Hi Frances :)
Don't even get me started about the dental stuff.... If I only would have known what was to come after using Actiq for 2 years.... :( I didn't have a cavity until 17 years old, and the 2nd one until 30... and now - I'm in the midst of creating a whole new mouth.
Anyway, thank you so much for this info! I'm really interested in hearing if you switch to it - and what your experiences are on it. It will be September or better before I start back on the Actiq - and, if there's something else that won't do the damage - I'm really curious to switch.
Yes, I still use the Actiq (well not now, but will go back on it)... it's the only thing that really works as a "good" breakthrough med for me. That being said, I constantly switch the places in my mouth where it goes it (not letting it "sit" in one place, like I used to) and immediately brush my teeth afterwards. I tell myself that it helps - but I really don't know.
Do you think the Fentora is stronger than the Actiq? Well, I know dosing wise it is - meaning you use "half" or whatever the Actiq strength...but I used it for about 4 months and then switched back. I just didn't like how it dissolved and such.... sometimes it seemed to work; other times not so much.
Like I said, let me know if you do switch and what you think. I don't think there's many of us on this med - because it's so darn expensive and many insurances just won't cover it.
Thanks Frances :) -- Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.
Pain Issues: MANY; multiple back issues (cervical/thoracic); migraines; severe carpal tunnel syndrome; widespread joint/muscle pain; nerve pain in hands/arms/feet. Treatments - multiple meds; injections; nerve blocks; have had intrathecal pain pump trial (successful, w/ Dilaudid); eventually will have it permanently implanted.
MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)