First off I want to Welcome you to Healing Well Chronic Pain forum. I really am sorry about you getting that blotched surgery, I have a herniated disk at T-12 and my Doctors would not touch it, instead they put me on disability and pain meds to keep comfortable! I think I might have some idea, about the pain you are feeling, I think I would keep a journal on when your pain is at its highest and its lowest,, , and what you are doing, during that time. Also when you talk to your Pain Doctor, don't ask for pain meds, but instead explain how much pain you are in, let him see your journal if he/she wants, and tell him how the pain is affecting your life and what you can and can not do because of it! Be forth right and honest, about it, but make sure you do not gloss things over so it does't appear to him to be as bad as it really is for you! Tell him you are coming to him for help and you desparately need relief from your pain, and you are willing to work with him to attain that goal! Then let him try to help you! If what he does or recommends for you doesn't work make sure that you tell him! If he continues to be unsuccessful in helping to relieve your pain then definitely try and see some one else!
Do you have help in caring for your little boy when yor are in extreme pain? Husband?, Parents?, family? It is important they you have help during these times! I understand why so many doctors do not want to give young people strong pain medications. But it is not right not to adequately treat their patients pain either! It is not fair nor right that you should have to suffer like that! I do wish I could be of more help to you ambrdylz! Hopefully others will come along with some better ideas for you and some good advice too!
Again I welcome you to our forum, You know I really don't think you could have found a better place to have come, at least here you are not alone with your pain! You have plenty of caring and compassionate friends here that will at least lend you their ears and listen to you and share in your frustrations, and hopefully we can in some small way lighten your burden, and be of some help to you!
I do Wish you well!
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!