I got some news yesterday

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Veteran Member

Date Joined Sep 2009
Total Posts : 663
   Posted 7/28/2010 6:44 AM (GMT -6)   
Hi everyone! I hope you all are doing well. I went to my doctors yesterday and she had the test results from my thyroid. There is something really wrong with it. She thinks I have Graves disease. I will be seeing a Endocrinologist (SP?) soon, we are hoping this week or the beginning of next week.
I know nothing about Graves except for what I have googled since yesterday. I do have alot of the symptoms but it doesn't say anything about it causing horrible pain everywhere or that it causes these wierd bumps. I asked my doc about that and her answer was that she thinks I have something else going on too (probably another AI) but that we need to treat whatever is messing up my thyroid first then see what symptoms still hang around.
So, at least I got some answers. I am scared to death of Graves because of what it does to your brain as far as memory problems. mood swings and even dementia. Does anyone know if you get your thyroid out due to graves does the mental stuff go away? I really hope so, I am still raising kids, I have to function mentally.
Anyway, I thought I would let you all know what was going on and I will post again when I know more.  Take care.
Gentle Hugs,
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines

left forum.
Regular Member

Date Joined Jul 2010
Total Posts : 200
   Posted 7/28/2010 7:01 AM (GMT -6)   
I am so sorry to hear the news. I don't know anything about it but just wanted to say that i hope you can sort stuff out and you are okay.

Thinking of you,
Good luck xx

Veteran Member

Date Joined Apr 2009
Total Posts : 856
   Posted 7/28/2010 7:39 AM (GMT -6)   
I'm so sorry that you're going through all of this.



Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 7/28/2010 7:46 AM (GMT -6)   
I'm sorry for the diagnosis, but happy that you have a place to start.  At least there is someting to work toward now and a reasonable time frame to work from. 

All my best to you!
Retired Mom

Veteran Member

Date Joined Feb 2010
Total Posts : 914
   Posted 7/28/2010 9:36 AM (GMT -6)   
Keep the faith Shannon , they can work miracles these days . I know you must be nervous its shocking to hear news like that from doctors and then your mind works overtime creating scenarios but it could as easily turn out positive for you as not , so try to stay with the positive scenarios .Keep us posted and take good care of yourself Shannon , love you lots , your friend Mikel

Veteran Member

Date Joined Sep 2009
Total Posts : 663
   Posted 7/28/2010 9:38 AM (GMT -6)   
Thank you all for your concerns, I really do appreciate it. I am very scared right now but in the same breath I really want to know what is all going on with me! I am so sick of hurting and all the other new stuff that has been going on with me (rashes, lumps, swelling and increased brain fog) that I want answers and to be able to get the treatment I need. I really want my life back, ya know? Yep, I know unfortunatly you all know exactly what I am saying. Ok enough of the pity pot stuff! Thanks for listening, I love you guys!
Gentle Hugs,
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 7/28/2010 10:15 AM (GMT -6)   
get an appointment with your eye doctor and keep him/her informed of this as it
can affect the eye's and eye drops might help, second is to try to remain calm
I see an endocrinologists and he/she will run more bloodwork and it helps if
you can go to their website to get the new patient paperwork filled out and as
this is a specialists it might take between 2 to 3 months to get in to see them, it
took me three months to get my first appointment with my endo...there is a a
website that has a thyroid disorder and it's www.medhelp.com go there and register
their wedsite for thyroid disorders id very very good, I've posted on that on before,
but this cp forum is better than there's for back pain.....they have an active and informative thyroid disorder forum...
www.medhelp.(I think it's either.com or .org) not sure a google search will bring it up
Prayers and hugz...
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...


Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 7/28/2010 11:39 AM (GMT -6)   


    Dear Shannon,

     Good morning. I am glad you stopped by. *hugg* Though, goodness, I am so sorry that you have another diagnosis. But, it sure would explain alot. Graves disease has alot of symptoms and complications. I read the process of treating it is indirect via antithyroid druggs, destruction of the glands or surgical removal. Not so good. It looks like there just inst many treatment option and just plain not enough is known about it. I dont know if you had a chance to see the wekipedia explaination...

~~> http://en.wikipedia.org/wiki/Graves'_disease

     I hope you are able to get in to the endocrinologist right away. Please, let us know how it goes. I know you are more than likly scared to no end. Try not to think about it too much, if possible. Wait to hear what the endocrinologist has to say. If all goes well he should be able to pin point your other problems as well. Hang in there!


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 7/28/2010 3:26 PM (GMT -6)   
Hi, Shannon,
Well, you wanted some answers - but sometimes we don't know what's worse, the anxiety waiting for them, or the anxiety after we find some things out. But at least you can begin learning. I don't know a lot about Graves but I'd suggest reading credible sites like the mayoclinic.com or even webmd. The site suggested by Chartreux also sounds interesting. I don't rely on wikipedia because anyone can add to that site, so the information may or may not be good.

Thyroid disorders sure can affect mood swings. Once it's removed, you'll probably be placed on something like synthroid to replace what your body needs, and will need to keep your levels monitored through your doctor. However, if you keep your levels stable, you'll probably see an improvement in mood swings. Hypothyroidism (low functioning) symptoms are similar to those of depression, while Hyperthyroidism can mimic symptoms of anxiety. So stabilizing your thyroid levels should help stabilize mood. I'm not sure how much it will help with memory, though, but since mood can affect memory you'll probably have some improvement. These are all great questions to ask your doctor.

Good luck with everything!



Regular Member

Date Joined Jul 2010
Total Posts : 416
   Posted 7/28/2010 4:13 PM (GMT -6)   
So sorry to hear about your DX but I am glad that you found out something that explains everything. The wait to find out is the worst part,huh? Hang in there and good luck with the specialist. Heather

Veteran Member

Date Joined Sep 2009
Total Posts : 663
   Posted 7/28/2010 4:38 PM (GMT -6)   
Awww, you guys are so awesome! Once again I am so touched that you all care so much. I just got off the phone with my doctor and I am scheduled to see a surgeon on the 11th. He will then decide if he is going to remove my thyroid or destroy it with radioactive iodine. I guess medication isn't an option, I won't know why until I speak to him. I am very scared, but I know at least I will have one of my problems taken care of so then we can start working on getting a diagnosis for all the other stuff that is going on with me. One thing at a time I guess. I will keep everyone posted. Thanks again for all your concerns and ideas. Take care.
Gentle Hugs,
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), GERD, High blood pressure, Depression and Anxiety
Oxycontin, Flexeril as needed, Lopressor, Lexapro, Omeprazole, Clonazepam as needed, Promethazine as needed for nausea from migraines

Veteran Member

Date Joined Apr 2004
Total Posts : 1539
   Posted 7/28/2010 5:03 PM (GMT -6)   
I have Hypothyroidism,I also have dementia.....No big deal i'm still doing great even after 13 years......Acceptance is 1/2 the battle fear makes things WORSE!

Veteran Member

Date Joined Sep 2009
Total Posts : 1176
   Posted 7/29/2010 2:10 PM (GMT -6)   
Oh Shannon!!

Well, I guess it's good to have a diagnosis but I'm so sorry that you are going through this! I have the *other* autoimmune thyroid disease, Hashimoto's thyroiditis....and I wasn't diagnosed until my own immune system had pretty much killed my thyroid. So I've been on thyroid replacement therapy for many years now, and yes, as long as you are on the right dosage you can lead a perfectly normal life!

I would be leading a perfectly normal life except that I have about 10 other things wrong with me which make that impossible. sad

My niece Jessica has Graves disease and she does quite well, she works, she just had a baby boy a few months ago.....I think that overall the medical community has a good handle on Graves disease and how to deal with it so try not to worry too much!

You are in my thoughts and prayers.....please keep us posted!
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, EBV, CMV, AIH, Hashimoto's, lupus, fibro, RA, celiac disease, asthma, psoriasis, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, L3-4 and L4-5 radiculopathy -> severe lower back pain, cubital tunnel, tarsal tunnel, IV Rocephin, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec, CPAP


Forum Moderator

Date Joined Feb 2003
Total Posts : 16804
   Posted 7/29/2010 2:30 PM (GMT -6)   
Shannon at least you have some answers try not to let it all overwhelm you. Take it a day at a time. Try not to to get too hyped about the appt with the dr next week, wait and see what he says and which direction he thinks the two of you should go. Sometimes getting those answers is not what we want to hear but now you know why some of the things that are going on with you. PaLady recommended the Mayo Clinic and WebMd as good sites to get info from and my PCP and gi dr both suggest these two sites when needing medical info. I learned a lot about crohns from these two sites, probably more than I wanted to know, lol. One of the best things you can do is educate yourself about any medical condition that you may have. Take care.

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 7/29/2010 8:01 PM (GMT -6)   
Hi Shannon,

I'm sorry to hear the bad news. I don't know much about Grave's disease other than the ocular symptoms (it was something my doc considered at one point early on in this journey of mine). But at least on the bright side, you have a diagnosis & so you can begin to treat it. Try to take things slowly & don't let this overwhelm you all at once. Do lots of research & talk with your doctor.

Hang in there!


Veteran Member

Date Joined Sep 2009
Total Posts : 663
   Posted 7/30/2010 6:44 AM (GMT -6)   
Thanks everyone, I am doing my best not to panic. It is what it is and I can't change it so I will have to deal with whatever comes my way. One good thing though is I have been wanting my vitamin D level checked due to the fibro, my regular doc said she couldn't check it because my insurance would only pay if I had suspected osteoperosis (SP?) Well the rheumy checked my level and it was low, 23.5 so he put me on 2000IU daily (gave me a years worth of refills too) So maybe I will start getting a little relief from the fatigue. I will take any relief I can get...lol I hope everyone has a wonderful weekend...Take care.
Gentle Hugs,
Fibromyalgia, Chronic daily headaches, Migraine disorder (with and without aura), Graves Disease, GERD, High blood pressure, Depression and Anxiety
Oxycontin, Lopressor, Lexapro, Omeprazole, Valium as needed, Promethazine as needed for nausea from migraines

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 7/30/2010 5:00 PM (GMT -6)   

My MIL has Graves disease. She had lots of symptoms before her diagnosis... had her thyroid destroyed via the iodine, and has been on Synthroid (thyroid replacement) since, and I think it did fix many of her issues.

I have hypothyroidism and am on Synthroid as well. I'm also Vitamin D deficient... when mine was last checked it was a "10" which was up from a 5. I did the 50,000IU 3x a week replacement... and am now on 1,000IU daily. When I'm through this pregnancy, I'll have my levels checked again and see where things are at. I really hope it you get at least a little relief from your symptoms.

I know how it is to worry, definitely. But I'm glad you are seeing an endocrinologist and working on things. It wasn't until I got to my endocrinologist that I started to really get to the bottom of things w/ my health... so I hope it's the same w/ you. You might want to talk to that doc re: the Vit D thing, too.

Keep us updated.... try not to stress (easier said than done, I know). --Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)
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