PM appointment tomorrow and some travelling coming up!

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Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 10/4/2010 6:31 AM (GMT -6)   
I have been hoping and praying for this week to come quickly for quite some time. You all know how insurances can be, and some of you have seen my posts about not finding a pain management doctor who took my insurance. Well my CRNP scheduled this weeks ago since the insurance company wants me to take a drug that caused a lot of vomiting and other issues, and the doctor is coming to her office since it is closer to my home than his! Apparently he is in the same hospital group and she has multiple patients with chronic pain, so he is travelling to see us all for a few days. I have never heard of this before from any doctor. Each time I have had a PM appointment in the last 6 months they cancel because of my insurance. They either don't authorize it or don't take it.
 
So we are both praying for a good outcome and not defining what that means. At this point, anything is better than nothing. I think there was a reason for my fiance to be laid off at this point too. There have been many times that I see a new doctor and I got the feeling that they don't believe me, or treat me as though it is all in my head and a ploy for attention. I know many of my family here on HW know exactly what I am talking about. With my honey there, he can speak with me about my issues and maybe the doc won't have the closed mind mentality so many others have had. Still, there are feelings of excitement, anticipation, and nervousness also.
 
This is a little off topic, but my fiance qualifies for unemployment. That is one stress gone. Also, I began a prayer shawl ministry at my church last week to keep myself busy over the winter months. I crochet shawls and pray (or sing) while making them, and they go to people in need whether through illness, loss of a loved one, surgery, or times of trouble. I thought that I would probably be the only member, since not many people have the time to knit or crochet anymore. My pastor made an announcement in both services yesterday, and I have four new members already plus donations that cover 6 new shawls! It is amazing!
 
Does anyone have advice about travelling with CP? Soon I will be going on 2 trips which are my first since the surgeries and pain, and I am unsure of how to approach this. I know about having enough meds, comfy clothes, heating pads, and any supportive stuff I may need, but how do you manage pain on a trip? I am going to a Mary Kay thingy in the Poconos with my friend and we have schedule plenty of stops to stretch our legs, but I also have a church retreat with activities soon too. How do you prepare for a trip? What do you consider essentials for your CP issues? Does anyone have any funny stories to share so I stop worrying about it?
 
I am praying for you all to have a blessed and low pain day! 
 
HUGS,
Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw


Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, adhesions, and a kidney stone! Wait, future medial transcriptionist I must say ureteral calculus!

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 10/4/2010 6:50 AM (GMT -6)   
I think the prayer shawl group is amazing...keep that good work up
it will be rewarded...
while traveling take frequent breaks, use a few of those back pillows
and put a cushion on the seat belt straps going across your body and
maybe take a cooler with plenty of ice packs ready to use or use those icy/hot patches...
just suggestions...trying to help...
sorry no funny stories....except that it's not easy to travel with 3 kitties...
((((((((((((((((((((((((((((Mindy)))))))))))))))))))))))))))))))
healing hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

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skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 3089
   Posted 10/5/2010 8:02 PM (GMT -6)   
Hi Mindy,

I hope the doctor's appointment went well. I agree with Char, the prayer shawl group sounds really neat! When you get a chance, let us know how the appointment went!

Wish I had some great advice about traveling, but since my pain is so different, I really can't help you there. Sounds like Char gave you some great ideas, though, & I'm sure other people will come along.

hugs,
Skeye
chronic eye pain, depression, and anxiety
recently implanted with a neurostimulator with leads on the supraobrital & infraorbital (ophthalmic) branches of the trigeminal nerve, resulting in a 50% decrease in pain (yippee!)

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 10/6/2010 10:37 AM (GMT -6)   
Char, thank you for the ideas! They are all good ones.
Paula and Skeye and Char, thank you for the encouragement for the shawls.

The PM appointment was disappointing and encouraging all at the same time. There is no long term treatment or surgery that can be done to help. THis is the disappointing part. I don't know if the hope of finding a cure for the pain will ever go away. However, with medical management it can be controlled, and they are happy with the medications that I was using. They will be fighting with my insurance company to get the fentanyl patch approved so I can have a better quality of life. I am tired of 16 pills a day and the rollercoaster ride of pain levels.
My fiance was a great help. He remembered things I had forgotten to ask, and made many good points and questions for the doctors.

Thank you all for your responses. May you all have blessed and low pain days!

Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw


Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, adhesions, and a kidney stone! Wait, future medial transcriptionist I must say ureteral calculus!

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 10/6/2010 10:43 AM (GMT -6)   
Char, thank you for the ideas! They are all good ones.
Paula and Skeye and Char, thank you for the encouragement for the shawls.

The PM appointment was disappointing and encouraging all at the same time. There is no long term treatment or surgery that can be done to help. THis is the disappointing part. I don't know if the hope of finding a cure for the pain will ever go away. However, with medical management it can be controlled, and they are happy with the medications that I was using. They will be fighting with my insurance company to get the fentanyl patch approved so I can have a better quality of life. I am tired of 16 pills a day and the rollercoaster ride of pain levels.
My fiance was a great help. He remembered things I had forgotten to ask, and made many good points and questions for the doctors.

Thank you all for your responses. May you all have blessed and low pain days!

Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw


Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, adhesions, and a kidney stone! Wait, future medial transcriptionist I must say ureteral calculus!
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