Hi Mlatida and welcome to the chronic pain forum. I am assuming that you have visited the crohns forum here at Healing Well. That is a really great group over there, so any questions about cd I feel sure they will help. As far as pain goes from crohns I can commiserate with you as I have the disease myself. I was dx'd in 2002 after an emergency small bowel resection for a complete blockage and abscess.
I am not real sure which type of pain you are suffering with as a result of your crohns. Are you speaking of abdominal pain or by chance do you suffer with crohns arthritis which hits the joints? I started having the terrible joint pain about 3 months after my surgery and it escalated and got so many other old problems triggered, that there for a while I thought I was losing my mind. It was like a domino effect causing so many problems.
My gastro like most does not offer pain medication to his patients and he referred me to a PM dr to address the pain issues. For the stomach cramping and the pain associated with that I take Bentyl which really helps me out in that department. I am also on Humira which helps with the joint pain, Entocort, Lialda and Imuran for crohns. What medication does your dr have you on? If your PCP is not willing to help you with your pain issues then you may want to consider asking either the gastro or PCP to refer you to a PM dr. One thing I do want to run by you is I know of a couple of people that are successful in controlling their pain with accupuncture. I am not sure if this is something your health insurance would pay for or if you would even be interested. But, I did want to put that out there for you. You speak of painful sex, have you been checked by your gyno to make sure there are no other underlying problems going on? If not, maybe a trip to your gyno is in order.
I sought care with a very good psychologist that was well versed in auto-immune diseases and chronic pain. I became very depressed which happens to a lot to people with chronic pain and I was in denial for quite a while in trying to deal with crohns. My PCP put me on an antidepressant and it really helps smooth out the rough edges. If you feel you are depressed, do not hesitate talking to your PCP about this. It is not a sign of weakness either, we are very strong people to live like we do. She was so helpful to me in learning how to deal with so many issues from the medical side of things, grieving over the loss of my job that I enjoyed so much, feeling guilty because I did not think I was contributing as I had done before, guilt really chewed on me, anything associated with feeling like your life you knew is gone. I became disabled due to crohns so my entire world was suddenly turned upside down. Overnight it seemed like my life had been snatched away from me and I had no idea how to accept any of it, let alone accept it. I sure did not understand any of it. With her help I was able to turn things around slowly. I think you probably know by now the life of being a chronnie is lived one day at a time.
I really do not feel like I have answered any of your questions, but I am not sure what type of pain issues you are dealing with so I just wanted to give you an idea of what happened with me. I do hope that you will keep posting and let us know how you are doing. Take care and let us hear from you. Susie