New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

faithalltheway
New Member


Date Joined Sep 2010
Total Posts : 8
   Posted 9/16/2010 9:19 AM (GMT -6)   
eyes   I wander how many more years will I have to almost daily  migraines and neck pain... Anyone else out there with the same ??

Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2317
   Posted 9/16/2010 12:26 PM (GMT -6)   
Faith,
I don't think I've welcomed you before, so welcome to HW. Sorry about the daily migraines. I used to get them all the time too.

I'm sure others will probably come along, but you might also want to check out the Migraine forum. (Click on the Forums & Chat tab above & scroll down to the Migraine forum). There are some really great people there who have been struggling with migraines for a long time & can share their experiences about what they've tried, what worked, what didn't work, etc.

feel better,
frances

caligirl2001
Regular Member


Date Joined Jan 2010
Total Posts : 197
   Posted 9/17/2010 1:00 AM (GMT -6)   
Hi Faith, Sorry you deal with this issue too. I am currently on topiramate (Topamax) for my daily migraines. Migraines are their own special hell. Right now, the topamax is my miracle pill, and I use maxalt for the ones that sneak through. I may still have all my other chronic pain, but at least one of the plagues is under control. I hope you find something to help you with your pain. Like any chronic pain, there is no really accurate way to describe migraines to someone who has not experienced them. The migraine forum here is not terribly active, but there is definitely some good information on there. Best wishes to you!

Post Edited (caligirl2001) : 9/17/2010 12:41:29 PM (GMT-6)


Blessedx8
Veteran Member


Date Joined Aug 2008
Total Posts : 3193
   Posted 9/17/2010 3:25 AM (GMT -6)   
Hi Faith,

Sorry you are suffering so much w/ migraines and neck pain. I, too, used to suffer w/ this for many, many years - on a daily basis. Over the years, I've used medication, nerve blocks, trigger point injections, massage therapy and so forth to deal w/ this. I no longer get them daily... but I still deal w/ several headaches a week and a few migraines per month.

What have your tried already? Do you see a pain management doctor?

--Tina
Main Health Issues: Dysautonomia/POTS; CFS/Fibro; Chronic Pain (back issues, migraines, carpal tunnel, among other things); Chronic Hypertension; Hypothyroidism and Hypoadrenalism; Mixed Sleep Apnea (on BiPap); Depression/Anxiety; Vitamin D Deficiency.

MAJOR surprise - Pregnant, w/ twin little girls (after six boys). Due Sept, 2010. Praying they are healthy. YES, you can have chronic pain AND have a successful pregnancy - not easy, but it can be done. :)

faithalltheway
New Member


Date Joined Sep 2010
Total Posts : 8
   Posted 9/17/2010 11:48 AM (GMT -6)   
wink  It is so nice to hear from you all .. I don't have good family support .. Some of my family don't believe me because nothing can be found. They think if I go back to work I will feel better .. I am in pain daily w/almost daily migraines . But the pain is always in my neck . I also have muscle spasms in the neck . I have been going to pain management for 8 years with all the painful shots in the neck and head they can think of giving me ..  I am on many meds .. I have seen all the specialist . NO-ONE can find a thing wrong . I even seen a chiropractor for a year ( No Help ) . I have had 2 years of therapy .- NO Help  !  Any one like me out there ? I pray daily for stregnth ... God has helped me to be strong  .. But I still get very sad when I am feeling my very worst.. cry . I have been like this now for 8 years . I used to have a job  and work out all the time . I was a healthy woman . Now I am no longer that person.... I have had all the test done the doctors can think of everything turned out normal . And Thank you for all who has wrote me on here , Iam new at this !   
 

faithalltheway
New Member


Date Joined Sep 2010
Total Posts : 8
   Posted 9/17/2010 11:59 AM (GMT -6)   
I have also tried all the preventive meds to stop the migraines with NO help . Like topomax ext.. 

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/17/2010 12:02 PM (GMT -6)   
 
   Hello Faith!
 
       We do have a member here with horrible headache pain....hopefully she will come along and visit with you.
Also as others have suggested, the migraine forum would be a good place to check as well....and I see that you have already been over there.
      We are so sorry to hear that you are suffering like this. We have an excellant support group here, so visit often as you need to.
 
          I will contact the member I was talking about above, and see if she will post a reply to you.
She has been so sick latley with her pain, and does not post when she is this way.
 
          Take care, and welcome to the CP forum.
 
         SE wink

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 9/17/2010 12:02 PM (GMT -6)   
Dear Faith,

I'm so sorry that you're in so much pain from the migraines and your neck! I relate very well, unfortunately! I used to have severe migraines for many years but they have diminished significantly since I changed my diet and eliminated gluten (I was diagnosed with celiac disease in 2008). I've recently been diagnosed as "pre-diabetic" so am now trying to be entirely grain free and very low carb....basically following the Paleo Diet. Well, I haven't been able to abandon dairy foods yet, so I suppose I'm really Paleo + dairy.

My chronic neck and back pain did NOT improve with the change in diet, no big surprise there, but getting rid of the migraines was such a relief! Now if I'm accidentally "glutened" the first symptom is a massive migraine! Followed by the horrible gastric symptoms, etc.

I was pleasantly surprised that just changing the way I ate made such a difference with those headaches. Not saying that this would necessarily help you, but just throwing out ideas.....?

You're in my thoughts and prayers....
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Mepron, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

autoimmunediseasesgfliving.blogspot.com

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16272
   Posted 9/17/2010 4:24 PM (GMT -6)   
Hello Faith and welcome to Healing Well's chronic pain forum. I do not believe that I have met you before so welcome aboard. I am so sorry that you are plagued with migraines and all of the other issues that comes with them. I suffered with migraines and severe neck pain horribly when I worked. I worked in a very high stress job and stress was a huge trigger for me. I have no idea how many times I was hospitalized for treatment to get rid of the thing. My neurologist used a drug that could only be given by IV and if it was a true migraine when you woke up it was gone. For me it was a wonder drug and I cannot remember what it was. Between the migraines and disc herniations at C5-6 and C6-7 it was really rough going. When I became disabled and had to stop working the migraines slowed down a lot. I still get one from time to time but nothing like that. I have had occipital nerve blocks done and many other things along the way. I am allergic to an ingredient in all of the migraine meds on the market and go to my PCP who will either give me a shot of Nubain or Stadol to knock me out to get rid of it. Unfortunately both of my children have inherited the migraines from me, my son was 8 yrs old when his started and he did not outgrow them as we had hoped. He still battles them and so does my daughter.

By chance have you ever been tried on Methadone for the migraines? I do know a couple of people that have been successful with Methadone in keeping them pretty much under control. I know you said you had tried the usual meds with no luck.

Anyway welcome aboard and keep us posted on how you are coming along.

Susie

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 9/17/2010 8:12 PM (GMT -6)   
just a thought, many people get good results from Gabitril "tiagabine". i think it's a matenience med. good luck
L4,L5,S1 bilateral Laminectomies, Foraminotomies 2002
L4-S1 PLIF with instumentation 2008,

current Rx: OxyContin 60mg 2x, Dilaudid 8mgs [brand] 4x p.r.n. brk., Phenergan 25mg 3x prn nausea, Lyrica 75mg 2x,Adderall 20mgs 1x A.M., Soma 350 mg 3X, Relafen 1000mg 1x, Klonopin 1mg H.S. or prn anxiety Supplements: CO-Q10 100mg, Vitamin D 2000IU, Fish-Oil1000mg EFA, B-Complex50 3x/day, GABA 750mg

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 9/18/2010 10:27 AM (GMT -6)   
Hello Faith. Welcome to our wonderful family. So sorry you are suffering terribly with headaches. I am right in your shoes. It has been ten years since my headaches started. Like you I have done it all. The list is quite long and nothing has helped me. My headaches are in the temple area and have been continous and severe for three years now. No meds help me. I am a nurse and have been on disability for two years. Right now it is not looking like I will be going back. I wish I could help you but it seems that you and I are in the same boat where nothing will help us. What my pain doctor is trying right now is a combination of Gabapentin and Mexiletine. Only time will tell if this helps my pain. If you have any questions I will try to help you. Keep praying hon, that is what is keeping me going too!!

Hugs
SUZANE

One day at a time!!

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 9/19/2010 11:33 AM (GMT -6)   
Faith, how are you doing hon? I know how tough it is to have a headache everyday. My keep me in my bed most of the day and I keep ice packs on my head. Just know that I am here for you anytime, OK.
Where do you live? How old are you? I'd love to know more about you.
I live in Ottawa, Ont. Canada. I am 52 yrs old, have a wonderful, supportive husband. Two boys 19 and 21. I am a paediatric nurse, a very proud nurse, and I miss my job soooooooooo much. I have been on disability for two years. Don't know if I will ever be able to go back.

Hope you are able to come and post to let us know how you are doing. We certainly understand if you are not able to as I too have been posting very little this last while. My head just won't allow me to.

Big hugs coming your way.
SUZANE

One day at a time!!

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 3089
   Posted 9/19/2010 6:50 PM (GMT -6)   
Hi Faith,

I don't have migraines, but I do have chronic facial pain & am thus familiar with a lot of the treatments for migraine (as my neurologist has tried me on many of them). I don't know where you live or what you have tried, but my neurologist has mentioned admitting me to the Michigan Headache & Neurological Institute more than once. Apparently they are supposed to be a very good in-patient hospital for diagnosing and treating headache disorders. Here is their website www.mhni.com/.

Have you ever tried osteopathic manipulation? An osteopath is kinda like a cross between an MD & a chiropractor. They have the knowledge and ability of an MD, yet they also do manipulations like chiropractors. However, osteopathic manipulations are much more gentle than chiropractic manipulations & in my opinion, osteopaths know much more about your anatomy, etc. You may also have heard of crainal-sacral manipulation, it's essentially the same thing as osteopathic manipulation. I wonder if something like this might be worth trying.

You might also look into nerve stimulation. There are several of us here on HW that have neurostimulators. Most commonly they are referred to as spinal cord stimulators (SCS, for back pain), but the same device can also be used on peripheral nerves for things like limb and head pain (these are referred to as peripheral nerve stimulators, PNS). I have recently had a PNS system installed on the supraorbital & infraorbital branches of my trigeminal nerve, for chronic eye pain. It's made a huge difference in my pain, where nothing else has. I'm certainly no expert, but I do know that they are also used to treat some kinds of head pain (occipital migraines, for example). This might be something the look into/talk to your doctor about. I was referred by my neurologist to a neurosurgeon for my device.

It's really tough when nothing helps & your family is not supportive. It is so hard for other people, who are not in chronic pain, to understand what we go through & all they ways that it affects us. Please know that we at HW are here for you. We may all have different pains, but if there is one thing that we all understand, it is pain itself, and the ways in which it affects our lives. So any time you need to vent, or just need someone to listen to you, we are here.

Hope you find some of this helpful.

hugs,
Skeye
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, June 17, 2018 3:55 PM (GMT -6)
There are a total of 2,972,576 posts in 325,996 threads.
View Active Threads


Who's Online
This forum has 160829 registered members. Please welcome our newest member, WinstonluvsWilson.
378 Guest(s), 10 Registered Member(s) are currently online.  Details
Kent M., PDL17, masonbor, compiler, canuck30, opugirl, jym62, John T, Aaronh819, deltaforce