~ Sunday Koffee Klatch

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 10/17/2010 2:34 AM (GMT -6)   
Sunday Koffee Klatch
     If you are new to this forum family then you may be wondering what kind of goofy question is that on a health care forum. idea   We all suffer with medical conditions and with most of us there is pain involved...sometimes a lot of pain. Or maybe you are the loved one of one of these persons. This forum is all about how we help and support each other, how we gain back more quality to our lives, and how we can learn and share what we gain along the way and hopefully make not only our lives better but the lives of others who come to join us.

      But we need to also remember that there is the other side of life...the side that isn't concentrated on illness and pain. That's why we started the daily Koffee Klatch. This is a time to laugh, reminisce, chit-chat about the silly things in our lives...all fun things and no pain. In fact the 'P' word is not allowed...  turn    So each day we share our thoughts or experiences on a different topic. Often it includes food, sometimes we talk about our past, and other times we just get goofy! Laughter is our goal. So, please join us whether this is your very first day on Healing Well or you're a seasoned veteran.
Daily Question:
(Todays question is of a more serious subject matter.)
What emotional / psychological aspect of being a chronic pain patient is the hardest for you? What is it that you do to over come / cope with it?

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator

Veteran Member

Date Joined Jan 2010
Total Posts : 1097
   Posted 10/17/2010 9:24 AM (GMT -6)   
The hardest thing over the last few years has been to accept all these changes in my life and adapt to them. I still want to think I'm capable of doing all the stuff I used to, but the reality is, I can't. I also think the realization that I have not been getting better over the years, and in fact, have been getting worse has been hard as well. I honestly expected that when I went on disability from work last year, it would only be for a short time, so I could get my pain under control, and get some rest to rebuild my energy.

When the months went on with my pain getting worse and new health issues emerging, my short term disability became long term. My doctor recently described my prognosis as: "Poor. This is likely to be as good as she will get" and while it caught me off guard, I realized she's probably right. I tire easily, and while my pain is managed fairly well (generally a steady 4/10), I still deal with flares and breakthrough pain, along with the side effects of the medication. I use a cane now when I'm out and we're talking about a wheelchair for longer times of walking (i.e.: craft fairs, trade shows, conventions, etc - quite frequent for us as we both make and sell handcrafted items (soap, tile coasters) so we're often checking out places to sell our product or to see what the "competition" is like).

I've realized that God has given me a positive spirit, an inner strength, and common sense enough to be realistic about my situation. I still do as much as I can for myself and around the house, but I pace myself and try to plan things out so I don't hurt myself more or hit the exhaustion point. I ask for help now (not easy for me, as I'm a doer and a giver, but I find it hard to accept help from others, as most of you probably do too), and I've accepted my new limitations.

I've got a great support group around me, and I have opportunities to vent/cry/be angry when I need to deal with emotions. So...even though there are a lot of things in my life now that I didn't have to deal with before, I know I can get through it all with my "team" around me for support and encouragement.

Lastly...I cope with it because of the people here at HW. It always helps to have others around you who are going through the same problems and really understand what you're dealing with. It's a great source of encouragement and education and support and love. In many ways...HW is a lifeline!
DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Physically Unable to Vomit due to Nissen Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vitamin D + Multi daily

Screaming Eagle
Veteran Member

Date Joined Sep 2009
Total Posts : 5005
   Posted 10/17/2010 9:33 AM (GMT -6)   

Well.....I don't think I have come to terms with my CP problem yet rolleyes

I have, and continue to struggle with this, and I think part of the problem is that, I'm still under/medicated. Many of us are dealing with Dr's that fear the scrutiny of the federal government, and the result is, we are suffering because of it.
I think I could better deal with my condition, with proper treatment. Probably, my biggest problem is letting go of the past, and what I used to be like health-wise. I was a non stoppable work horse, full of great strength and stamina. A Machine! smilewinkgrin

Many of my goals in life, will not be realized now, as I lay here in a survival mode. I must say that it is a very weird feeling, to have the emotions of anger and fear at the same time.

Humor, is the best medicine I have found so far, but it does help to keep the mind busy as well. An action movie, or music, and chatting with many of the members here, helps as well. Sleep is the final option, but not one
that I seek out first. Yes, we need proper rest, but our body's require some exercise as well, and of course we cannot forget the mind, as it needs stimulated too.

Sorry for the rambling here, I guess questions like this bring out the weird in me. rolleyes


Veteran Member

Date Joined May 2010
Total Posts : 594
   Posted 10/17/2010 6:38 PM (GMT -6)   
Like some, I know that I have not come to terms with my situation yet....also, I am not on RA meds yet and so I am flaring and hurting terribly! My biggest problem is the loss of all the things I used to do....and that I feel like I am ruining my husbands life! He has started doing more without me.....but then I feel lonely! I do not want him to miss out on things like fishing, camping and bowling....so he is going fishing with friends and joined a bowling league with friends....I am happy for him but sad for me! It is just really hard right now because I am in a flare and don't want to do anything but be in bed....and I can't expect him to do the same! Although for a long time he has.....and then I just feel guilty for that! Unlike SE....sleep tends to be my first option! I sleep to escape it all! unfortunately, I hurt too much to sleep very long at a time! Sometimes I wish I could just sleep for a week and then wake up and the flare is gone! Anyway...It stinks!!!! I just want to be normal again! :(

Take care everyone!
Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus and Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 10/17/2010 10:34 PM (GMT -6)   
Seems like everyday is trying to come to terms with it...

Hey antbuggey, I'll find out in a week and a half if I'll be on RA meds...
seems like my left hand hurts the most and I might see about a brace,
my neurologist said my hands should always be braced, but then what???
good luck to you hun and post how things go...The RA forum here is pretty good...
Healing hugz to all...
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 24, 2018 6:30 AM (GMT -6)
There are a total of 3,006,005 posts in 329,292 threads.
View Active Threads

Who's Online
This forum has 161818 registered members. Please welcome our newest member, demonsss.
242 Guest(s), 2 Registered Member(s) are currently online.  Details
sandyfeet, getting by