I totally agree! It's so hard when your body has worked well for you for a long period of time and then suddenly stops. I've had Fibro since my late teens (I'm 48 now) so I really can't remember a time of not being in pain. For many years though, I was able to put it in the back of my mind - I would drug myself up with 6 extra strength Tylenol at a time to dull the pain and then go be Mommy or Secretary or the kids Social Coordinator...you know..."normal".
I have often had that "helpless" feeling, especially before I started as a patient at the Chronic Pain Centre in Calgary. I rarely mentioned being in pain to anyone (except my poor hubby, who bore the brunt of my emotions for years with patience and grace), and for many years, none of my friends or co-workers knew I suffered. It wasn't until the pain became a constant, never changing throb that I was able to be honest with others about it, because I couldn't hide being in pain any longer. I was constantly turning down invitations for things and my friends all started to question me about what was happening.
I was able to be honest with my friends, despite my fear of being treated differently - you know, like I was fragile and would break any second. I just want to be treated like anyone else...no extra concessions made for me, etc. Of course, that doesn't happen...there are concessions that need to be made sometimes, but now, I don't worry about it. I'm just honest and up front about what I need, and voila...it's done.
I'm sorry the pain you feel is so constant and unrelenting. I hope you are able to work with your physio to get maximum benefit and major pain relief. I recently started AquaFit and I love it! Easy on the joints and the water feels great! It might be something you want to look into.
Hang in there, know that I am cheering you on from afar....take care of yourself!
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily