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Redneck Princess
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 9/23/2010 11:51 PM (GMT -6)   
Hi everyone!
 
I found the HealingWell forum today by chance when I was internet searching for some more information about inflammatory arthritis and hip pain causes. I'm impressed at the knowledge that everyone seems to have about the topics they are discussing -- but I guess that is all too commonplace with people who have conditions that they have to proactively & actively manage as team members with their doctors and caregivers.
 
I've had Fibro for more years than I care to count! Originally diagnosed in 1987, had some years with relative remission and some years with full flares since then. I'm in full flare right now and am on short-term disability for that and some new symptoms that haven't had a cause pinpointed yet. My left hip and sacrum are presenting with new pain, and as usual, nothing is ever textbook about my symptoms or diagnosis. I'm hoping that we can figure out what's happening pretty soon.
 
I became interested in the Chronic Pain section because I just began seeing a PM doctor almost a year ago. The osteo of spine (fx L3 & L5 in 1995) and Degenerative Disc Disease (herniated L5 - S1 -- oops, need to add that to profile!) finally reared their ugly head enough that my Rheumy didn't want to prescribe any stronger meds. I've taken Tylenol 3 on and off since the fall in 1995, and the pain suddenly woke up and wasn't happy with the current meds! Go figure!
 
Anyway, hello to all. Thank you for sharing your stories; knowing that others "out there" are experiencing the same thing makes things more bearable.
 
I live in Stonewall, Louisiana and am an Accountant by trade. I manage the Accounts Payable department at a local manufacturer and have been there for almost 17 years. I really like what I do, although Sarbanes Oxley laws have made the profession much more tedious. I've been off work now for one day shy of a month. I'd much rather be at work, even with all the stress, micro-management, and rules to follow! I'm one of "those" people who HIDES everything and goes through life with no one ever being able to detect that I'm in pain or don't feel well.
 
I'll stop at that -- I like to write and have to remind myself that sometimes people don't like to read! I look forward to interacting here.
 
Thanks,
Rachel
 
 

Dx: Fibromyalgia, Inflammatory Polyarthritis, DDD, Tachycardia, Interstitial Cystitis, Raynaud's
Rx: Savella, Mirapex, Oxaprozin, Amitriptyline, Tizanidine, Orphenadrine, Atenolol, Enablex, Nitrofurantoin, Hydroxyzine, Percocet 10

Laughter is the BEST Medicine!

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3689
   Posted 9/24/2010 12:40 AM (GMT -6)   
Rachel
 
I am sorry about you having all that pain, but you know what? I think you have come to the absolute best site you could have ever come to!  I hope that makes sense! But if your having pain, when your here your never alone, you are with a new family, a family that understands what it is like to live your life in Chronic Pain! Of course we are not Doctors or anybody that can actually cure you! We are just normal folks trying to live a normal life while suffering with pain!  But even though we can not fix you or stop your pain, we can lend you our ears and listen to you and share in your frustrations and your pain and try at least to lighten your burden, and hopefully make it more bearable for you. Yes you are not alone when you come here! I personally think that this forum has some of the most compassionate and caring people that you will find anywhere on the internet!  I do hope that you will also find it that way! So keep posting and share with us what ever you are comfortable sharing. and join our family here on this CP forum at Healing Well!
 
Again I Welcome YOU, and I do wish you all the Best!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Redneck Princess
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 9/24/2010 1:00 AM (GMT -6)   
Thank you for the warm welcome!
 
My mantra is that I'm used to dealing with pain; after all, I've had it most of my life. There are so many people who have so much more pain than me! I don't know how they do it -- each of us draws on some strength that we have, whether it be inner strength, a support system, or medication, or meditation. I've been luckier than a lot of people in that my pain has been minimal until now. Can't complain about 20 years of mild pain compared to moderate or severe pain!
 
My husband and I talk frequently about how pain isn't recognized as a true impairment. My job and co-workers, Human Resources, etc are supportive as much as they can be, but they have no idea what I do to make it through the day or push through the pain. If I had a cast on my leg then there would be a visible sign that my health wasn't quite up to the level that I wanted it to be. This is my greatest frustration. I go to great lengths to put on makeup every day, smile and laugh through whatever is going on, and I feel like I'm beginning to pay for that effort. The director of Human Resources told me that I send mixed signals because I look so "pretty and nice" every day. I've been on intermittent FMLA at work for the past couple of years, and I've received lesser raise percentages because of my attendance. I've been compared to others in the department who only miss 5 days a year instead of 10. We're allowed 8, but I've caught heck about my absences even though they're considered excused because of a medical condition. Oh well, enough of that -- I didn't mean to get on a soapbox...
 
Thank you again for the welcome! I do appreciate the immediate support system and wish you well, too.
 

Dx: Fibromyalgia, Inflammatory Polyarthritis, DDD (herniated L5-S1), Tachycardia, Interstitial Cystitis, Raynaud's
Rx: Savella, Mirapex, Oxaprozin, Amitriptyline, Tizanidine, Orphenadrine, Atenolol, Enablex, Nitrofurantoin, Hydroxyzine, Percocet 10

Laughter is the BEST Medicine!

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 9/24/2010 2:01 AM (GMT -6)   
Welcome Rachel , We are very glad you found us and now that you have please feel free to post often . I'm sorry your having a flare right now but you sound strong and purposeful , hang in there . We look forward to hearing from you often !!! Your friend Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . hip replacement surgery done !!! Staples out , saw the surgeon he says I'm healing really well , I go back in 2 months . Until then its physical therapy galore !!

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 9/24/2010 3:58 AM (GMT -6)   
Hi Rachel. Nice to meet you. Welcome to our family here. So sorry that your pain brings you here, but I know you will love the people that you will meet. We're all here for the same reason, chronic pain!! Everyone is very supportive and non judgemental. A very loving and caring group of exceptional human beings.

So jump right in and post when you can!!

Have a great day!!
SUZANE

One day at a time!!

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 9/24/2010 4:13 AM (GMT -6)   
Hi Rachel,
 
It's very nice to meet you!  I too have back problems and fibro, along with a great many other things.  I stopped listing them on my signature line because they made me depressed when I read them over and over (and they took up so much space). 
 
I look forward to talking to you more.  HW is a wonderful site, with wonderful people.  Sometimes it seems like members go AWOL, but they usually come back after taking a break for a while.....kind of a recharge your batteries thing.
 
We all care for each other here and will rally around the one(s) who need us most at different times, so please don't feel that your posts are not as important as others if it takes a while for everyone to respond.  I've been taking a mini break lately myself since a bladder tack on Tuesday (a week and a half ago).  Today is my daughters 11th birthday and I woke up early with a sense of getting something done right.....of course, I ended up on HW after cleaning up the house for a little while.
 
None the less, I'm very happy you decided to join us.  There are so many wise and experienced people here.  One caution, though, is that none of us are Dr's and our experiences are each different.  We can only speak about what helps us and what meds or treatments did or did not work for us individually.  We love to give our encouragement and our knowledge, but can't guarantee your MD will agree with what you hear here.
 
Welcome to the gang!
Retired Mom

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3689
   Posted 9/24/2010 9:14 AM (GMT -6)   
Redneck Princess

I have heard that many many many times, about the mixed signals, and how I say that I am hurting but yet I look OK and I am still functioning! Well pray tell how is one suppose to look and act when they are having chronic pain? I have never understood that! Should I be curled up in a little ball crying because of the pain? The people that talk like that are usually the ones who, don't have chronic pain and they can not relate to what you are feeling and what you are going through! The folks here do understand what it is like, they also know that your world just doesn't stop because of your pain!!! You continue to function the best that you can, because you have to!!! because you just can't afford to let the pain take completely over and control you !!! So you get dressed and you put on a fake smile and you get on with your daily routine of living! You do what you have to do to get through the day! The people here understand that, and that is what makes this forum such a great place to come too! We have had many descussions on this forum about how CP changed ones life, and it certainly does that! Some of us have had to go on disability and that really does make a big change in our lives!

Anyway Redneck Princess do not worry about "getting on your soap box........" This is one place you can vent your frustrations about your CP and you will not get those funny unknowing and uncaring remarks about "but you don't look or sound like your are in pain" or any of those other types of replies!! Here is the place you can vent, and we will not only sympathize with you but, also empathize with you as well!!! Empathy is understanding and knowing what it is like to feel the way you do! You get that here, so you do not feel so alone!
I have rambled enough, I guess! (smile)
I do wish you well!

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9661
   Posted 9/24/2010 9:54 AM (GMT -6)   
Hello and nice to meet you, sure wish it was under better circumstance than chronic pain...
this is a good support group with lots of wonder people...as for the fibro sometimes a good moist heating pad
helps the most...would be nice if they had one pill and all the pain would go away as soon as you
took it...but some have found that Lyrica can help, I had nasty side effect from it...
Anyways, welcome and I hope you can get a low pain day soon...
Others will come by with better advise...
((((((((((((((((((((((((((((((Rachel)))))))))))))))))))))))))))))))))))
soft hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 9/24/2010 10:01 AM (GMT -6)   

 

   Hello Redneck P! smilewinkgrin

   Welcome to our little corner of the world!

      Yep!....WB is right we have heard your cry many a time here! ...so you have come to a place, where we understand fully what you are saying.

      What you have,....... is what I call the "Termite Disease" The house looks good on the outside, but under all that paint, is a sorry little bugger, working away, eating at our phisical and mental state! smilewinkgrin   Whew!... baby!.... call the Exterminator! smilewinkgrin

     If you havn't noticed by now!....I'm the silly one! wink

  Seriously though!....We do welcome you, and feel free to vent here anytime, and share your pain with us.

  I too have back pain, and had a fusion this last March. It's better. but not where I want to be as far as pain goes.

      It can really work on you, and I don't have a magical answer for your condition, other than making sure you are treated properly for your pain.

   Enjoy the members here! They are a swell bunch even though we all suffer the Termite disease! smilewinkgrin

 

          Take care!

         SE wink


Redneck Princess
New Member


Date Joined Sep 2010
Total Posts : 6
   Posted 9/24/2010 11:13 AM (GMT -6)   
Thank you all for the friendly welome and the understanding! Just knowing that I'm understood is a great relief. My husband is a great support system along with my family and a few friends. I appreciate all the advice and comments -- wish we hadn't met under these circumstances either, but I'm glad we did. Oh - and thanks for that "Termite Disease" explanation! Perfect!!
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