Denied on appeal for SSDI

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Veteran Member

Date Joined Jun 2009
Total Posts : 974
   Posted 7/5/2010 6:25 AM (GMT -6)   
I got my denial letter from SS on my appeal level for SSDI yesterday.  Guess I was kind of expecting it.  I was wishing they would have held off longer though because they hadn't received the information from my new rheumatologist with the new dx's of fibro & polymyalgia rheumatica.  Guess I'll have to join Pete and just keep pushing on.  Next step, ALJ hearing.  I'll call my lawyer and get the ball rolling.
Once again they are aware that I have severe back issues but they think I can now do a job that I tried for a few months, just part time, a couple years ago.  I ended up quitting the job because it entailed to much bending, which killed my back and too much looking up and down which I can't do since my cervical fusion limits my ROM in my neck and can cause considerable pain.
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3, fibromyalgia, polymyalgia rheumatica

Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 7/5/2010 6:39 AM (GMT -6)   
cry  I'm so sorry Jag cry
I think we are on a similar schedule and I should be getting my next info in a week or two (at least so says ss).  They told me last week that they have 60 days to get an answer back from the disability determination services on an appeal and that they had sent my appeal on May 7th.....then snapped it would be July before I heard anything...It actually was July 1st that day rolleyes   Anyway, I'm sorry that you were denied again.  I expecting the same thing.  My apt with the Reumy is at then end of this month, so they won't have my additional diagnoses either....figures.
Nothing like hiring a lawyer and heading forth.  I did speak with the psych quite thoroughly about his progress notes and his detailed session notes and he suggested not releasing either because of how sensitive they are.  He completed a summation and sent that......I hope it will be the same way when court comes up!!!!!!!!
Best of luck with the attorney.  They are, as you are well aware, an integral part of the process from here on out. 
Retired Mom

Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 7/5/2010 7:06 AM (GMT -6)   
Sorry Jag , thats a bummer and unfair to boot , I don't understand the thinking process of these people , what the heck do they want from folks ? I hope your able to get your benefits Jag , very soon too .I know what releif it is not to have at least that to worry about and I really hope you get it soon , best of luck , Mikel

Veteran Member

Date Joined Dec 2008
Total Posts : 773
   Posted 7/5/2010 8:03 AM (GMT -6)   


So sorry to hear of the denial......the one question that we should be allowed to counter ask of SSD is WHO is going to hire any of us on the amount of Pain meds etc. that we are taking?  Just once I'd like to see how they answer that one!


Pete trips again!
Veteran Member

Date Joined Nov 2006
Total Posts : 1899
   Posted 7/5/2010 8:15 AM (GMT -6)   
Sorry Jag! I was hoping you would slide through but I guess you have to be terminal to get it on the 1st or 2nd try!! But it wouldn't surprise me if someone dying would be declined too! I don't understand it with all the proof we both sent in but I guess thats government for you! They do everything back~asward! So it looks like we're in this for the long haul, as heartbreaking as it is! The government employees will make more $$$> the lawyers will make more $$ and we the ones who need it most will suffer!!
Hang Tough my Friend, One day we will win!!
When I was young & stupid I broke almost every bone in my body and I'm paying a heavy price now but I'm still here and so glad to see my two sons grow up to be fine young men, both are in the Navy. I'm so proud! My biggest health problem>> I'm a certified Luny~Tune!!

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 7/5/2010 9:00 AM (GMT -6)   
Hi Jag,

I'm sorry to hear of the denial....I truly don't understand the process in the States and why it takes so long for legitimate claims like yours and Pete's to be processed.

I hope your lawyer is good and is prepared to go to bat for you. Please know that I will be praying for you (and Pete) for quick results. I don't know if you are a Believer or not but I witnessed a miracle this weekend, and I know that prayers are answered. Keep your chin up - we're all rooting you on!

Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3702
   Posted 7/5/2010 9:44 AM (GMT -6)   
I know the frustration you must feel! It is a long tough road to getting SSD, and there doesn't appear to be any easy way of doing it! But just know. that I am (we are) here for you and give you our support along the way!

I wish I could say or do something that would be of more help to you, but it just about seems to be like a "rite of passage" that you have to go through, to end up getting it. and everyone has to go through it in their own way and time. But for most, in the end it is worth it.

I do wish YOU well! and give you my support!

White Beard

Regular Member

Date Joined Apr 2010
Total Posts : 34
   Posted 7/5/2010 11:23 AM (GMT -6)   
I am sorry for all of you having problems with ss. I got mine back in 87 after a 3 year fight. I did my own case up until the court and they told me I need a lawyer, so I got one he failed to say that my W/C was going to off set it, but that was ok. I got to the hearing and the judge just looked at me and asked why did it get this far, I told him I did not know. He granted right then and there. Well I was to be getting over 10 thousand back from SS and I could not get it from them. Even using thier own letter they said they did not owe it. It took another 2 years to get it back. What was real bad when I got mine is I was still on W/C and SS wanted me to pay them to be on SS to pay for part A. I told them to take that and shove it, I was getting $5.00 a month untill my settlement was paid.
I gave up on getting my back pay, and SS keep charging me for part A on and off depending when my husband worked. Well one day I came unglued as they waited 3 month to tell they were not going to pay for it and wanted me to pay 3 months back. I blew up and called them to tell them to take part A and shove it. Well the person on the other end was real sweet and understanding, then she tells me I had money coming to me. She mad sure I got it all back. It took two try to get it but I got it all back plus an extera thousand, which she told me to keep and how to keep it.
Just hang in there once you get to the Judge it is a done deal, I have only heard of a very few not getting it a that point. When you get a court date make sure your lawyer has all the updated reports. You might want to also have letters from friend and famly on how this has effected you physacaly and mentaly.

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 7/5/2010 1:32 PM (GMT -6)   
What can I say that hasn't already been said? I like White Beard's thought of it being a "rite of passage" - not that it should be, but maybe it keeps my expectations low. That's what I've done since reading all the stories here, and learning from straydog's posts. I think (although not sure - not speaking for her) that getting to the judge, with a good attorney, is one of the keys that opens the door. Sort of like what Butterflyrose said. But there is nothing that makes much sense of it all.

p.s. RetiredMom I think your psych. is right, and the summation should do it. You don't want all those personal notes in a public record, especially because you've been seeing him as a therapist. If it was just for an evaluation, that would be different. Good move, IMO.

Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 7/5/2010 2:25 PM (GMT -6)   

I'm so sorry to learn of your denial. Is this the first time that you have applied? From what I've heard, most people get rejected first try. If this is the case, try not to worry too much. Your day will come. Hang in there & keep fighting!


Forum Moderator

Date Joined Feb 2003
Total Posts : 16779
   Posted 7/5/2010 6:25 PM (GMT -6)   
Hey Jag, just keep plugging at it, once you get your hearing before the ALJ hopefully you will have a better outcome. Its all senseless in so many ways, sometimes I think they want the judges to earn their keep too. If I remember correctly, you already have an atty on board so let him know you received your letter.

How are you feeling these days? Hope the low dose of steroids has helped in the pain dept. They are wonderful for pain. Have you been able to reduce any of your pain meds since starting the steroids? Let us know how you are doing.

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 7/5/2010 9:57 PM (GMT -6)   
Just have a second on here, Jag, but I'm sorry for your denial. MORE than frustrating. Keep pushing for the hearing and all - at least you have some "new" developments to report. Hang in there...

Main Health Problems: Dysautonomia/POTS; CFS/Fibromyalgia; Severe Chronic Hypertension; Hypothyroidism; Hypoadrenalism; Mixed (Obstructive/Central) Sleep Apnea - on Auto BiPap; Depression/Anxiety; Severe Vitamin D Deficiency

Pain Issues: Cervical/Thoracic back pain (they called it DDD...but I don't know); migraines; carpal tunnel syndrome; widespread joint/muscle pain, nerve pain in hands/arms/feet; Future Plans: Intrathecal Pain Pump; already completed trial (Sept, 2008); awaiting my decision for implantation...

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 7/6/2010 12:14 AM (GMT -6)   
Dear Jag,

It always good to hear from you *hugg* Though goodness, I really wouldnt have thought that you of all people, would be denied. This terrible news. I really wish they would put reasonable expectations on people. Instead it is seeming more and more people are expected to work at jobs that they physically just cant do.

I am so very sorry they did this to you. There isnt anything I can say to help, but gosh I sure can pray. You are in our hearts here. And again, I am so terribly sorry they did this to you.

*warm hugg*

Veteran Member

Date Joined Jun 2009
Total Posts : 974
   Posted 7/6/2010 5:48 AM (GMT -6)   

Thanks everyone for the replies.  At least I didn't cry this time when I got the denial.  Guess I was expecting it more.  I'm kinda kicking myself in the butt right now for not calling SS myself to delay the decision until my other records with the new dx's was received by them.  They were on their way and my PM doctor had just sent out the cfr to my lawyer last week, I think that is the form, it states how often you can bend, stoop or how much you can lift.  I will call my lawyer today to get the ball rolling again and ask why this wasn't done.

Straydog, the steroids and methotrexate are helping alot.  I am at 12.5mg prednisone per day with 7.5mg methotrexate per week right now but will reduce to 10mg pred starting Wednesday.  The rheumy has me on a slow reduction of prednisone because if you reduce too fast the PMR can come back with a vengence.  She is hoping the mtx will replace the steroids but even that has it's bad side.  I go for blood tests often to check my liver function.

I have been able to wean myself off the oxycontin, down to 10mg twice a day now from 30mg every 8 hours, hopefully will be off of it completely by the end of the month.  Still using oxycodone 5mg as needed.  I am starting to have lower back pain radiating into my hips occassionally so I hope the radiofrequency ablation I had done isn't wearing off already.  I feel so much better without the oxycontin in my head.  My thinking process is so much clearer and I can actually sit down to read a book without falling asleep.  We'll see after the rf does wear off and I am off the steroids to see if I can actually stay off of oxycontin for good.

The sad thing is that I am feeling better now but I know that nothing that has been done is a fix.  It is scary to think about the future still, I haven't forgotten how awful I felt before or how no matter how many drugs I took, I still hurt.  Pain wise I was at a very bad place for awhile and I had thoughts like many here that I didn't want to live like this.  Polymyalgia Rheumatica is very very bad and I wouldn't wish it on my worst enemy.  The pain was debilitating.

DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3, fibromyalgia, polymyalgia rheumatica

Forum Moderator

Date Joined Feb 2003
Total Posts : 16779
   Posted 7/6/2010 9:19 AM (GMT -6)   
Jag that is wonderful news that you have been able to reduce your pain meds, I am sure you are pleased over that. Lets hope you can get the steroids down and eventually off if you can depend on the methotrexate. A slow taper has to always be done with steroids or a person can end up in bad shape for many reasons. I have many friends on the methotrexate for R/A and crohns and have been on it for years. Just do the liver function test and hopefully you will be fine with it. A few have had to stop for a bit if their enzymes elevated but they were always able to resume it later. I do liver the liver tests because of two of my crohns meds every three months, so far so good, and I knock on wood, lol.
Maybe the RF is still working and this is just a bit of a setback. Keep us posted on your success.

Veteran Member

Date Joined Jun 2007
Total Posts : 702
   Posted 7/6/2010 10:42 AM (GMT -6)   
I am so sorry. Things like this really make me upset. It also makes me wonder how the heck, I got approved? ANyway keep up the fight.

will be thinking of you.
Chronic Lyme Disease,Fibromyalgia, CFS, PCOS, sleep apnea, hypothyroidism, type 2 diabetes, bulging discs to name a few

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