Thanks everyone for the replies. At least I didn't cry this time when I got the denial. Guess I was expecting it more. I'm kinda kicking myself in the butt right now for not calling SS myself to delay the decision until my other records with the new dx's was received by them. They were on their way and my PM doctor had just sent out the cfr to my lawyer last week, I think that is the form, it states how often you can bend, stoop or how much you can lift. I will call my lawyer today to get the ball rolling again and ask why this wasn't done.
Straydog, the steroids and methotrexate are helping alot. I am at 12.5mg prednisone per day with 7.5mg methotrexate per week right now but will reduce to 10mg pred starting Wednesday. The rheumy has me on a slow reduction of prednisone because if you reduce too fast the PMR can come back with a vengence. She is hoping the mtx will replace the steroids but even that has it's bad side. I go for blood tests often to check my liver function.
I have been able to wean myself off the oxycontin, down to 10mg twice a day now from 30mg every 8 hours, hopefully will be off of it completely by the end of the month. Still using oxycodone 5mg as needed. I am starting to have lower back pain radiating into my hips occassionally so I hope the radiofrequency ablation I had done isn't wearing off already. I feel so much better without the oxycontin in my head. My thinking process is so much clearer and I can actually sit down to read a book without falling asleep. We'll see after the rf does wear off and I am off the steroids to see if I can actually stay off of oxycontin for good.
The sad thing is that I am feeling better now but I know that nothing that has been done is a fix. It is scary to think about the future still, I haven't forgotten how awful I felt before or how no matter how many drugs I took, I still hurt. Pain wise I was at a very bad place for awhile and I had thoughts like many here that I didn't want to live like this. Polymyalgia Rheumatica is very very bad and I wouldn't wish it on my worst enemy. The pain was debilitating.
DDD, osteoarthritis, facet syndrome, fusion surgeries C-5/7 & L-4/5 both in 2006, torn meniscus surgeries left knee 2000 & 2002, buldging disc L-2/3, fibromyalgia, polymyalgia rheumatica