Posted 10/14/2010 5:59 PM (GMT -7)
The only thing bad about not going through with going to the clinic, is that since the neurologist made the referral, ( is that correct?) well then the doctor could possibly put in in your records that you are noncompliant or something like that and that you do not want treatment! I am not saying your doctor would do that, but there is always that possiblility. Especially since your doctor took the time to get you the appointment. Just a thought to consider. I can understand your hesitation and concern about going off your pain meds and the requirements of that clinic. But you know maybe it would be worth trying it anyway, I have looked up the site and well I can understand your apprehension, Personally I have never! ever! met a neurologist that I liked!! or trusted!!!, or have ever had one that really done anything for me!!!! I have seen allot of them too!!!! And you are right most of them do not like pain meds! But with that said, maybe.... just maybe..... they might be able to come up with some cause for the pain that you feel in your head. I see that they have given you anti-seizure medications for the pain in your head? Have they also checked you out for having seizures? or anything like that? When you have this pain how is your BP? You know what you describe sounds bad, I guess I would think that you have nothing really to lose by at least giving them a shot at trying to find out what is going on and hopefully coming up with a treatment for you that works!
I wish You Luck!!
Moderator Chronic Pain
After spending nearly 22 1/2 years in the USAF, I retired in Sept, 1991. I then went back to school and became a licensed RN in 1994, and I worked on Oncology and then a Med Surg Unit, I became disabled in late 1999 and was approved SSD in early 2002!-- DDD, With herniated Disk at T-12 and L4-5. C5-C6 ACDF in Sep 2009, C6-C7 ACDF in Mar 1985, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications:Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV I am White Beard with a White Beard!