Question for anyone out the with a Neurostimulator for chronic back pain

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Stuck in Wisco
New Member

Date Joined Jul 2010
Total Posts : 11
   Posted 7/2/2010 5:16 PM (GMT -6)   
I am new to this but in need of feed back from other people with the same condition.  about 8 months ago I had my first stim trial and after 5 hours they turned it on and my entire body had stimulation except for my low back which is where my pain is.  So 5 moths later my pm said he could try it another way that should work better.  The trial went ok except for when moving at all the leads would move and give me one hell of a shock.  The doctors were excited about how well it worked so we went on with the implant.  In the end of April I had it implanted it seemed to go pretty well.  After a week or two I honestly felt upwards of %70 to %80 percent better.   So I was very excited (as anyone with chronic pain would of been) they slowly took me off the pain meds and everything was great or so I thought.  A week ago about 2 months post surgery a good full month with out pain meds my pain is threw the roof.  It is worse than ever its making me sick, my arms and legs are weak and just trembling and my blood pressure has gone as high as 240/130 it has since come down but its still sitting at 180/100.  I have had ct scans and x-rays the leads havent moved and there doesnt seem to be any infection.  I can tell its on I can feel it I mean both leads are maxed out at 10.5.  All they have been telling me that maybe its because I wasnt using it 24/7 even though I was only told to use it when I was active or with break threw pain.  Running this thing 24/7 and with the leads maxed out I have to recharge this thing just about everyday and I am now back on even more pain meds than before and still in alot of pain.  If this has happend to anyone I would love to hear what helped if anything.  Atleast thanks for listening

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 7/2/2010 8:39 PM (GMT -6)   
   Dear Stuck,
     Good evening. My name is Dani. It is so nice to meet you. I am glad you could join us here at the Chronic Pain forum in the Healing Well Community. I think you will find it is a fun, relaxing environment to be in. A place where you can be yourself and not worry about what others think. Since we are all in the same boat, so to speak, many of the barriers you find out in the world do not exist here. 
     I am ever so sorry to hear you are back at square one, more than likly worse than you were before. Were I in your shoes I would be frustraited to no end! One thing I might suggest is seeking help from a teaching hospital or university if all else fails. Also, here are a few links that I hope you find usefull.
      I really hope that you and your doctors are able to come up with a solution that can restor quality to your life. Again, it was VERY nice to meet you and I look forward to getting to know you better. Stay strong!
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator

Stuck in Wisco
New Member

Date Joined Jul 2010
Total Posts : 11
   Posted 7/2/2010 10:28 PM (GMT -6)   
Thanks for welcoming me Dani. Like I said I am new to this as this is my very first forum group I have ever joined. I know its to late for me to be doing the research now but hey im from a smaller town in Wisconsin I was told thst my pm dr was one of the best in the country and that was enough at 23 to get me on board. JUst would like to thank anyone that reads this and in advanced to anyone who would reply im an my whits end and kinda strating at ground zero so info would be greatly appreaciated.

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3702
   Posted 7/2/2010 11:22 PM (GMT -6)   
Stuck in Wisco
Welcome to the Healing Well Chronic Pain Forum, Wow! You have had a rough time of it! Well we can't fix you but we can listen to you and maybe some of the folks here that have the implanted pain stimulators will have some help suggestions and advice for you. But one thing I can tell you is that we will listen and give you support, because we all know what it is like living with Chronic Pain! I really think you have come to the right place! You might be new to the forum groups, but you could not have chose a better one to come to! Honestly I think we have the most caring and compassionate group of people that you will find anywhere on the internet. And after posting a little while I think you just might agree, I know I consider the folks here, my family! as do allot of others, because we all understand and care about each other, like nobody else can, we can honestly empathize with each other, because we know what it is like to have pain. There are others that have experience with the stimulator that will be along shortly and hopefully will be of more help to you!
So again Wisconsin, I welcome you to our family here on this forum.

White Beard

Stella Marie
Veteran Member

Date Joined May 2005
Total Posts : 601
   Posted 7/4/2010 4:33 AM (GMT -6)   
We have had quite a few postings about stimulators. I had one implanted in 2007 for chronic whole body and back pain due to spasms. I suggest that you use the search feature on this forum and seek out postings related to stimulators. I know in the last 6 months we have had numerous threads we lots of good information. If fact, I just posted a thread on stimulators verses pain pumps. Then if you have aspecific question about stimulators, make aposting about your questions and I am sure people will respond with their experiences.

Good luck in finding a pain option that works for you.

Stella Marie   Chronic Pain Forum Moderator

Progressive neurodegenerative disease called Multiple System Atrophy, congestive heart failure, muscle spasms, muscle pain, neuropathy, & neuropathic pain, central sleep apnea, osteoarthritis, and 2 pain implants – intrathecal pain medication pump and an SCS (spinal cord stimulator). 



Stuck in Wisco
New Member

Date Joined Jul 2010
Total Posts : 11
   Posted 7/4/2010 1:11 PM (GMT -6)   
Thank you
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