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Regular Member

Date Joined Jul 2005
Total Posts : 229
   Posted 7/28/2010 11:35 PM (GMT -6)   
I know that I've been missing for a couple of weeks. This running to all of these appts. three times a week to doctors  or for PT is getting a little rough. Especially since each of these are 2 hrs. away from home. This last round the "Fibro guy" just about did me in! I was in bed for 2 whole days. He used this gizmo to do a deep tissue missage was the culprit. It felt wonderful while he was doing it but that night I got so stiff and sore that I could barely hold the toothbrush up to my mouth.  The use this really neat laser thing that they just shoot at your trigger points with and then it creaps up on you the nect day. I had about a 30 min. session just with that thing this afternoon and I'm just waiting for it to kick in.
I had a visit with another pain doctor to discuss the spinal stimulator and things are a "go" with that . For some reason the insurance require everyone to get a psych clearence. I was able to get my visit next Wed. so hopefully that will go well and then I can get the stimulator trial placement scheduled. All of this hangs on how well  my Mom is doing. I  just got back from the ER with her. She is going to get admitted this time. My parents air conditioner went out yesterday afternoon. Being the stubborn people that they are , they refused to come to our house and stay to get out of the heat. The air repairman couldn't get there until around noon today. They had about 10 fans blowing in their home but if it's hot out it just blows hot air. My husband and I went out to get mom and just put her in her wheelchair and force her out of the house and come to stay with us. When we got there Mom's resp. were labored and she was scalding to touch. The axillary temp. read 105.5 so we turned up her 02, called the squad, and I wiped her down with cold wash cloths until we could get her to the ER. I just got home and her temp is now down to 99.0 degrees and she is able to speak. Her Parkinson's Disease is just eating her alive, poor thing.  All seems to be O.K so far.
I read the thread on wearing a medical alert bracelet for the spinal stimulator. I think I will get one, I'm not sure just yet. Anyway, love to each of you. I don't know what I'd do without you.
Degenerative disc disease,osteoarthritis, status post 4 cervical spinal surgeries with plate insertions and fusion, Lupus, Sjogren's Disease, Fibromyalgia, bilaterial knee replacements, total left shoulder replacement, years of chronic headaches and chronic pain, asthma.
Find blessings in every day!

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3702
   Posted 7/29/2010 12:02 AM (GMT -6)   

It is good to hear from you, I am glad that you mom is alright! This has been one heck of a hot summer so far, I know my outside thermometer read 98 today and the humidity is so high it is tropical! I do not do well in the heat, I have the AC set at 68 degrees, and when it gets this hot it has a hard time keeping it at that temp, I noticed it got up to 70 in the house for a little while, I am ok with that, it is when it gets up above 72 in the house that I start getting really uncomfortable! I know that sounds crazy, but I do best between 67 and 71 so I try and keep the house at around 68 or 69 in the summer and 66 to 67 in the winter! Anyway this heat is so dangerous, and it is extremely hard on the elderly ones. Your mom is fortunate to have you and your husband there to watch over her, like that! Well nurse2 I do hope that spinal stimulator helps you, you certainly deserve to get some relief! You have been through so much! Please keep us informed on your progress, and take care of yourself and your mom and try to stay cool!

White Beard

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 7/29/2010 1:25 PM (GMT -6)   
It's good to hear from you Nurse2, and I'm glad all your doctor visits are at least yielding results for you. I'm sorry to hear about your mom's troubles...it sounds like you were able to assist her without much time to spare...it must be hard when your parents are stubborn and don't always realize what might be best for them.

Good luck with all your upcoming medical procedures - I hope we hear more from you and all of it positive.

Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily

Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 7/29/2010 7:55 PM (GMT -6)   
Hi nurse2,

Thanks for the update! It's good to hear from you. I too am glad that your mom is okay. It's been in the 90's with high humidity here for the last 3 wks or so (that's unusual, as I'm up in New England). We actually had a dog die of heat stroke this weekend. You have to be so careful in this heat. The people took this dog hiking - not a smart idea in this weather.

Good luck with your ordeal with the stimulator. I just went through my trial & implant. They never made me go see a psych, but I have heard that it is pretty common have to pass a psych eval first. They just want to make sure that you have realistic expectations.


Forum Moderator

Date Joined Feb 2003
Total Posts : 16783
   Posted 7/30/2010 1:15 PM (GMT -6)   
Hi Nurse2 so good to hear from you. It does sound like you have been really busy running to different dr appts. Very glad to hear that you have had your 2nd opinion for the SCS. Are you sure its your ins company wanting the psych eval or the manufacturer of the unit? I know Medtronics requires pump patients and SCS patients to undergo the psych evaluation as Skeye said to make sure you have reasonable expectations of the pain being reduced. Anyway, the exam is no big deal, its just tough sitting there.

Good luck to you and I hope your trial goes well. So very glad to hear you got to your mother when you did. Take care.

crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & psoriasis and psoratic arthritis. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 17 different daily medications. Intrathecal pain pump implanted June 05.

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