Thanks janice. My headache started out of the blue ten years ago. I have had all the work up done for tmj so that part is ok now but the headaches continune. They are bilateral temples, feels like pressurre, they are continuous, 24/7 and pain score 10/10. The headache has never changed in ten years except between 2005-2007 they were on/off but never a day without a headache. I have seen tons of doctors, done all the meds and done the treatments and nothing helps me. I have had botox, triggerpoint injections, nerve blocks all over my head, neck, face, etc with no help. What do you think? All my dr. say poor prognosis. It could be different if I lived in the states as there are so many headache hospital. here in Canada nothing and no resources for chronic pain so I guess I get to suffer the rest of my life. I have spent the last two days in bed in a dark room and my head wrapped in ice. No fun I'll tell you. It's awful!!! Very inhumane!!
Chronic, severe and continuous bilateral temporal headaches since April 2000.
Poor prognosis, seen tons of doctors, been on dozens of meds and tried all forms of treatment with no success.
May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!
Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to start resetting the receptors.
Meds: oxycodone (weaning), cymbalta, vitamin D, B12, remedies from the homeopath
Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP which i was accepted
52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada