Hello out there.
I am a new member and wanted to introduce myself. I am Black Satin Phoenix. Yes there is more personal information I could share with you, but where is the fun in that? Telling everything about yourself all at once, leaves no room for discovering or learning more about one another. I love having conversations with people about anything and everything. You learn a great deal about someone that way. At least I think so.
I am hoping to find individuals who are experiencing the same kind of issues I am & to discuss treatment options, coping strategies, etc. If not that, just to share my life experiences in hope that maybe I can help someone with what they are going through....to have someone listen without judgment. Someone who genuinely cares. I am a genuine, honest, and real individual. I am caring, honest, loyal, and trustworthy. Above all else, I treat others as I would want to be treated. I am just me. Nothing more. Nothing less.
I have on going depression which is getting far too out of hand and I feel like I am going mad. I am unable at this time to work because of my intense pain. I hardly sleep. I pace night and day. I just don't know what to do anymore. I feel like a prisoner in my own body, my own mind. I've had depression for most of my life. But never something this maddening before. I feel like...hard to explain because I can't even figure out what's going on.
I also suffer from a nerve disorder called Reflexive Sympathetic Dystrophy or Chronic Regional Pain Syndrome in my right ankle/knee/lower thigh. I have had it for over 3 years now and it has progressively gotten worse. Anyone else out there have it and how do you cope? Because I thought I had it under control but I can't mentally/emotionally handle it any more.
My doctor is trying different treatments and medications. I am going to start receiving trigger point injections to see if that will help dull some of the pain and help start on the road to remission. I have had almost all of the common forms of treatment for it and nothing has helped. My doctor fears that I may have to have an epidural cathetar (sp?) with a pain medicine pump (with Fentanyl) once again, but with morphine, gradually increasing the dose (pill form I currently take) over time. The last time I had that treatment it started to leak and there was a fear that I had contracted spinal menangitis. I do not want to have one placed in my back again but I am running out of options (and medications to try).
Anyone with any suggestions or information regarding this topic or my depression would be greatly appreciated.
A general FYI...I currently take Hydrocodone 10 Every 6 hours, Morphine 15mg--1am, 1pm, 2 at bedtime, Robaxin 750mg 3 times a day, Cymbalta 30mg--1 capsule 2 times a day, Lyrica 75 mg--2 capsules every 8 hours.
Looking forward to meeting new people & connecting with like souls.
~Black Satin Phoenix~