Hi everyone, I sure hope you all are doing well this weekend! I'm hanging in there although very frustrated right now. I have alot of weird things going on with me (don't we all...lol) anyway, as I have posted before I have alot of increased pain everywhere, lumps and bumps and swollen veins, strange rashes, absolutely no energy and now pretty much all of my lymph nodes are swollen (neck, above collarbone, under my arms and the groin area). My blood work has been kind of strange for the past 4 months, High SED rate between 40 and 70, high WBC between 13,500 and 11,600 and now 20% atypical lymphs.
I know alot of this points to an infection, but I am showing no signs of one, no fever or sore throat etc. and you would think after 4 months if it was an infection I would have some other signs. My thyroid is being wacky, and they are still thinking Graves but after my scan they think it's not that bad yet. I will be seeing an endocronologist soon for that. I will also be seeing a surgeon on Wed. to schedule a biopsy of my lymph nodes and a possible bone marrow biopsy to rule out lymphoma and luekemia. The only other symptom I have of these besides the swollen lymph nodes is the rash and my skin itches like crazy all the time. So, I am a little scared that it might be one of these cancers.
The one general concenus (sp?) between all the doctors and specialists that I have seen (which includes a rheumy, a neurologist and a dermatologist) is that I have some sort of auto-immune disease going on, probably more than one and most likely a connective tissue disease. All I keep hearing is "Yep, you got something auto-immune going on" My blood work is not cooperating as far as my RA factor comes out negative as well as my ANA. But my SED rate and the other test for inflamation (CRP maybe?) keep coming out high.
So my question is, to all of you that have an auto-immune disease, how long did it take you to get a diagnosis? Any suggestions on what tests I could have my doctor do? If the biopsies come out normal, my doc is at a loss as to where to go next. I am thinking another rheumatologist as the one I saw only checked for RA. I am sorry this turned out to be such a long rant, but I am just so sick of feeling so lousy, and hurting and having all these wierd things on my skin that I just want some answers. Any input would be much appreciated. Thank you in advance and take care.
Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety
Oxycontin, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3