Good luck with the new dose hopegirl. I hope they work for ya. I had my first experience with a PM doc this week and I really liked him. He seems like he is open to really trying things to see what works best. I hope the new PM doc your rhemy is talking about is much better then your last one.
I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck