~ Saturday Koffee Klatch

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Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/8/2010 11:15 PM (GMT -6)   
Saturday Koffee Klatch
 
    
     If you are new to this forum family then you may be wondering what kind of goofy question is that on a health care forum. idea   We all suffer with medical conditions and with most of us there is pain involved...sometimes a lot of pain. Or maybe you are the loved one of one of these persons. This forum is all about how we help and support each other, how we gain back more quality to our lives, and how we can learn and share what we gain along the way and hopefully make not only our lives better but the lives of others who come to join us.

      But we need to also remember that there is the other side of life...the side that isn't concentrated on illness and pain. That's why we started the daily Koffee Klatch. This is a time to laugh, reminisce, chit-chat about the silly things in our lives...all fun things and no pain. In fact the 'P' word is not allowed...  turn    So each day we share our thoughts or experiences on a different topic. Often it includes food, sometimes we talk about our past, and other times we just get goofy! Laughter is our goal. So, please join us whether this is your very first day on Healing Well or you're a seasoned veteran.
 
Daily Question:
idea
 
 What advise would you give to someone who is just entering the world of Chronic Pain? Is there something that you have learned from your experience being a chronic pain patient that would be helpful to a new comer?


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

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couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/9/2010 8:41 AM (GMT -6)   
Be your own advocate! Get informed and speak up.
Joy

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 10/9/2010 9:03 AM (GMT -6)   
Be patient with yourself. Find a great doctor that understands pain and that wants to help you and that cares. Don't let others bring you down. Rest. Make sure that you rest. Do things--even if it's only a couple of little tiny things a day (if you are able) like taking a two minute walk or getting out to the store. Get it out here. Vent and express how you feel so all of your emotions don't get bottled up inside.

Be honest with your doctors about how much pain you have and about how you are dealing with it emotionally. Rely on as many different things that you can find that help you get your pain down--heat, ice, therapy, pain medications, nerve meds., acupuncture, whatever helps you.

Treat yourself to things even if they're little things. Try not to feel guilty for being in pain and feeling the way that you do. Instead of feeling bad that others help you (if you have family or friends, etc. who help), be thankful that you have them and that they do help.

Find new t.v. shows that you like to watch and rent them on DVD. I like Lost, Tony Danza's new show about teaching, The Office, Grey's Anatomy, Private Practice, etc. . :) Go to the library or to Barnes and Noble, and get books to read. Since we can't do everything that others can do it's important to keep yourself busy.

Journal if it helps you.

Keep going. Find a purpose in life. I go to church and read the Bible. God helps me tremendously.

In conclusion, I think it's so very important to be patient with yourself. Even though there is a lot you can't do, there is still a lot that you can do. There have been some wonderful threads about hobbies. A lot of the CPers on here have very cool hobbies! I think that it's important to have a great doctor too.

Hugs,

Flower

grainofsalt
Regular Member


Date Joined Aug 2010
Total Posts : 215
   Posted 10/9/2010 11:10 AM (GMT -6)   
My advice:

1. Don't wait for help. Its just pain right? That's oldschool thinking. Pain is a symptom of something bigger. Your body is in pain because something is not right and your body is not happy about it. You need to find out what's wrong AND get the pain itself treated.

2. Understand that medication is NOT a bad word. Especially once you have a condition diagnosised, its important for you to interact with your doctor and come up with a medication schedule. Work with your doctor and they will work with you. Understand that if you goto a doctor and just tell them you are in pain, give me medication, that approach is not practical. If you don't have your condition diagnosised yet, keep a pain journal with times, details, location of pain, types of pain, AND what you did to try and treat the pain. Doctors want to know that you are also doing your part to keep the pain under control. This is because pain medication generally does not CURE pain. It does however reduce its intensity and when pain medications are mixed with OTCs, exercise/stregnth programs, TENS units, massage therapy, injections, heat/cold procedures, ect ect ect, the effect is increased and the pain level can be farther reduced.

3. Talk about it with your friends and loved ones. Its important to let the people who truly care about you know how you feel. Not so that they'll "feel sorry" for you. So that they can be there for you in support. So that when you get a procedure done that has you bed ridden for 3 days they can help around the house. Also it feels good to know someone is there for you. Its also a stress release to talk about your suffering and that in itself can reduce pain. You can also take comfort in a little rest from Above. Theres a lot of comfort in giving our cares to God. :)

4. Flower already said it but......find a new hobby. Take more walks, especially during nice weather....I find this is especially relaxing.

5. Only take what I said with a grain of salt :P
MRI revealed a bulging disc w/gel lost at L5 and showed the bulge touching nerves, causing sciatica. Diagnosed w/ Arthritis which is responsible for joint inflamation pain. Treatment: Nucynta 50-150 mgs every 6 hours (schedule II narcotic, Mu Opoid agonist and NE reuptake inhibitor), Celebrex 100 mgs, Klonopin .5, Epidurals, Radio Freq nuerotomy (sept 8th, 2010)

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 10/9/2010 12:44 PM (GMT -6)   
1. get a good moist heat pad and a portable tens unit for bad days...
only thing I could think of...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

grainofsalt
Regular Member


Date Joined Aug 2010
Total Posts : 215
   Posted 10/9/2010 1:50 PM (GMT -6)   
I forgot #6.

Good flavored coffee, some tasty microbrews, and some home cooked meals......in other words YUM YUMS! :P
MRI revealed a bulging disc w/gel lost at L5 and showed the bulge touching nerves, causing sciatica. Diagnosed w/ Arthritis which is responsible for joint inflamation pain. Treatment: Nucynta 50-150 mgs every 6 hours (schedule II narcotic, Mu Opoid agonist and NE reuptake inhibitor), Celebrex 100 mgs, Klonopin .5, Epidurals, Radio Freq nuerotomy (sept 8th, 2010)

Radles
Regular Member


Date Joined May 2010
Total Posts : 53
   Posted 10/10/2010 5:11 AM (GMT -6)   
Try to be a happy person, don't let the pain make you a grunp! Especially around your children. I made a conscious decision to do this, and I think my family have benefited. It is hard, especially when you are scared and fed up.

Mine is in my mouth and jaw, I hate it, but I am starting to accept it. I keep busy physically, gardening and gym, distraction is so good.

Stay positive. Get a good heat pack and lots a sleep. Walk the dogs to the dog park. Delegate where you can.

R
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