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southviewgirl
Regular Member


Date Joined Sep 2010
Total Posts : 64
   Posted 9/17/2010 11:06 AM (GMT -6)   
I am 30, have 2 kids, a boy and a girl 8 and 10, and I homeschool. I've been married for 10 years to a wonderful man.

I was diagnosed with Scoliosis at age 7, had my first spinal fusion at age 10. Another fusion at age 12, and then contracted a staph infection and had two more subsequent surgeries to remove the infection. In 2006 I had a fusion in my low lumbar spine due to pain, and then had to have that fusion redone do to non union. In 2008 I had my right SI joint fused, then my left done. I had hardware removed from my lumbar spine because it was on a nerve, that surgery was done July 14th of 2010.

I have endometriosis, diagnosed months after my son was born. I have had 9 pelvic surgeries including a full hysterectomy at age 23.
I have Degenerative Disc Disease, Endometriosis, Loss of Lordosis, Flat Back Syndrome, Kerataconus, Scoliosis, Osteoarthritis.

I have had a total of 20 surgeries.

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 9/17/2010 12:56 PM (GMT -6)   
Hi Southview Girl and welcome to the forums. I'm sorry it's pain that brought you here, but it's a great group, full of knowledge and support.

It sounds like you've been dealing with health issues most of your life...all those surgeries take such a toll on the body. Are you currently on any medication, or are you able to manage your pain in other ways. I'll bet your kids are a big help to you, but it must be very difficult to raise active kids when you have so much going on (my Fibro wasn't anywhere near as bad when my kids were that age, compared to the pain I have now).

I hope you find this a great community of support and encouragement. It's nice to have you here.

Hugs,
Pam
DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Physically Unable to Vomit due to Nissen Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vitamin D + Multi daily

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16284
   Posted 9/17/2010 1:23 PM (GMT -6)   
Hello Southview Girl and welcome to Healing Well's chronic pain forum. I am very glad that you have found the forum and I hope that you will find it a place to come and visit and find friendship. We have a pretty mixed bag here of people with all sorts of different medical issues but one thing we all have in common is chronic pain. We do share alot of info with each other and its amazing what we can learn from others as well.It can be comforting to know that a person is not alone when dealing with something like CP. It can isolate us in so many ways and by coming here it lets us know we are not alone.

Wow, I just cannot imagine the surgeries you have gone through at such a young age. I know how resilent children can be in healing and what not but I am afraid what you have been through is more than I can wrap my brain around at the moment. I guess I am just shocked because back surgeries seem to be for the older generation its not something I can imagine for such a tender young age. Pain has obviously been a life long companion to you I am sure. I do hope that your condition has stabilized for the most part and hopefully surgery is not something in in your future.

Again, welcome aboard and keep posting to let us know how you are doing.

Susie

nasalady
Veteran Member


Date Joined Sep 2009
Total Posts : 1176
   Posted 9/17/2010 1:51 PM (GMT -6)   
Dear Southviewgirl,

Welcome! ((((((((((hugs)))))))))))

This is a wonderful supportive group of people; I'm so sorry about the reasons that brought you here, but it's great that you found this forum!!

Wow, you have really been through a lot for someone so young....my heart goes out to you! And yet you homeschool your kids; that's a huge job! Kudos to you!!

I want to homeschool my little ones (4 and 5) but my husband thinks it's too much for me and wants to send them to school. We shall see!

Take care and please keep us posted....we're glad to have you here!
JoAnn
Lyme Disease, Babesiosis, Ehrlichiosis, Bartonella, AIH, Hashimoto's, lupus, fibro, RA, celiac, asthma, psoriasis, adrenal fatigue, pre-diabetic, Raynaud's, hypertension, osteopenia, sleep apnea, RLS, GERD, DDD, severe lower back pain, cubital tunnel, tarsal tunnel, Suprax, Mepron, Alinia, Zithromax, Prednisone, Imuran, Plaquenil, Lyrica, Cymbalta, Levothyroxine, Liothyronine, Atenolol, Cozaar, Zyrtec, Fosamax, Albuterol, Prilosec

autoimmunediseasesgfliving.blogspot.com

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 9/17/2010 4:23 PM (GMT -6)   
welcome, you must have a incredible pain tolerance.
L4,L5,S1 bilateral Laminectomies, Foraminotomies 2002
L4-S1 PLIF with instumentation 2008,

current Rx: OxyContin 60mg 2x, Dilaudid 8mgs [brand] 4x p.r.n. brk., Phenergan 25mg 3x prn nausea, Lyrica 75mg 2x,Adderall 20mgs 1x A.M., Soma 350 mg 3X, Relafen 1000mg 1x, Klonopin 1mg H.S. or prn anxiety Supplements: CO-Q10 100mg, Vitamin D 2000IU, Fish-Oil1000mg EFA, B-Complex50 3x/day, GABA 750mg

southviewgirl
Regular Member


Date Joined Sep 2010
Total Posts : 64
   Posted 9/17/2010 8:35 PM (GMT -6)   
Thank you sooo much for the warm welcomes. I was actually on another site, but I didn't feel a great connection with the group. Some people on there were pretty critical and blunt, not something I care for.

Anyway, I LOVE homeschooling our kids. We have so much time for field trips and science experiments outside. And plenty of time for meeting and playing with other homeschooling families.

I am currently taking vicodin 10/660, ms contin, effexor and valium. I am clinically disabled, and I use a crutch or wheelchair to walk any farther than around my house.

i actually will be having more surgeries in the future. The only part of my back not fused is the cervical, and I'm having problems with that, so I need to have that taken care of. I also have some other issues, I'll need a corneal transplant for kerataconus, and some minor things that need to be taken care of.

I also am going in soon to a rheumatologist to be tested for fibromyalgia and lupus. Oh man, never thought I'd be here.
When I had my surgeries as a kid, I thought it was a thing of the past, I never thought it was going to follow me into adulthood and the rest of my life. I went to highschool with a girl that had fusions too, and she hasn't had any problems since. Oh to be her.

Thanks again you all, I look forward to getting to know you all.

Southviewgirl
We must be the change we wish to see in the world.
Mahatma Gandhi

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3694
   Posted 9/17/2010 9:59 PM (GMT -6)   
southviewgirl
 
I also want to welcome you to our forum,  I think, and I do hope, that you will find we have a really great group of people here on this CP forum. Of course we can not cure you, but we can lend you a very warm, and compassionate, and caring, ear, and listen to you, and give you what advice that we may have, but mostly certainly  give you all our support, and to let you know, that you are not alone, living with this nasty beast called "Chronic Pain"!!!!. 
 
 I must say you have my utmost respect, with all that you have been through, and continue to go through, and yet still have children, and then to top it off, to home school them no less!  I congratulate You!!!   My Youngest daughter is you age in fact she and her daughter ( who will be three in November)  came and spent the day with me today, the first I have seen them in many many many months, ( they live close to five hundred miles away)! Anyway she is a nurse up at Mayo Clinic and her husband also works there!  But  she seems to have her hands full with just the one child, and she has no medical problems!!!. Here your her same age you have two kids, and so many surgeries, and spinal surgeries at that!  Well...... I am impressed!!
 
southviewgirl  I am sad that you have reason to come to our forum, but I am happy that you have found us!  I do hope that you stick around and post and join our family here.  I think of this forum, and all the folks that make it up, as my family, as do allot of the folks here, because there is always someone here for you, when you need it. Just like family!!! And since they also have chronic pain, they can not only sympathize with you, but even better, they can empathize with you!  That makes a Huge difference!!!
 
So again I say Welcome to You southviewgirl!  and I do wish you all the BEST!!!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Post Edited (White Beard) : 9/17/2010 10:07:43 PM (GMT-6)


Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 9/18/2010 9:18 AM (GMT -6)   

 

 

Dear South,

     Good morning. My name is Dani. It is so nice to meet you. I am glad you came to find Healing Well. As you can see we have a great group of members. It is a wonderful place for knowledge, support and friendship.

     I am so sorry that you are faced with so many obstacles I know how hard spinal deformities can be to the body. I have multiple progressive curves. I have thoracolumbar levoscoliosis with developing lordosis for my primary. Thoracic dextroscoliosis on my secondary and a developing compensatory tilt in my cervical. Only mine started when I was 27. I am 30 now. Having progressive spinal deformities makes the most simple tasks, hard. I am so sorry after all you have been thorough, you are faced with even more challenges. When my doctors were trying to explain what was happening to me, they told me most times it develops in children. I felt terrible and could only imagine what it would do to a child. My heart goes out to you.

     We have a lupus and Fibromyalgia forums here as well. You might want to introduce your self there as well. Many members post in multiple forums. I think you will find that all of Healing Well is full of wonderful, caring people.

     It was so nice to meet you. I look forward to knowing you better as time goes by. Hang in there and stay strong!

*hugg*
  dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
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