I joined today after reading off and on for a week now. Just had to have a place to vent where no one would say my pain was "laziness".
I have had problems with my hip for years. But in the last year or so, I have good months followed by bad months. Sometimes I wake up (when I do sleep) wanting to cry from hip, knee, and shoulder pain on the right side. Last week my joints hurt so badly that I couldn't completely close my right hand into a fist.
I sleep maybe two hours a night, four if I'm lucky. I've got hair loss at a level that brushing my hair means throwing away a wad of hair the size of a golf ball. In the last two months I've lost 16 pounds without dieting or exercising, and I've lost a lot of my sense of taste (I can taste spicy or strongly flavored foods, but things like cereal or toast are like eating cardboard.)
I made a doctor's appointment and in the office she was considerate. Wrote me a prescript
ion for meloxicam 15mg and said it was a "starting point" since she felt my symptoms indicated either osteoarthritis, RA or fibro, with lupus or thyroid as an outside contender. They took a hip and pelvic x-ray that showed everything clear, and about
six vials of blood.
I started the meloxicam prescript
ion and it feels about
like taking 2 ibuprofen. I went grocery shopping one evening and halfway through the store had to stop because of pain (this was while taking the meloxicam). That night my pain levels were elevated and I did not get any sleep at all. Last night while kneeling to bathe my daughter, I was in such pain I couldn't get up out of the floor and my 16 year old son had to lift me.
I called the doctor's office to explain and the nurse checked my bloodwork and said the rheumatoid factor had tested negative (she didn't give me the rest of the results on the phone as they require you to come into the office or wait on them in the mail), but I assume nothing alarming since what they suggested was physical therapy. I went through 12 weeks of PT two years ago that did absolutely nothing for the joint pain (and the back pain I was having also at the time ended up being my gallbladder). So the nurse suggested a referral to a hip/spine specialist. They are supposed to set that up and call back on Monday.
But on the pain issue she says that since the next step is narcotic pain relief, I have to simply deal with the meloxicam until they "prove" there's something that merits narcotic pain meds. (I went thru this during the gallbladder period where they gave me ineffective pain meds that nearly landed me in the ER.)
Edit to add - I forgot to add in the thyroid. I was diagnosed with thyroid cysts about
10 years ago and had an endo following them who recommended regular ultrasounds. They have set one up for next Friday since I hadn't had one in a few years.
I spent 24 hours of a 36 hour labor unmedicated and went through some major gallbladder attacks. I know pain levels. Right now I'm a very miserable 8 out of 10 and I'm so tired of hurting and not being able to do anything with my kids.
It's so odd that all the pain is exclusively on my right side, to me. My left side is completely pain free. I feel like the Joker from the Batman series.
Any ideas that I can start tackling from those who've gone down these roads before me? I'm just at my wit's end and if I change doctor's I want to go in armed to the teeth on info. I had to diagnose my own gallstones, after all.
Post Edited (Arkiebrat) : 9/24/2010 5:22:12 PM (GMT-6)