Nope, I don't have a diagnosis. I had a pretty horrific trauma to my eye & nearly lost my eye (believe it or not, all due to a freak finger poke to my eye) about 4 yrs ago & have been in constant pain ever since. I also have a lot of rare neurological problems with the injured eye that have developed in the time since the injury & seem to indicate that my brainstem is somehow involved (although all tests always come back negative). I'm a real mystery (one of those once in a lifetime/to-be written up in a medical journal & presented at conferences cases, lucky me).
Right now there's not much we can do. My vision & function of the bad eye is progressively worsening. Only recently have I found some decent pain control. Over the course of the last 4 years, I've been on just about every medication out there with no luck. Nor have any nerve blocks or other procedures given me any relief (with the exception of one nerve block, which is so dangerous that it is used as diagnostic only). However, earlier this month, in a last-ditch effort, I underwent a successful trial & permanent implantation of a peripheral neurostimulator (same device as an SCS, but my electrodes are on the supraorbital & infraorbital nerves in my face, not my back) & I have been getting up to 50% relief from the stimulator. It's not perfect, but I'll take whatever I can get! I honestly couldn't be happier with the effects of the stim so far. Not only is my pain improved, but my eye alignment has improved somewhat as a result, and my depression is a little improved.
I don't think that there is a private message feature on HW, however, you can always reach my via email. My email is listed in my profile, just click on my username & it should pop up. I'd be happy to chat anytime & help you out in whatever way I can!