Have a great trip Elenor - as mentioined above, take time to rest when you can...it will make the trip that much more enjoyable.
My hubby and I did a road trip last December, from Calgary to Las Vegas (approx. 22 hours of driving over two days). I too was worried about what would happen if I had a bad pain day - especially because the drive took 2 full days without a lot of stopping. I was stressing about how uncomfortable it would be while cooped up in the car, or what if we got to Vegas and I was fine, but then woke up the next day in agony? Would I just have to stay in the hotel room and do nothing? The more I stressed, the more I thought of other situations, and the cycle just went round and round.
I finally realized that I was making things worse by stressing about stuff that probably wasn't going to happen anyways, but even if it did, I know how to manage it. I came up with solutions to each "what if", and then let it go. Ultimately, I was just fine. I was able to stretch a lot in the car (I'm quite short, so have lots of leg room) and there were lots of opportunities to sit while exploring Vegas and just "people watch". I made sure I took my meds on time, and tried to follow as much of my patterns at home as possible - and I had no major flareups.
I think the secret really is to try and stay as true to your home schedule as possible, to maintain the routines your body is used to. If you normally wake up early, try to do the same. If you normally have a big breakfast at home, try to do the same.
Hopefully all goes well for you on the trip. I'll say a wee prayer for you and your family...so have a good time!!!
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily