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Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/4/2010 9:22 AM (GMT -6)   

Hello all,

I'm a bit too shy to start a new topic to introduce myself so this seems like a good place to do it!  Although I'm just introducing myself, I have been reading nearly every day for a long time and feel that I know all of you.  I am moved and humbled by your stories and your courage.

My name is Julie and I'm 39.  I'm happily married and have 2 kids - a 7 yr old son and 5 yr old daughter.  Needless to say, they are my world.  I was diagnosed w/fibromyalgia about 18 mos. ago although like most folks, I'm sure I've had it for years.  Since then, things seem to be falling apart.  Shortly after that, I discovered that I had a fractured tailbone but had no idea how I did it.  That has been over a yr ago and it's been terribly painful every day since.  In addition, I developed horrible pain in my legs and an EMG showed that I have perm nerve damage, most likely a result of the fracture my dr. said.  I also started having lower back pain, and an MRI showed degenerative arthritis, which really surprised me.

I have a bunch of other "conditions" that usually go along w/fibromyalgia as well.  I have to say though that I'm very fortunate to have 2 WONDERFUL doctors.  My rheumatologist and my neurologist/pain mgmt. doctors have both been w/me since the beginning and at every appt. I whip out my notes and list of questions and they both love it that I do that!

Ok, that's long enough!  Just wanted to introduce myself because then I'll feel more comfortable if want to post a response sometime.  You are all amazing and thanks for sharing your lives...you have no idea the impact it makes!  Even to "lurkers" like me!

Julie


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
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MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 10/4/2010 11:01 AM (GMT -6)   
Hey Julie Welcome !!! Stop lurking and join our family , we'd love to have you with us and the folks here are simply awesome , you'll fit right in !! Don't forget chat nite on thursdays , stop in and say hello ! Your friend Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . hip replacement surgery done !!! Staples out , saw the surgeon he says I'm healing really well , I go back in 2 months . Until then its physical therapy galore !!

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 10/4/2010 11:10 AM (GMT -6)   
Welcome to the HW family!

You should never be afraid to start a thread here or to introduce yourself. We were all the "new kid" once too! There is such a wealth of knowledge and experience in this group of people and we are generally very accepting and easy to get along with. Sometimes, just like in all families, we disagree, but that is usually controlled very well by our wonderful moderators.

I, as well as many of our other members, have fibro and can surely understand the flare! I also (like so many ohters) have the back problems added in and a slew of other medical conditions. We are a mixed bag and have such a great representation of so many things. Some have conditions I have never even heard of, but I can give emotional support none the less.

Please feel free to join in any conversations and to allow our family to support you emotionally. We also give some great advice on where to go for medical information, but please do not think that any of us are doctors and we do not give true medical advice....one personal experience information.

Again, welcome to HW!
Retired Mom

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 10/4/2010 1:19 PM (GMT -6)   
Julie Welcome and like I tell everyone sure wish it was under better circumstance
other than Chronic pain...Hope you jump on in and reply on posts..
Having chronic pain and raising 2 kids can be hard but it can be done, as your
children get older you can assign them things to do each day to help mommy out..
and it can be a game...and first is your home family so let them know when your
having a bad day, the children will understand at least until they become teenagers...
I have one child in University...ask if you have questions we don't bite...hehehe
jokin there....
((((((((((((((((((((((((((((((Julie))))))))))))))))))))))))))))))))))))))))))
healing hugz
(I only have the one daughter, because she had open heart surgery at just 10 days old
and it was hard on me, my hubby was away at military training, they got him home on
the day she had the open heart surgery, she's okay for now ...)
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

Radles
Regular Member


Date Joined May 2010
Total Posts : 53
   Posted 10/4/2010 5:19 PM (GMT -6)   
Hello Julie and welcome to HW. I have not been a member for too long myself, but it has been a great place for me to 'go' when I get time to myself most days, I love to log in and read how everyone is traveling. I have learnt a lot of new info along the way that has been helpful to my plight, I am sure you will find the same.

I am so sorry to read about your plight, when it rains it pours (as they say), I hope things get easier for you. I had four little children when my woes began, now they are all grown up, just the 12 year old to care for, somehow you manage to do it, just make a point of enjoying the children as much as you can along the way.

Radles

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16783
   Posted 10/4/2010 5:19 PM (GMT -6)   
Hi Julie and welcome to Healing Well's chronic pain forum. Well now the hard part is out of the way, the first post, lol. There is just something about making that initial post that can be so intimidating, I do remember, lol. I am very glad that you decided to post and become part of the group. I do not have Fibro but I sure know how many on here suffer with it and my heart goes out to you. As for that broken tailbone, I have heard that is one of the most painful things that can happen to a person. If I remember right, there is nothing they can do for it either except treat the pain. Sounds like you are having some bad spin off problems as a result of it too.

I am very glad to hear that you have wonderful drs taking care of you. I have a great PM dr and I am so thankful she is my dr.It sure can make life a little easier when you have good drs involved.

Again, welcome aboard and keep us posted on how you are coming along.
Moderator Chronic Pain Forum

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3702
   Posted 10/4/2010 10:31 PM (GMT -6)   
Julie
I would also like to Welcome you to our forum, or shall I say "Family"! I am sorry that you have reasons to have to come here, but if since you have been coming here and reading our post, you can not help but know what a really great site this really is!  Of course it is the kind, caring, and compassionate people here that make this forum what it is!  I am glad that you decided to post, and introduce yourself, I do hope that you decide to stick around and become part of our family. You know this is just the place to come to vent your frustrations about CP, because when you do, you will alway find a compassionate ear, that is willing to listen and share in pain, when your here your definitely not alone! You now have friends that really do understand your pain and what you feel, and can empathize with you, as the saying goes "misery loves company" Well here you have plenty of company!  There is power in numbers, so if we can not over come CP, maybe we can at least help surpress it a bit! smilewinkgrin
 
I wish you well and again Welcome to our forum!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 10/5/2010 8:27 AM (GMT -6)   
Hiya Julie, and welcome to the family! I am so glad you found Healing Well, this is a great place. I too lurked for awhile before I signed up, just wasn't sure I could share my problems with a bunch of strangers. Well let me tell you, the folks on here don't let you feel like a stranger. They all welcome you with open arms and minds. So I hope you keep coming back and start feeling comfortable enough to post. You will get alot of love and support here. Once again, welcome and I hope to see you around soon!
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/5/2010 9:09 AM (GMT -6)   
 
   Dear Julie,
 
    Good morning and welcome to the community! I am terribly sorry for moving your post, it was fine in the "Weekly Roll Call", but I wanted us to have a chance to welcome you :-)
 
    I am terribly sorry your having had to endure so much pain for so long. It is good though, that you have doctors you trust and are comfortable with. It makes a world of difference when you are treated as a person and not just another "patient".
 
    Parenting little ones with chronic pain is hard. I have two children myself and it does take its toll. I love my little Bumblebees very much, but there isnt a "pause button". There isnt anyone you can "call in sick day" to. Other times it is nice I do not have time to frett over what is happening to my body. What suprises me the most is that there isnt more resouces or information about parenting with illnesses.
 
     I see I am chatting away here. I do hope you have a good day. it was very nice to meet you.
 
*hugg*
  dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
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