I finally have answers!!

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Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 9/1/2010 8:54 PM (GMT -6)   
Hello all,
This has been a rather amazing week so far where diagnoses are concerned.  I've been looking for answers so long that I thought there were none to be found.
First, I found an new gyno and after several years of being told it was all in my head and was told that I have an extensive confirmed problem with extreme yeast sensivity that they have agreed to treat very agressively.  It's been going on for years and I have had every test I could think of, but all the female gyno's I have seen made it look like I was just exagerating and it was nothing.  They could not have been more wrong!!!  Yeahhh....answer number one!
Second, the same new gyno tells me that I have a very serious problem with my bladder dropping into a cavity where it should not and of course leaking terribly (which has been a serious problem for me for several years now).....he also tells me he is the first surgeon to bring a dramatically different procedure to the area and has therefore done literally thousands of bladder tacks with great success.  The procedure lasts approximatly 7 minutes (under general anestesia) and is covered completely by insurance as an out-patient.  I've needed this surgery for so long, but I didn't want to have a very invasive surgery with a long healing time.  So my "final" test is next week to determine exactly which one of his two procedures will have the best success rate.  One requires two small incisions in the creases of the legs and the rest internal.  The other requires a slightly larger incision in the area above the pelvic bone and the rest internal.  The hospital eval is the day after the test and surgery is already scheduled for the following week.  Answer number two given.....yeahhh!
Last, and certainly not least, I did go take the CT this AM (without contrast and no myleogram) and I saw the Ortho this afternoon.  This WAS exactly what we needed to see why I hurt so badly.  It was SO clear on the CT that I could see it with the naked eye.  Apparently what the radiologist was interpreting as a bulging disc at l5-s1 was actually bone bulging.  The morselized bone and growth gel did grow, however, they did NOT grow as they should have and now I have S1, then a small open section, then a bone that grew out of place, then another small open section, then L5.  So instead of a solid fusion, I have three bones now with two small open spaces between them and a bone bulge out to the side.  The rods and screws are still in place and keep the entire area from collapsing.
There was no question in his mind that this is the cause of my pain in my back and that all the other smaller bulges were minimal in comparision.
He suggested I "try" to hold out as long as I can tollerate the pain (using pain management....to whom he will be sending a copy of his report) and pray that more bone grows within the next year to bond the fusion together.  Otherwise, we will likely have to go in and fix the problem.  We cannot go in through the back again because of all of the hardware and would have to go in through the "front" (as he put it), which will be a very different surgery indeed.  No additional suggestion of the SCS was even discussed.  Answer number three !  He basically said that he could not criticize another Dr, but would have never done this particular surgery this way.  He also said that he could not call it a failure, but that it was definitely not a success...and then he showed me the CT films.  Boy were they clear.  You could see exactly what he was talking about.  We don't have follow-ups because there is no need until I decide I cannot live with the pain in my back any longer.
I realize none of these things are good, but they are answers I did not have before.  It felt really good to have answers!  I hope the reumy finds her answers soon too and that PM will agree with what the ortho had to say.  It would be so nice to have everything under control and working toward a common goal for a while.
All my best to all of you!!!
Thanks for everything guys!
Retired Mom

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 9/1/2010 9:20 PM (GMT -6)   
Retiredmom! I'm so happy for you that you have found some answers to your health problems! Wahooooooo! smilewinkgrin

I'm truly am happy...very happy about this!

Lets hope that the fusion will take like it is supposed to, and then maybe they can adjust things a little later with surgery.

Thank you so much for posting this tonight...as it has been a bummer day for me...with a 16yr old Step-Daughter that is out of control sad

I needed this good news from one of our members!

SE wink

Veteran Member

Date Joined Apr 2008
Total Posts : 1522
   Posted 9/1/2010 10:00 PM (GMT -6)   
It is always nice to get answers, especially ones that you trust and feel are correct. At least now you know what you are dealing with. Good luck with the bladder surgery.

Monty's Mom
Veteran Member

Date Joined Aug 2010
Total Posts : 664
   Posted 9/1/2010 10:12 PM (GMT -6)   
I can feel the relief in your post, and I am so happy that you have the answers you needed!  I am exhausted today, so will post more tomorrow! In the mean time, I am doing a little sitting happy dance for you!
Big happy hugs!
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw

Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, adhesions, and a kidney stone! Wait, future medial transcriptionist I must say ureteral calculus!

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 9/2/2010 4:47 AM (GMT -6)   
Thank you guys. It really does feel like validation and relief already. I'm going to keep my fingers crossed (figuratively, of course....since my hands don't work too good) that the reumy will find my hand problem and then we can be on the road to recovery. It did take a LONG time, but I'm really happy to know that last series of appointments pulled it all together.

You guys are like family, so I had to come tell you about the results. My own family is sort of in shock about everything, but they are strangely relieved too. Answers.....thank God!
Retired Mom

Regular Member

Date Joined Dec 2007
Total Posts : 104
   Posted 9/2/2010 4:59 AM (GMT -6)   
That is truly amazing! It's like a miracle! You have answers and knowledge now, and just those two things are powerful truths in the search for a cure to chronic pain! Keep the faith and stay positive like you are and relief will come soon!!!

Veteran Member

Date Joined Apr 2009
Total Posts : 856
   Posted 9/2/2010 5:13 AM (GMT -6)   
What a relief! I am so happy that you have answers. It can be devastating to have pain and to be told that it's all in your head. Those words should be removed from doctor's vocabulary. I'm thrilled that you have answers! That's wonderful.

Regular Member

Date Joined Jan 2010
Total Posts : 197
   Posted 9/2/2010 1:27 PM (GMT -6)   
So glad that you were able to get some answers! That is wonderful! So glad that you found some competent doctors to take you seriously.
Fibromyalgia, High BP, Migraines, anxiety, Non Celiac Gluten Intolerant
Current medications: Topamax, Maxalt, Lotrel, Wellbutrin

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 9/2/2010 2:21 PM (GMT -6)   
So glad you finally got some answers and sure hope the bladder surgery goes good
keep us posted on that...finger's crossed for you....
((((((((((((((((((((((((((((((Retired Mom))))))))))))))))))))))))))))))))))))))))))))
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

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