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Veteran Member

Date Joined Sep 2006
Total Posts : 1713
   Posted 8/14/2010 1:37 PM (GMT -6)   
Hello good friends:
Well, it's taken me a few days to get to writing to all of you since my last chemo infusion on this last Tuesday. Today is Saturday and I am still hurting in my legs, feet, hands and other places too.  It's mostly alleviated by the percocet, so I'm not complaining too much. 
I had some nausea and sharp pains in my abdomen this time, but those things happen.  I didn't vomit and was always able to eat, so that was good.  Food and especially water and other drinks don't taste right, but I drink anyway, cause I know it is good for my system.
Ordered some more caps for my head this week.  They should be here on Monday.  I am looking forward to them.  They are sleep caps and fit a bit better than the scarves.  But I still love my beautiful scarves that my daughters bought for me.
I still sleep alot after the chemo.  I have to take a nap every day, but that's ok.  It doesn't interrupt my schedule. lol!  I dream a lot and last night I was in an argument with a bunch of nuns in the church.  Hahahaha  Don't know what that was all about!  Usually I have disney dreams.  They say it's from all the steroids I take before and during the chemo. lol.  But I do get the sleep in, so that is good, even if it is technocolor or black and white as it was with the nuns!!!
I went to my weight watchers meeting place this morning. I wasn't up to staying for the meeting, just wanted to buy some chocolates from w.w. and see the leaders.  I haven't been there since May and they were all so happy to see me.  I weighed in and found that I had gained 7 pounds.  The steroids are helping me gain the weight, but I am being more aware of the junk I have been eating too, so I hope to lose just a few.  I am anemic, so I have to be careful, but I have to eat right too.  Just indulging too much, but that's kinda understandable.
I am very happy to hear from you all when you write in to me.   It helps to know that you are praying for me and that I have all your support.  Sometimes it's unnerving, this cancer, and I wonder how it will all turn out, but then I remember,  I have all these people praying for me!  I am fine and strong and I will make it.  My husband continues to be my anchor and I don't know what I would do without his support.  I love him and my family very, very much.
Oh! my granddaughter, Kelly, lost her second tooth last night at dinner and used her new tooth fairy pillow last night  that I made for her.  She got 6 dollars from the tooth fairy.! But grandpa will give her more.  lol!!!
Thank you for all your support and love.  I love you all very, very much.

Co-Moderator Chronic Pain and Fibromyalgia Forums
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.

Veteran Member

Date Joined Apr 2009
Total Posts : 856
   Posted 8/14/2010 2:04 PM (GMT -6)   
Hi Linda. I'm still praying for you. You are so strong and inspirational. I have to go for another ultrasound (long story) too, and have had surgeries for lumps with atypia. So, I really love to read your posts to see how you're doing.

That's so cute that your granddaughter used her tooth fairy pillow. Wow--six dollars:) I bet she's happy!

Hugs and prayers,


New Member

Date Joined Aug 2010
Total Posts : 2
   Posted 8/14/2010 4:00 PM (GMT -6)   
Hi new  here     Linda    just to let  u know  i had chemo  to  i had colon cancer  all done with chemo  now  i did  lose  lots  of weight   trying to gain it back my  weight   i just want  to say if i can make  so can you  hope   you are doing    fine   now i am looking for a place  where i can talk to some one  about  my weight   i need to gain  my weight back   during  chemo  i was  80  then   i went  to   84  it  kept going up and  down   now  i am  89 lbs  i want to get  to what i was before   100  then go on  from there   i was always  thin  i hate  being thin   it bothers me a lot   i posted  something on here and i  cant  find it    i end up in tears at times       

Veteran Member

Date Joined Aug 2008
Total Posts : 3193
   Posted 8/14/2010 7:14 PM (GMT -6)   

Thanks for updating us... I think of you frequently so it's good to hear from you and hear how you are doing. I also pray for you each week. I'm sorry you are having some pain and are sleepy and all of that... but it sounds like you are doing all the right things to take care of yourself. And, wow, you are doing the Weight Watcher's thing? You go, girl! That's awesome :) ... but try not to worry too much about indulging right now; I think if anyone deserves it - it would be YOU :)

My youngest son (age 6) just lost his second tooth and was so excited, too. I love all of these special, "simple" moments of life.

Hang in there, Miss Linda and know we all love you and are pulling for you! Keep updating us when you can... and, as always, will continue praying for you.

Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 8/14/2010 7:27 PM (GMT -6)   
Hi Linda,

Thanks for the update. It's always nice to hear how you are doing. You still amaze me with your attitude! You are such a strong lady & such a fighter. I know that better days are ahead for you. As always, you are in my thoughts & prayers.


Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 8/14/2010 8:18 PM (GMT -6)   


   Dear Linda,

     It is so good to hear from you *hugg* Thank you so much for stopping by to tell us how you are doing. Your strength is so inspiring to all of us. We all admire you oh so much!

    I am so sorry that the chemo is making your joints hurt so badly. It sounds very painful to say the least. You must be worn out to your very core by now. I am glad the percocet is helping your pain. It must be so hard to keep food down, let alone so many pills.

     Oh your grandaughter sounds like a little jem, no doubt. I think what like the most is my daughters ability to take me with them on their little "day dreaming adventures". Just today we were living in a huge house (doll house) and planting gardens with the fairies... gosh I love it when they are so little.

     I hope you are able to get some restful sleep. You are in our prayers here and always in our hearts!


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator

Regular Member

Date Joined Dec 2007
Total Posts : 104
   Posted 8/14/2010 9:02 PM (GMT -6)   

You seem to be in great spirits. Keep it up gal! It's good that you are enjoying everyday milestones whether it be a grandchild's tooth or losing/gaining weight or having strange Disney dreams (now that's plain bizarre! lol)

Keep fighting the good fight. You're doing great!

Thoughts and prayers are with you.

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3702
   Posted 8/14/2010 10:21 PM (GMT -6)   

Get those nuns to say some prayers for you too! smile, I keep you in my prayers. and will continue to do so! just be carefull when your counts are low, you certainly don't need to catch anything! Thank-You for the up-date, stay strong my friend, we are all here giving you alll our support!

Peace be always with you my friend!

white Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 8/15/2010 12:08 AM (GMT -6)   
I'm so glad you updated us. I think about you often, especially with my cousin just a few steps ahead of you. She told me yesterday that her hair is just starting to slowly grow back! It's just kind of fuzzy right now, but at least it's coming back, so yours will, too!

Like everyone else I am so amazed by you and my cousin for your courage and positive attitude as you go through this. My cousin is having daily radiation, yet still running around and taking care of the grandkids almost like nothing is any different. She's just a bit more tired and takes a few extra naps, but otherwise is on the go.

Wow, tooth fairies sure have increased their pay outs since I lost a tooth! :-)


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