOUD!!!!  They gave me ear plugs but it didn't help much.  It was so claustophobic.  It took them an hour.  I almost didn't make it through that.
Well, that's an update on me.  Hope everyone is doing well..

Veteran Member

Date Joined May 2010
Total Posts : 594
   Posted 6/9/2010 5:24 PM (GMT -6)   
Hi Stephanie, so sorry you are suffering so bad! I feel for you....with them not knowing what is wrong....answers do not always help with the pain, but it does help! I am praying this chronic pain class helps you. It sounds like it may be a great thing! Keep us updated on that, it sounds interesting. I have always been interested in meditation, even bought some books on it but was never able to calm my mind down enough to even begin thinking about it! I hope you get some answers and some relief! Take care of you!!


Forum Moderator

Date Joined Feb 2003
Total Posts : 16792
   Posted 6/9/2010 5:27 PM (GMT -6)   
Stephanie hopefully when you are seen at UCSF they will be able to come up with what is really going on with you. It is so hard when you are caught in the limbo of "well, we really don't know whats wrong with you". It really is cruel I think for a person to be in that situation. But, there are so many out there that have the same thing going on. Only thing I can add is don't give up, keep pushing for answers, you will get to the bottom of this. I know that you are tired of hearing that, but its very trul. Just keep coming here when you get stressed and write about it. Take care.

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

Regular Member

Date Joined May 2010
Total Posts : 40
   Posted 6/9/2010 5:59 PM (GMT -6)   
The pain is so bad and getting worse. How do you know if you should go to the ER?

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 6/9/2010 6:12 PM (GMT -6)   
Hi Steph...

I've been thinking of you - and I was hoping you were continuing to have less pain - so I'm sorry to hear you are suffering so much :(

Re: going to the ER - if you are in that much pain, and it's increasing - I'd probably go in. At the very least, they can give you something to help bring down the pain... and get you to your appointment on Friday. I know the ER isn't any of our favorite place - but I think it does serve it's purpose. You can say you are seeing a specialist at UCSF on Friday - but the pain has dramatically increased today.

Let me know what you decide - I'll be praying for you, my friend! --Tina
Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...

Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 6/9/2010 7:32 PM (GMT -6)   
I'd go too, I had that experience about 5 weeks ago where I put off going in and they told me if I had they would have got the pain undercontrol much faster. I ended up being in for 8 days!

As for the classes I think they're great. I just started going to a series too, also with relaxation techniques but also a "take control of your disease" emphasis. Or in your case "take contrl of your Pain". Just meeting others in a similar boat has been so good for me, sharing the frustrations and limitations on what was a healthy body. The how bad is it going to get scary thoughts were all laid out there.

But go to the ER and best of luck with it all. Cross my fingers you get someone good, golitho

Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 6/10/2010 8:52 AM (GMT -6)   
Hey Steph , Haven't been thru the class but I can tell you meditation can be a godsend , a very big help in calming your mind which is the key to how you feel . Please give it your all I feel sure it can help you a lot , the breathing to is great , I've taken breathing classes and it helps get fresh air into your body .Combined with the meditation and meeting folks who have the same challenge this sounds like a great plan . Go for it Stephanie !!!!

Veteran Member

Date Joined Jun 2005
Total Posts : 610
   Posted 6/10/2010 10:41 AM (GMT -6)   
I havent been to any classes, but I wish I could go to one. Sometimes it's so hard to get our minds to relax when we feel like our bodies are attacking itself. I'll have to look into seeing if their's anything like that around where I live.

If your pain is so bad right now, have you tried calling your doctor? maybe he/she can have you admitted for pain control, but sometimes going to the ER is the onlyu way to get a doctor to beleive you are not kidding around. I just hope you get a understanding doctor there as some doctors hate dealing with anything "chronic", even though sometimes our chronic pain is having an "accute" attack, but they dont look at it that way. Just be careful, cause if you ignore your pain for too long, your body can start to shut down. SO call your doctor, if they can't do anything for you, then go to the ER, listen to your body even if others wont.


Carmen~*~*~Chronic Pain Moderator

DX-Chronic Pain due to two freak car accidents, Pancreatic Divisum, Fibromyalgia, Asthma, Depression w/anxiety, Migraines, and Kids!!!

Meds- Suboxone 16mg for pain, Cymbalta 60mg, prilosec, Zyrtec, ProAir inhaler, and the best medication is my puppy, kitty, 5 guinea pigs, 3 rats, and 2 degus!!!


Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 6/10/2010 10:57 AM (GMT -6)   
Wanted to wish you good luck with the classess, and I hope you didn't have to go to the ER...
will be thinking of you...
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 6/10/2010 8:16 PM (GMT -6)   
Hi Stephanie,

I hope you are feeling better today!

Good luck at your appointment tomorrow. I hope you meet with a fantastic new team of doctors & that they have some new ideas and treatments to offer you.


Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 6/11/2010 7:39 PM (GMT -6)   
     Hey Stephanie,
      How are you doing tonight? Any improvments or are your still increasing each day? I do hope you first class went well. Hopefully you learned some new tools for coping and met some cool folks while there? Be sure to up date when you can! I know your schedual is packed and your probably don't have much time to spare right now...but let us know how you are doing when you get a chance.
*warm huggs*
     Oh! ER question ~~> First off...I am not the best person to give advise on going to urgent care or the ER. I am horribly stubborn. But I can suggest a few ideas.
     When you begin a fever. You have "new" pain (in an area you dont normally have pain). If beging getting dizzy, confused, nausous and/or black out. You suddenly loose the ability to control limbs / bladder / bowel function....But in all hoensty, if you feel in your heart that you need to go to the ER, then dont wait. Go now. You know your body best. You know better than anyone else when something is wrong. Remember that pain is a "signal" to our brain that something is wrong in our bodies.    *warm hugg*

Two roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator

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