Thank you all for the welcome! It means a lot to me, and I think you all know how much.
I saw a pain therapist for months, but surprise! Insurance won't cover any more visits for this year. When I was in the 3-day a week physical rehab it used up all my visits for the year. I plan on next year spacing them out so I don't have gaps in therapy. It did help, but financially we can't afford the cost.
Miralax and stool softeners are mandatory. Every day I take all these crazy pills, sometimes cutting them in half is the only way to take the big ones. Dani, thank you for sharing your own sensitivity. For the longest time I have felt alone with how much the drugs affect me. Doctors also have issues realizing that what works for one is not always good for another. It is trying hearing for years that nothing is wrong with you, only to find a wonderful physician that understands and believes you, but has no idea what to do.
Pebbles you are right about the frustration of limitations. I am sorry you are all going through limitations and restrictions. Today I am choosing to stop thinking life is passing me by, and will focus on finding ways to do things with my family that will keep the pain down. I am dreading the weekend. Our church has a picnic with tie-dyeing, but I am in charge of the dyeing part. I know why I volunteered, it makes me feel great touching others lives with fun, but I dread the bending and sitting. Everyone there is very understanding though, and my friends, my sons and fiance will do all the lifting, reaching, and moving for me.
MsBunky, congratulations on your twin girls! That is so exciting! I will send good thoughts your way for you and your family. Heat has become my best friend. My hot water bottle goes everywhere with me and we are investing in a large heating pad to help with the in between times that the bottle can't be used. Thank you for responding. For the longest time I was told there was nothing wrong with me, it was in my head, and it helps so much to know that there are others who are experiencing the same type of issues. Feeling like a freak of nature doesn't help the struggle with isolation or loneliness that debilitating pain can cause.
I have dogs too. A golden retriever named Achilles and boston terrier/pug mix named Monty. They keep me walking, and along with the boys provide endless hours of laughs and happiness. Thank you all again for your support!
Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, and adhesions.