I am so glad you had a moment to stop by and update *hugg* I do hope you have been able to keep your pain levels down? More so, I hope you have been able to enjoy the summer
I cannot fully understand what all you must be going through, but I can relate some what. I have Adult Progressive Scoliosis (primary progressive curves). It effects my spine, hips, pelvis, knees and shoulders. ... the damage is staggering and relentless. I also need other congenetial, genetic disorders adressed that cause pain as well. My pain is addressed in many ways... steroids, muscle relaxers, NSAIDs, opoids, TeNS, Tricyclics....
It is important, in my opinion, to have multiple approaches to your pain when it comes from multiple sources. I do not think there is a "one method fits all" when it comes to chronic pain. Your being referred to a pain management specialist could really help you out alot. He/she will be able to open to the door for you to all sorts of different therapies, procedures and medicines. I cannot comment on if he/she will keep your current medicine. I would think that since it works so well, they just might keep it the same. Or who knows, they may want to try to help in other small ways? Maybe add in something new at bed time as well to help the insomnia? I think this could be really good for you! I dont think you should worry.. though if I were in your shoes I would be a bit nervous myself..*hugg*
I know you referr to your medicine as "hard core", but I dont really think it is. There is a huge difference when treating someone with congenetial, genetic and progressive deformities. Nothing you do or dont do, will change your congenetial problems. There is literally nothing that can be done except to make the patient "comfortable to retain quality to life". I would think that any doctor you see, would do everything they could to help you retain quality to your life.
I hope your appointment goes well. It would be so nice if you ended up with someone who truly understands all your needs. When is your appointment? Be sure to update as soon when you can.
You are in our hearts and prayers here. Stay Stong!
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator