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Regular Member

Date Joined Jul 2010
Total Posts : 200
   Posted 8/21/2010 8:07 AM (GMT -6)   
Hi All,

I am Jess's sister, I told her i would update you all while she can't. She said to tell you all, that, she hopes you are having a good week and hopefully have some relief and are well, and those of you that aren't you are in her thoughts always.

anyways, this is whats going on.

Jess had to go into hospital a week ago because her body went into shock, it started with her pain increasing (abdominal) and made her have many bad SVT attacks causing fainting spells. She started vomiting and couldn't keep anything down her body just rejected everything. She eventually stopped being able to get anything past her throat and became so dehydrated from it she became unconcious, we got her to hospital with her drifting in and out they put a drip in and admitted her to the hospital. After she was more with it, the doctors and nurses pressured her to just drink, telling her she was putting it on and everything! This upset her so much as Mum and I could both see how much pain she was in and physically couldn't swallow. She put up with two days of being told to get over it, still trying and just soldiering through like always. They tried to put a nasa gastric tube down, but it wouldn't go. They did Xrays and realised that her throat was almost completely blocked with swelling for extreme scar tissue from oesophagitis, and it would be impossible to swallow, yet the doctors still didn't apologise. They did lots of tests and she's closely monitored to make sure it doesn't interfere with her breathing until they can remove it. She has internal bleeding that has been caused by whatever is putting her in so much pain which they still aren't exactly sure of but are thinking it may be a very very rare disease that they have only ever seen a few times, I cannot remember the name but i am sure she will tell you when shes back! It has infected her liver and is making her heart do some strange things. But no need to worry, this girl is a fighter, Through all this and even more i haven't said thats been going on, I haven't seen her cry once or tell me she's scared or sick of this. I tell her i am scared for her and I want her to be okay and i just cry for a long time some days, she will just pull me closer and hold me, telling me she is going to be fine, and everything happens for a reason, she tells me thats its going to make her so much stronger so to see it as a positive. It brings tears to my eyes to see a girl this young going through this, but it brings more tears, the ones that say i'm proud. To see her so incredibly strong.
I have learnt such a lesson from my little sister, normally it would be the other way round, But over the years she has been through so much but always has learnt to put on a brave face and smile, if someone is down, her problems get left behind and theirs are in her arms and heart. This girl is amazing and i am praying for her everyday so please, join me. She has lost 12 kilos in 10 days and she can't afford to lose it. But with her strength i know it will be up hill from here.

Once she reads what i have posted i'l get a big spanking when shes strong enough! :) But i couldn't help myself. Shes incredible and i could never live without her. At our school she has inspired basically everyone, including teachers etc. Because of her strength and amazing personality and loving heart, she luckily has so many people behind her and encouraging her to keep going through this, EVERYONE that knows whats going on is there for her at school and its just amazing to see, but i can understand why. I adore my sister so much please pray for her <3

Jess, when you see this, i'm sorry but i just needed to tell people how much i love you instead of just telling you. your incredible.
Hope you are all doing goodd.

Thanks all,

Veteran Member

Date Joined May 2010
Total Posts : 594
   Posted 8/21/2010 8:31 AM (GMT -6)   
Dear Rebecca,

Oh sweetheart it is very obvious how much you love and admire your sister and you seem to be an amazing sister also! We have all come to love and admire your sister in the short time we have known her! I am so sorry to hear that she is struggling and suffering so much! Please let her know that we are all praying for her here and for you also! Hopefully, her getting this sick will be a blessing in disguise and they will finally take a serious look and find out what is wrong with her! She is strong and I know she will keep on fighting! I will keep you both and your family in my thoughts and prayers! Take care hun!

Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus and Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 8/21/2010 8:34 AM (GMT -6)   


      Rebecca! Thank You so much for the update!

     We will continue to pray for your sister and your family as well. As I read her post the other day, it made my blood boil, in how she was being treated at the Hospital. Lets hope they have learned a lesson from this.

    We can all see that you love your sister very much, and I'm sure she won't mind the update here to us all.

     Take care little one!....and again Thanks! You are very welcome to visit us anytime you feel like it.



"Respect your fellow human being, treat them fairly, disagree with them honestly, enjoy their friendship, explore your thoughts about one another candidly, work together for a common goal and help one another achieve it."

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 8/21/2010 10:03 AM (GMT -6)   


   Dear Rebecca,

     Thank you so much for letting us know how she is doing. We have all been wondering what has happened to her!

     I am so glad she was finally admitted to the hospital. How is her breathing doing? How soon will they removed the scarr tissue? I hope she is atleast somewhat stable right now. She is a fighter no doubt. I hope she is able to get everything done as quickly as possible.

    I cannot thank you enough for taking the time to tell us how she is doing. But, please, remember to take care of yourself as well. I can well imagine you are tired and worried to no end. Who could blame you? Please know your family is in our hreats and prayers here. Stay strong!


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood
Chronic Pain Moderator

Regular Member

Date Joined Jul 2010
Total Posts : 416
   Posted 8/21/2010 1:39 PM (GMT -6)   
Thank you so much for giving us an update. I had hoped that she would be able to get in somewhere to be seen. I know we have all been so worried about her. It is wonderfull that she has you as a sister that is so sweet and considerate to let us know how she is. Please give her a hug from all of us and tell her we are hear for her when she gets out and has the strength to return. Heather
Big Hugs, Mama6

DX. with Fibromyalgia, Narcolepsy, Poss. RA or Psoratic Arthritis, Herniated disc 3x in last 7 months
Meds: Nuvigl, Cymbalta, Tramadol

Mother to 5 wonderfull kids. Oldest is 18 and just left the nest for animation school. Youngest just started 2nd grade. So I am crazy, and feeling my age plus some.

Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 8/21/2010 6:32 PM (GMT -6)   
Hi Rebecca,

Thank you so much for posting and letting us know how Jess is doing. I barely know her, but after exchanging just a few posts and emails, it was easy to see that she is a wonderful young lady & a real fighter. Your sister is very lucky to have you there to support her. You obviously love her very much and think the world of her. I think sometimes we forget, as patients, how much our pain effects those around us. In a way, it is just a hard (if not harder at times) on our loved ones, as it is on ourselves.

What your sister is going through sounds absolutely terrifying, but I'm glad that she is getting the help she needs. Hopefully the doctors will be able to get everything under control & figure out why all this is happening. Please let your sister know that we are all thinking of her and praying for her.


Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 8/22/2010 5:06 AM (GMT -6)   
Thank you so much for posting to us. Your sister has become part of our family here.

I so hope the hospital will begin to realize that they contributed to this pain by refusing to believe her. She did not deserve that. She deserved the best medical care there is and I am infurriated that she did not get the care she needed.

I will keep her (and you) in my prayers for a speedy and full recovery.
Retired Mom
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