They are lymph nodes

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damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 10/10/2010 8:53 AM (GMT -6)   
So, my CT of my abdomen and pelvis results came in. The lumps I can feel in my stomach are lymph nodes. I knew it. I have had different docs tell me for the last 5 months that they were lipomas. Most of them are still pretty small ( I have a few that are bigger and one over 2cm) but the report says the concern is not the size, it is the quantity of them.
 
So, I am waiting to hear from the surgeon to see what the next step is. For those of you who didn't catch my post from a couple of months ago I also have swollen lymph nodes in my neck, above my collar bone and under my arms. The one on my left under arm is blocking the blood flow and making my veins very swollen and tender in my left arm.
 
My fear is lymphoma or luekemia. confused I am so tired of being lumpy, bumpy, in pain and covered in wierd rashes! Now, my skin itches and burns like crazy! I have to wash my face 10-15 times a day with anti-bacterial soap to stop the burning. The itching is just as horrible too (I feel like I have fleas..lol) I probably won't know much until they biopsy one of these lymph nodes. I hope he decides to do it soon cuz I am driving myself crazy with the what ifs!
 
I hope everyone is doing well and having some LP days! Please keep me in your prayers and I will do the same. Take care all. yeah
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 10/10/2010 10:17 AM (GMT -6)   
Shannon,
I sure hope they get back to you soon if not try calling them...

Prayers and Hugz for it not to be Luekemia...I will hope they can get you scheduled soon for the biopsy..
Keep us posted as we'll all be thinking of you...
Keep positive hun, be strong and lots and lots of Prayers and well wishes, this will not be Luekemia...
my hopes for you to be okay....
((((((((((((((((((((((((((((Shannon)))))))))))))))))))))))))))))))))))))))
Prayers and healing hugz...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3695
   Posted 10/10/2010 11:07 AM (GMT -6)   
Shannon

I do hope that they have at least done blood test and all that type of work-up on you? Your Doctor is right! about the quality of the lymph node, allot of information about it is determined on whether it is smooth or lumpy , and hard or soft and squishy and irregular shaped , tender on palpation, and all that! Of course the biopsy is what will tell the story in the end! I hope that they do not make you wait much longer, the waiting is always the hard part! Especially to just get the proper test done! Ill say a prayer that everything turns out well for you Shannon!

Good Luck to YOU!

White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

flower123
Veteran Member


Date Joined Apr 2009
Total Posts : 856
   Posted 10/10/2010 11:28 AM (GMT -6)   
I'll be praying for you too.

Hugs,

Flower

golitho
Veteran Member


Date Joined Sep 2008
Total Posts : 1670
   Posted 10/10/2010 6:39 PM (GMT -6)   
Hi Shannon, when do you see the doctor again? It must be awfully frustrating having all these symptoms and no one taking them seriously? I really hope you get some good answers soon. Obviously something is upsetting your lymphatic system!
I'm thinking of you, have my fingers crossed that it is something that can be fixed. Best wishes, golitho

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 10/11/2010 4:58 AM (GMT -6)   
Thank you all so much for your well wishes as well as all the info. I see the surgeon on Wed. to see what the next step is. I have had tons of blood work, the only things that keep showing up are a high WBC, (not extremely high 11,800) a high SED rate (from 40 to 65) and my thyroid tests are out of whack (pretty sure I have Graves Disease, I will be seeing an endocrinologist soon).

I think the only thing that will tell what is going on is a biopsy of one of the swollen lymph nodes. Hopefully I will be having that done soon. I will let you all know. Thanks again for being here for me, I love you guys! Take care.
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

White Beard
Forum Moderator


Date Joined Feb 2009
Total Posts : 3695
   Posted 10/11/2010 7:31 AM (GMT -6)   
Shannon
I do hope this all works out OK for you! Please keep up posted on how you are doing!  Keep thinking Positve thougts!   We are all here for you!
 
Good Luck to you Shannon!
 
White Beard
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 3089
   Posted 10/11/2010 7:02 PM (GMT -6)   
(((((((((Shannon)))))))))))). Wow, this sounds really scary! I just wanted to let you know that you are in my thoughts & prayers.

more hugs,
Skeye
chronic eye pain, depression, and anxiety
recently implanted with a neurostimulator with leads on the supraobrital & infraorbital (ophthalmic) branches of the trigeminal nerve, resulting in a 50% decrease in pain (yippee!)

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/13/2010 8:43 AM (GMT -6)   

 

   Dear Shannon,

     I had feared something more serious was going on with you from the moment you WBC began spiking so high. But I would have never guessed your lymph nodes were also being effected! Though I am glad that you are finally getting the doctors attention.. I am scared for you. I do hope the appointment on Wednesday prompts some swift action on the doctors part! You have been exhausted and in way to much pain all summer long! Please let us know how your appointment goes and know you are in my family's prayers!

*warm hugg*
        dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
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MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 10/13/2010 9:03 AM (GMT -6)   
Thinking of you Shannon, and keeping you in my prayers.

hugs,
Pam
DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Physically Unable to Vomit due to Nissen Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vitamin D + Multi daily
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