Suzane, I so wish there was an answer out there for you...something that the doctors have overlooked in regards to treatment. I pray for you daily and I continue to websurf to see if I can find something that might be helpful to you.
Have your doctors ever talked about
"cluster headaches" with you, or "ictal" headaches? Those are two that might be of interest to them. There is information here if you want to look into it: http://en.wikipedia.org/wiki/Cluster_headache
Even if your doctors didn't think it was cluster headaches causing your constant pain, it might not hurt to try some of the suggested treatments, just in case.
Keeping you in my thoughts as always Suzane. I hope this information helps even just a tiny bit.
Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoroacetabular Impingement (CAM and Pincer), Carpal Tunnel Syndrome (both wrists), Reynauds, IBS, Scar Tissue/Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started
Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT
Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily
Post Edited (MsBunky) : 8/8/2010 7:11:43 PM (GMT-6)