Straydog is right, there are many threads on HW about pain pumps. Use the HW search feature to find them. Another good resource is a Yahoo site called Pumpsters that deals strictly with intrathecal pumps and pump related problems. You have to apply to join and the moderator sometimes takes awhile to OK your request. It is well worth the wait, as they have extensive files of pumps, all kings of pump problems and pump medications.
Don't get so hung up about the Cleveland Clinic. I live very close to the Clinic had my pump inplanted there. I ended up receiving much better care with an independant local doctor. Because of the high volume of patients, it is easy to become just another number at these big institutions and have to wait long periods of time to get an appointment or a follow-up appointment. A well qualified local pain specialist can provide you with good care and immediate attention should you need medication changes, dose, and or rate changes. Some of the most innovative pain specialists have trained at these mega institutions, but have gone on to establish their own practices. I am not sure how far you are from either the Clinic or Mayo, but how would you mother ever get to their offices for minor adjustments or the tweaking of pump rates. There are times that rather than getting one huge dose adjustment and risk receiving an overdose of medication, I will have smalled adjustments over several days until I acheive just the right amount of medication. You would never have this option if you had to travel any distance of care.
I think Pumpsters might maintain on off site list of recommended pain specialists. Between that and thoroughly researching out all of the pain specialist in your surrounding area you might be able to find just the right one for your mother. I know some pain specialist can be really picky and only treat pump patients where they and impanted the pump. Believe me, there are great doctors out there willing to treat patient with pre-exisitng pumps. I found my doctor by talking with the Metronic Pump representative for my area and asking him for recommendations. Since he works with all of the pain doctors, he knows the personalities and qualifications. He help me find a winner and I receive much better care than I received at two of those mega-institutions.
Good luck in your search to find a good doctor.
Stella Marie Chronic Pain Forum Moderator
Progressive neurodegenerative disease called Multiple System Atrophy, congestive heart failure, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator).