Posted 7/8/2010 7:10 AM (GMT -6)
How is everyone today? I hope good. So, my blood work is still all messed up. My SED rate is going up (even being on prendisone) it was 42 last Thursday, I started the steroids Friday and had my blood drawn Tuesday and it went up to 47. My white blood cell count is still high, it has been for the last two blood draws, but I have no fever. I don't have a cold or anything obvious going on. My RA factor was only 9, up from March though but still considered normal. My ANA was negative, but my thyroid is showing all out of whack. It's showing it's overfunctioning alot, but I am gaining weight like crazy.
Still lumpy, bumpy and in horrible pain! I am getting these nodules everywhere. My hands, feet, ankles and wrists are swollen and the rashes on my body are getting worse. I tried the fentynal patch, she gave me the 25mcg to use with my oxycontin to see if I got any relief. It helped with the pain from these nodules or lipomas (whatever they are) it helped my back and hips, but gave me a horrible headache! I had to take it off. I can't get in to see the rheumy until August so she got me in with a dermatologist today. Her thoughts being that he may know what is causing the lumps and rash and can tell us where or what we do next. She is concerned about my blood work. Her words were "Something bad is brewing in there, and we need to find out what it is".
So, needless to say I am kind of scared and tired of hurting. She didn't really look into Dercum's Disease, even though I told her I had so many symptoms of it. She is a great doc but doesn't seem to want to research this, just pass me off. Hopefully someone can figure out what the heck is going on. Maybe I will get some answers today, I sure hope so!
Thanks for listening to my sob story...I hope you all are having a great week with low pain.
Any thoughts or suggestions would be much appreciated! Take care everyone.
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines