Thanks for the encouragement. Actually, they do want me on site for my body (well, not mine -- it's pretty useless -- but they want someone who can run errands). They don't feel like technology issues are important during a live conference & it's a small organization so they don't have extra low-level people who can do those sorts of tasks (well, sometimes they get interns, but that's not always possible).
I've been doing the job as a temp for several weeks now & have been offered the position but haven't accepted it yet (well, only the manager has offered me the job at this point; I need to get the formal offer from HR). I talked with my manger today about whether if I am able to through these modifications dramatically increase our membership numbers (which is her number 1 goal) could we get someone else to do the running & she did agree to that much.
I got lucky (well, if you believe in luck) today & won over a very powerful industry insider who has agreed to partner with me to recruit dozens of new members (possibly well over 100) who she has in her network. Getting that many extra people would definitely cover a lot of possible options [possibly even including hiring a temp to do all the manual labor tasks at the conference, though she's still not too keen on that]. We also just today added a new web-based continuing ed course that will bring in quite a bit of money -- and that was largely in part to the changes I made to the last web course b/c many of those people now signed up for this one -- something that almost never happens.
I keep trying to drive home that I have a lot of skills & if the primary goal is to make enough money to be able to do more things & have a greater impact in the industry, then I can do that no problem. Maybe I can't get there the same way someone else could (if someone else could) but I do get there with striking results. She's been okay with me having a fully flexible work schedule (as long as I get my 35 hours in, I can work any arrangement of days & hours I'd like, either in the office or remotely). She's okay if I'm not feeling well & need to leave mid-way through the morning. But somehow she just gets so hung up when it comes to these 2 stupid conferences!
I've planned a lot of conferences & the way I've managed is by meticulous planning/organization, better than average communication & explaining to all my vendors/speakers/etc. that I have a disability & they need to be able to give me a bit more time to take care of things (i.e., go to your room more than 5 minutes early because it will take me longer than that to get out to your meeting space & start trying to resolve the issue). And I've always worked with temps. Ultimately, I'm responsible for things, but they do most of the grunt work. I just make sure the trains keep running & if times get super desperate I jump in.
But with my last job most of the conferences were held locally (people flew into Chicago). The few that weren't I typically managed from my local office with on-site staff (I used to work for a large corporation).
The situation is pretty hard. I'm fully aware that I can't do things like everyone else. But that doesn't mean I'm helpless either. I've been looking for a Results Only workplace for nearly a year & finally found one (basically -- minus 2 weeks of the year). I can lay down in my office, stand up, sit down or walk around whenever needed. And if I take it there are apartments 3 blocks away. There aren't too many jobs out there like that & I mentally can't handle not having something productive to do. I think about really, really dark & negative things all day long if I don't have something to keep my mind engaged. So I have to find something & in spite of the fact that my boss is really, really, really ignorant about disabilities, she is nice & generally pretty smart so if I can figure a way to manage these 2 weeks, I'd like to accept the job. But that's a tall order & I'm not positive it can be done. I won't make the mistake I've made in the past & totally over-do it thinking it's the only way to save my job only to end up losing it anyways. If I have to give up, I will. I've got 5 months til the next conference, but I'd rather not take a job for such a short time only to quit or be fired as soon as I have to face the conference.
Oh man, I'm exhausted from all this thinking.