Teeth/shoulders/pain patches and Scarred's island

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Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 8/18/2010 9:18 PM (GMT -6)   
That just about sums it all up! Scarred I love the idea of a tropical island somewhere, warm water, waited on hand and foot. Just wonderful. I'm definately up for that one.
My teeth have finally decided they've had enough of the meds I'm on and have started to fall apart on me. I wouldn't mind so much if it wasn't just so darned expensive. I've had 3 trips to the dentist and will probably need another 3 or 4 before my saga is over. Root canal or not root canal is a bit of a concern too when I'm told my chances of it working are 50%. Do I spend all that money for a 50% positive outcome? Oh the joys. Now WhiteBeard I know you told me to watch my teeth on methotrexate and prednisone but somehow watching them wasn't enough! They just went ahead and decided to fall into pieces anyway. Most irritating. I feel like I've been living on antibiotics and now they tell me if I do go ahead with the RC I'll have to do the whole lot on anti biotics...ahhh!
Then I've been trying to be good, pacing myself, resting, seeing pschychologists, taking my meds doing my hydrotherapy... and my shoulder suddenly decided to go on me, had the ultrasound and now it seems my supraspinatus tendon has decided to calcify and the bursa around it is swollen. I mean what next! I see my rheumy in September so I will struggle on till then. I got some exercises from my physio at hydrotherapy, she said something about frozen shoulders but I sort of don't want to know, I have enough joints to deal with without adding another.
I went back on my pain patches again, just felt the tramadol wasn't doing anything for me again, I hope I don't get the migraines back. I'm trying the Norspan patches this time, I've only been on them 2 weeks but its taken out my background noise. I feel lighter somehow, more energised, certainly not pain free but quite ready and prepared to head off to that island retreat.
Then today seeing my local doc she is now thinking of putting me on another med to stop ulcers, as mobic, prednisone and seretide can cause bleeding and ulcers. Its like another pill to add to the arsenal and yet another expense. I think I'm just over it all, wheres that island? Golitho

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Date Joined Mar 2008
Total Posts : 3089
   Posted 8/18/2010 9:34 PM (GMT -6)   
((((((((((Golitho))))))))))). Boy everyone seems to be having such a rough time lately. I really do wish that there was something more that I could do to help. Saying "hang in there" just doesn't really seem to cut it.

I do hope that the change in pain meds helps without causing you more problems. Unfortunately, just like with the prednisone, pain meds can be a double-edged sword. I sure wish that there was some magic pill that we could take to fix all our problems. Maybe that's something that they have on Scarred's island?! I'd sure like to find out. Better count me in! smilewinkgrin

Feel better, my friend! You're in my thoughts & prayers.


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Date Joined Sep 2008
Total Posts : 1670
   Posted 8/18/2010 10:44 PM (GMT -6)   
Despite it all Skeye I feel like I am finally coming out of my blue funk. Like I can cope again, just as well when life seems to be throwing some more hurdles my way.
My parents are coming to stay next week too, they're mid eighties now and rather fragile, I can't wait to see them.
Plus my daughter just turned 17, we had a party for her, she had a fancy dress party and played some old fashioned party games, as she felt next year she'd be an adult! So funny as if she can't be silly anymore. Neverthe less I felt quite sad shes turned 17, sort of lost my baby feeling, she still has one last year left of school though. So won't be leaving home just yet!
Thanks for your support, Skeye, golitho

Mrs. Dani
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Date Joined Jun 2009
Total Posts : 2787
   Posted 8/18/2010 11:47 PM (GMT -6)   


   Dear Golitho,

    *hugg* It sure is good to hear from you. You and Scarred be sure to make room for bumblebees and I. We will be right over!

     Gosh, I am so terribly sorry to hear of your teeth. My heart hurts for you. I really do understand. Not good, not good atall. My dental reconstruction was a nightmare. The General Dentist, Lab Tech, Surgeon and Shading Specialist all donated their time and facilities...yet I still had to pay close to 11,000 "materials". My insurance only covered 2,500. what a joke!

     I know you need the work done, but I worry some... Are you going to be taking the medications in the future? If so, you might just want to go with the root canal. If you do go with the root and cap, and your teeth are still breaking after all that, I highly recommend Mini implant system. Astra Tech is fantastic.

     Also, while I was waiting on the endocrinologist to get the Hypoparathyroidism and Parathyroid absorption under control (took 6mo before I was cleared to have surgery) I was perscribed this paste.. humm lemme go find it, think I still have the tube... Here! Ha ha, cant believe still have it. Called "Prevident 5000 Pls Cre Colg." It was supposed to help slow down the crumbling but it didnt work very well because my medical problems clashing with one another turned out to be the cause. In any case it might help to buy you a little time or slow down the damage.

     I hope you are able to get everything done. Dental pain, on top of everything else, just isnt fair. Its terribly draining to boot. Try to rest as much as you can. Of course you are in our prayers here


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator

White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3702
   Posted 8/18/2010 11:53 PM (GMT -6)   
Well I can empathize with you on the teeth I have two that need root canals done and crowns and one that broke in two and they put a temporary filling in it last February I was suppose to get them fixed in a couple of weeks and then I just have let them go, they start really bothering me in May and I desided just to get them pulled because the two that need root canals are so fragile that the doc said after the root canals they might not be able to put crowns on them and just have to pull them anyway. But the doc did not want to pull them so he gave me antibiotics to get rid of the infection which was causing the pain and he said it would buy me some time to think about it more. Ha it is the middle of August and I am still thinking! It is so expensive, they want 900 dollars for each root canal and now they have raise the price of the crowns to 950 dollars apiece, and that is for the cheapest crown. Heck it only cost 500 hundred to have them pulled! and they are top second to the back teeth. I do not envy you golitho. and yes those meds you are on are very hard on the tissues of the mouth, and teeth. Even with extremely careful and diligent mouth care they can still go to pot on you!  I am sorry that you are having all these problems. 
You know golitho I was told my a surgeon a month or so ago that I got stuck with some very bad genes, and that I had the spine of an eighty five year old man, with all the arthritis and every thing in it, and it would do nothing but get worse as time goes by! Well two week ago I had another epidural done at C-3, that is three of them in the last few months, and my pain doc wants to send me back to the surgeon again for another diskectomy and fusion. You know I had seen a Rheumatologist a few years back and I had a positive ANA but lupus and some other tests turned up negative, Now I am begining to wonder about it again, because  since that time my little finger on my right hand  has gotten all deformed at the joints the knuckles are swollen up big and it is the bone and is very hard,and painful and I can't even bend it anymore!!. The other fingers on that hand seem to be following suit, I can not straighten any of the fingers out flat on that hand and they are all getting knoby and gnarled! Now they tell me my right hip joint is bad, I had an MRI of it and an Arthrogram, and they tell me it is bad. I got a steroid injection into the joint of the hip yesterday, and according to the doc, the joint is really deteriorating rapidly from the arthritis and there is a cyst in the cartilage, and edema in the bone marrow The radiologist says it is suspicious for anterior femoral acetabular impingement if the cam type, which when left untreated can cause severe arthrites and rapidly destroy the joint. All I know is I have a heck of a time driving for any length of time and laying on my sides the pain is a killer.  Anyway I  know I am getting old but not that old yet!   
I really do feel for you golitho, I think maybe I am starting to be able to really understand and empathize with what you have been having to endure, but just a little. Because you have been having a really tough time of it for a long time, and they have had to get out some pretty  big guns so to speak to fight it off! That methotrexate is pretty heavy duty stuff, and it is really nasty stuff! I have seen it from the other side,  I have not taken it but I have giving allot of it when I worked on Onco!!   Now the question I have for you, Is it helping you? That is definitely the important thing! Anyway I am glad to see you posting again! and am glad you are coming out of your "funk"  Enjoy your parent visit!
I do wish you well golitho, and hope that things gets better for you, and take care of that shoulder!
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Post Edited (White Beard) : 8/18/2010 11:05:10 PM (GMT-6)

Veteran Member

Date Joined May 2010
Total Posts : 594
   Posted 8/19/2010 3:16 PM (GMT -6)   
Dear Golitho,

I am so sorry to hear that you are going through all this! You are such an amazing person and have been there for me through a lot! I appreciate the time you took to talk to me about my RA concerns! I am still in a steroid holding pattern for now! Anyway, just know that I am thinking about you and sending good wishes your way! Also know that you are appreciated! Enjoy your visit with your parents!

Take care of you!
Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus and Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

Veteran Member

Date Joined Sep 2008
Total Posts : 1670
   Posted 8/19/2010 8:47 PM (GMT -6)   
Well thankyou for your replies, as ever they are very informative. Dani, I will ask the dentist about that paste, to see if it can toughen up the teeth or not. I see her again next Thursday. I get $4000 coverage for the next 2 years, so I can't see it going far either. I was quoted $1500 for root canal, but haven't had the quote for the crown. This is for the worst tooth which has broken down to the bone and exposed the nerve. She has managed to put in some antibiotic gel into the nerve and fill it with a temporary filling. I've finished the oral antibiotics and amazingly my tooth and gum have stopped hurting, it took about 2 weeks. It will be interesting to hear what she says anyway. She is dealing with my other 2 teeth next week!
White Beard, that hip sounds horrendous. Are they saying its osteoarthritis? Bone on bone destruction? I have a bit of a mixture of RA and osteo, they reckon my lower back is osteo inflammation. But it sounds as if your hip will need to be replaced very soon. I am ANA positive too but also don't have lupus, I think its fairly common when you have AI issues to have a few funny blood readings.
My hands are not too bad now I'm back on the super meds (abadacept) the swelling has really gone down, losing my sausage fingers. Still get a little pain but not intolerable. Your hands sound really bad. You should get yourself retested because the treatment of osteo vs rheumatoid is so different and joint destruction can happen so fast with RA if left untreated. Its the swelling that does the damage with us, it eats into the bone making a kind of soup in the synovial fluid of bone fragments and thickened panus. Sounds disgusting doesn't it. But my joints are settling again now on this new med. Apart from my shoulder, my feet and my right knee, I'm pretty good right now. So to answer your question about methotrexate, it really helps me, but its not enough on its own, unfortunately, to hold the disease's progression.
Thanks Dani and WB for sharing your stories with me though, it really helps to know you're not alone doesn't it?
Hi Beckey, I'm glad the prednisone is holding you steady, when do you see the rheumy again? Thanks for your lovely comments, nice to know I've been some help to you too.
Thanks again guys, golitho
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