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Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 705
   Posted 10/6/2010 1:10 PM (GMT -6)   
Hello,
 
I have been suffering from this pain in my back still, it really
bothers me, can't even bend to shave that well. I went to see the specialist
on Monday, he read my MRI and said nothing really looked wrong other than I have have
a small cyst near my spine, but he didn't think that was causing the pain, he wants me to do
PT, only problem is the water PT I can't get, my insurance caps for one place only and the only water
area is too far away to go for it. So I guess it will be just regular PT.
I went to see the new PT today.  What a breath of fresh air. He gets it, he really gets it, he understands that
fibro is not in my head, he knows it is a tuff issue to deal with!!! He read the report about my back and he said
he wants to start me on some different things to see if I can feel better, he asked where I was today in pain and
I was 100% truthful, I told him I was at a 6 leaning towards 7. So I am trying a patch, he also took me off perc's and is
giving me just the oxycodone part without the tylenol, he is not a big fan of the tylenol so he steers away from it, so
he explained that the patch will start out with the small dose .25 I think he said, then we will see how my body handles it
and if I need it increased in 10 days when I go back  then he will do so, he also is giving me sterioids to help some of this
crazy back pain that I'm having. I cried in the office, I told him about the terrible experience I had before with the PM and
he was shocked I was treaded like that. He wants to work with me, and I want to work with him. Eventually he wants to
get me exercising once he gets me out of the immediate pain. He said to be patient, because the patch may be way too low, but that it is the starting point. I really like him, the fact that I was not rushed, he took time with me, acted like I was his only patient, and its just so different than being rushed by my rhuemy. I signed a pain contract, no problem since I will just be dealing with him for meds, I gave him my scripts for next month for the oxy and percocet. I took a pee test, no problem with that either. I don't want to get too excited just yet, but I'm just happy to have had such a positive experience. He even knew I was in pain so he was very easy with the pressure points and my back, he said no need to set me off when he could already see from my doctors notes where my points are...(So how come she didn't even think about that before she would prod and poke me everytime asking....Does this hurt....I wanted to turn around and slap my rhuemy each time and say...Did that hurt....)
But I just want to say I'm pretty happy right now with the possibilites of getting some relief!!!
 
-Monica

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 10/6/2010 1:52 PM (GMT -6)   
I am so glad you have a new dr and that your faith is renewed.  That means everything when you are dealing with such pain, I know.  I have been where you are several times --at the end of my rope and a new perspective comes along and saves the day.  I believe that is God.
 
Keep working slowly with the PT andthe new dr and let us know what happens.  I will say a prayer for you as well.  God bless.
 
Lindaloo
Co-Moderator Chronic Pain and Fibromyalgia Forums
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16294
   Posted 10/6/2010 3:25 PM (GMT -6)   
Monica it sounds very much like you have finally found the right dr. I know it scares you thinking you don't want to get your hopes up too. We get a little gun shy after being treated badly by other drs, but you have to give this dr a fair chance. Actually the Fentanyl patches start out at 12.5mcg, then 25mcg and they increase in 25 increments. Don't be afraid to tell him in 10 days if you are still hurting either as you have room to go up in increases. Like he said you are on a low dose and they always start low and work up.

Good luck and keep your chin up.
Moderator Chronic Pain Forum

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3694
   Posted 10/6/2010 3:56 PM (GMT -6)   
Monica

I keep my fingers and toes crossed for you, that this all works out well!!!, I am just a little confused, I see that you have seen that specialist what type of Doctor is he? Are you going to Physical Therapy now? and is that helping? Now do I also understand that you are also seeing a new Pain Doctor? and he is trying the patch on you and also just having you take plain straight oxycodone? You know I understand what you mean, when you get a new doctor and you hop that he is going to be the "Keeper" You don't want to get your hopes up to high, but you desparately want to have a Doctor that really cares about you and wants to really treat you! It really is hard to find a Doctor like that! One that is really compassionate, and understanding, and not only treats your pain but also treats the whole person! And treats you like a VIP!!!. Because we really are, all Very Important!!!, and we should and need to be treated as such by our Doctors! And especially our Pain Doc! I do hope he is that one for you, and can finally get your pain under control!

Keep us posted on your progress, Good Luck to YOU!

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

Radles
Regular Member


Date Joined May 2010
Total Posts : 53
   Posted 10/6/2010 4:29 PM (GMT -6)   
Monica, you made me smile when I read where you waned to slap the rheumy, you at least still have a sense of humour.

I enjoyed reading such a positive letter, it all sounds good, so I hope it goes well for you.

I hate it when you are rushed by the doctor, especially when you have waited patiently for half an hour to see them, then you don't even get to ask all that you came there for.

R

Hopegirl
Veteran Member


Date Joined May 2008
Total Posts : 705
   Posted 10/8/2010 2:36 PM (GMT -6)   
Update,
 
Hi fam, the .25 patch I don't think will be enough, but its only been almost 48 hrs. I feel like I can really feel it wearing off??? I think the steriod is helping, I felt pretty good briefly last night, and first thing this morning. But right now at 4:15 PM, I'm in some pain...lol I won't make it bold, won't  make it big because I know that EVERYONE here knows where I'm coming from with pain...So when I get home after work around 5:30ish, it will be time for me to change my first patch. My doctor did say to tell him if it's not doing the job, I will give it the weekend and let him know.
 
Linda- I'm waiting on a call back for PT, no water PT around here makes me sad, I guess I will just have to have the regular PT, can't afford to go to a place that doesn't take my insurance. But yes, my new doctor means the world to me
Treating me so kind, taking the time...just a wonderful experience..compared to the first Pain Mgm guy I went to see.
 
Stray- It really is guy shy when dealing with a new doctor, your almost afraid to say too much, trying to figure out if the doctor is listening, taking you for real, or thinking your just being dramatic. He is a breath of fresh air and I like him. So far so good, he gets the thumbs up from me!!
 
WB-Thanks so much for keeping everything crossed for me!!!
My new doctor is a pain mgmt doctor so for my insurance, he is a specialist, he only deals with Pain Mgmt...and he understands that Fibro is not in my head!! Whooooo turn I have to put that little guy in here whenever I think about how he said he gets it. Going to start PT, have not started yet.
My new PM wants to get me comfortable, then he wants to try some different things so try to wean me from so much pain meds, which would be fine for me. Right now he gave me the script for the patches (5) until I see him again next week. He said I would prolly need a higher dosage, but would start with the .25. He gave me the perc's- the tylenol for the break-thru pain. He doesn't like using a lot of tylenol infact he doesn't like tylenol at all for how he treats his chronic pain patients. So yes both oxycodone for break-thru which is pretty much around the clock right now with this pain and he understood that it prolly would be, along with the patch.
We are VIP's!! I like that. I do really think he might be the one.
 
Radles-Hi there!! Welcome!!! LOL, yeah...if possible, you really do have to keep some type of humor, or else..I'd be crying all the time. I do try to tell myself often that as bad as I feel, there are people so much worse. So I try to hang in there.
But I really did want to give my former rhuemy a wack because yeah, every once in a while I understand the need to check the tender points, but for a while she was seeing me every 3 weeks or so, and she knew where the pain was, no need to keep making those area's sore over and over again. I really never felt like she had a true concern or understanding of my fibro, I prolly should of left there a long time ago, but I just didn't know if I should or not I kept thinking that she was ok, and maybe this was the best I could get and just deal with it. I'm so glad my post made you smile!!! If I can do that, then it was worth me writing it!!! No fun at all waiting for a doctor that just wants to rush you in and rush you out. This day and age, you would think they would learn.
 
Hope everyone has a great weekend!!!
 
-Monica

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 10/8/2010 2:55 PM (GMT -6)   
Monica,

So happy to hear you found a doc who will work with you! I hope all goes well!!

Take care of you!
Beckey
Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus and Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone
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