Vita D Deficient

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

dinkydee
Regular Member


Date Joined May 2009
Total Posts : 201
   Posted 10/17/2010 6:46 PM (GMT -6)   
I have had extreme fatigue for over a month, yet my CD symptoms are barely present...
Went to my regular Primary care Physician.  She ordered labwork.  I requested that she check my Vita D level.  She reluctantly did.  A couple of days later, she called reporting anemia and low vita D levels.  It seems D level was 28.  Ordered me to take prescription Vita D 50,000 IU once a week to recheck in 3 months.  I inquired whether or not this would be contributing to the fatigue..and over all achiness... She said fatigue is ususally d/t depression... Seriously?  The other thing is I have requested that my GI doc check my vita D level.  Her wouldn't order it, said I wasn't malnurioused.... I checked for old threads on this.  I know someone adviced me before to get this checked...
 
Would appreciate any info and experiences any of you have had regarding the vita D def.  Thanks

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 10/17/2010 9:28 PM (GMT -6)   
I believe that low Vit. D definitely adds to pain and fatigue. I am low as well (26) despite taking high doses of it on doctor's orders, so I guess we'll have to see what else might help (maybe she'll prescribe a vacation in Jamaica!!!)

I'm sure you'll hear from others here with more knowledge than I, but I do believe that low Vit. D is a factor for many of us with chronic pain and fatigue.

Hope you're feeling better soon!

hugs,
Pam
DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Physically Unable to Vomit due to Nissen Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vitamin D + Multi daily

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 10/18/2010 12:39 AM (GMT -6)   
Hi Dee,

Vitamin D and pain 'can' go hand in hand but I suppose it depends on the condition. Those with fibromyalgia(extreme muscle pain with no known cause) most often have a vitamin D deficiency. Some are helped by upping their Vit. D intake and others not. As far as I know there is no cause/effect proven in the case of fibro. There is a lot of info on Vit. D and CFS also. Here are a few links that might be of interest to those concerned. Hope they help!

Chutzie

www.ncbi.nlm.nih.gov/pubmed/20209476

chronicfatigue.about.com/od/exercisenutrition/p/vitaminD.htm

chronicfatigue.about.com/b/2008/05/27/vitamin-d-deficiency-why-you-should-get-checked.htm
Moderator on the Fibromyalgia and Chronic Pain forums

“If you want to live a happy life, tie it to a goal, not to people or things.” Albert Einstein

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/18/2010 9:47 AM (GMT -6)   
  Dear Dink,

     Good morning. I thought perhaps I should stop by.

     I see you have vitamin D defincy. But ,I wanted to remind you that the Vitamin D you get from the sun, foods, et al. is different from what you are taking. You are taking D2 (Drisdol). I too, take Drisdol along with IV treatments. No matter how much you sit in the sun or how much "D' you ingest you wont produce enough "D2" that your body needs right now. Also, a word of caution. Do not take any supplements that contain "calcium" while you are taking the Drisdol. Like those over-the-counter "Vitamin D & Calcium" combos are a big "no no".

~~> http://en.wikipedia.org/wiki/Vitamin_D

~~> http://en.wikipedia.org/wiki/Ergocalciferol

~~> http://www.drugs.com/mtm/drisdol.html

     I have to keep it up the high amounts of Drisdol and IV treatments the rest of my life.  I have Inherited (genetic) Hypoparathyroidism & Low Parathyroid Absorption (0.0025). The latter of the two, when in combination together, ravaged my body in less than 4 months time. It took my vision (was never fully restored despite multiple surgeries and synthetic implant), my muscles, my teeth (4mo. oral re construction), my mind (Okay my mind was only partially there to begin with  rolleyes  ) ....so much lost. The list goes on and on. Gosh, just terrible side effects like paresthesias, tetanic contractions, tetany (breathing was so hard), even seizures (which I truly believe cause a hearing problem known as "tinnitus" along with hearing loss). You name it, it is gone.

      I was told the chances of Inherited Hypoparathyroidism were so rare they didn't think to check into it at first... on the other hand I had to have so many re constructive surgeries in an attempt to "partially restore" damage all because no one could fit the pieces of the puzzle together in time.  smhair   Those two problems made my progressive spinal deformity so much worse. Even though my doctors said it wasn't by that much as I was already "Idiopathic Progressive" spinal deformity.... I still wonder sometimes.   

     I think the important thing in your case is to press your doctors to find the true "cause" of the deficiency. I can understand when they say "for a few months or so" with the Drisdol, as the high levels of Drisdol can cause other problems if left to high (Kidneys, et al). But, on the other hand, if it is still low after all is said and done you should really press them to find the true cause. I Highly recommend you seek a consult with an Endocrinologist.

    I do hope you are get your fatigue under control. You sound down right exhausted! Also, you might want to check in to CFS. It is very similar to what you describe. Here is more info

~~>  http://en.wikipedia.org/wiki/Chronic_fatigue_syndrome

~~>   http://www.mayoclinic.com/health/chronic-fatigue-syndrome/DS00395

     I hope you can find some moments to rest. Stay strong and hang in there!

*hugg*
  dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5005
   Posted 10/18/2010 5:31 PM (GMT -6)   
A 28 in the summer can become a much lower level in the winter.

An article I read said the amount you need to take is 100 units of D for every ng you are low. For your 28, that would mean 3000 units daily to get you to the lowest of the new level 0f 50 to 90. You might need more in the winter.

A toxic dose is considered to be 10,000 units daily over a long time.
Alcie
 
 

JulietteSuzanne
Regular Member


Date Joined Dec 2007
Total Posts : 104
   Posted 10/18/2010 10:55 PM (GMT -6)   
My doctor started ordering Vitamin D and a few others on my yearly blood work-up beginning two years ago. I was, of course, low in most Vitamins, including D.

I asked him why he suddenly checked vitamins and he said a couple from Canada was getting their blood work done by him and they inquired as to why he didn't add D and other vitamins to their work-up. Evidently, it's routine in Canada due to the lack of sunlight, etc. I found it all interesting.

He told me to take D with a Calcium supplement and go out in the Sun (without slathering on 40 proof sunblock like we are programmed to do!) for 10 minutes a day and the results will be amazing. With my work schedule and daughter's ballet, gymnastics, my pain -- LIKE I HAVE TIME TO GO AND JUST SOAK UP IN THE GLORIOUS SUNLIGHT! lol Don't I wish!

Simple, natural advice though.

I also was reccommended Krill Oil. It's suppose to be better than Fish Oil and actually advertises that it works for PAIN. hmm...We shall see.

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/19/2010 9:38 AM (GMT -6)   

 

   Dear Alcie,

     When dealing with an other wise healthy individual those estimates are good. For Dinky, 50,000 UI D2 per week is needed. In this case the medical necessity to treat the D Deficiency is the reason for the high does. In my case, I am given extremely large amounts of "D2" via Drisdol and IV treatments. For the rest of my life.

   In the cases of "Medical need"... the "toxic" amount for an otherwise healthy person is not the case. There are many that have medical conditions the require treatments with D2. If left un treated or undertreated the damage is life threatening.

     Here are some reasons why a patient would be perscribed large quantities.

~~> http://www.mayoclinic.com/health/vitamin-d/NS_patient-vitamind/DSECTION=evidence

     Here is an easy to read article on Vitamin D.

~~~>  http://www.mayoclinic.com/health/vitamin-d/NS_patient-vitamind

     I know it is hard to understand why doctors take certain courses of action. Especially when looking from the out side, in. There are very urgent, serious reasons why a doctor will prescribe large quantities of D2. Most cases it is short term, or eventually tapered down. But for many... large quantities for the rest of their lives. Obviously it is impossible for someone to try to consume 50,000 Units of D2 in only 7 days (there are two types of D).

 

    Elenor,

     That is good advise for all. A stroll in the park is wonderful. It wont cure the illness that require immediate intervention with D2, but are good rules of thumb none the less. As we all could use D3 from sunlight. Not to mention the emotional wellness that a peaceful walk can bring.  :-)  

     There are 2 main types of Vitamin D needed for humans. Our bodies absorb the various sources in different amounts. Here is a neat article I think you might like. 

~~> http://en.wikipedia.org/wiki/Vitamin_D

     I can see why your doctor would make the testing part of your yearly check-up. It is always good to check on things that if spotted soon enough, can be treated / combated early. I think I get everything from cholesterol to organ function, and everything in between, each year. Plus, in your case, it shows your doctor is very thorough.

*warm huggs*
      dani


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5005
   Posted 10/19/2010 3:40 PM (GMT -6)   
Dani - I'm absolutely not contradicting what your docs prescribe, merely noting that taken daily over a long time 10000 units D3 is toxic. But a jump start is often prescribed, and people seem to be getting good results. 50,000 a week is still not 10,000 a day.

I think most people take way to low a dose of D for maintenance, eswpecially in the winter or for people who don't get out in the sun. I got my husband to start taking 2000 a day and the brown spots he had from old injuries to his legs have all but disappeared. I take 4000 a day in the winter. In the summer I cut the dose to half when I do gardening or mowing or other outdoor work. I feel it's helping my fibromyalgia pain.

It was good that you pointed out D2 vs D3, which is the one most of us need. I wish insurances would allow D testing to be a regular part of blood work!
Alcie
 
 

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 10/19/2010 4:31 PM (GMT -6)   
Hi,
 
I just wanted to let you know that my PCP and Endocrinologist both insited I take 50,000 units per week for 12 weeks, with an additional OTC tablet twice per day and calcium/vitamin D combination.  I was not harmed by this at all and I remain on a maintenance dose of at least 2000 units per day pluse the extra from the calcium/D combination.
 
My levels have been tested and it was impossible to reach a healthy level without this intervention.  I was nervous about taking such a high level myself, so the confirmation from the Endocrinologist gave me the resolve to actually swallow the pill.  It did seem to help my fatigue some, but then again I have other medical factors at play.
 
I tend to leave the medical decisions to the trained MD's.  My brother-in-law is an RN/OR supervisor.  I don't believe he has ever given one ounce of good medical advice to me or anyone else in my family.  It is clearly apparent to me that he feels he knows what is best, but has no understanding of what a trained physician (especially a specialist) should be prescribing or diagnosing.  If I ever have a concern about what my PCP prescribes or suggests (and I sometimes do), then I discuss the situation with another trusted physician who is very familiar with my medical history.  I also keep a running list of medications and provide an updated copy to each physician at each visit.  The list also details my current medical situation (as it applies to the Dr I am seeing) and when my next apt is with each other physician.  This way they can communicate.
Retired Mom

uplate
New Member


Date Joined Oct 2010
Total Posts : 1
   Posted 10/21/2010 9:33 AM (GMT -6)   
I have CD also. A few years after gong GF I was still tired and insisted they check my vitamin levels and do a bone scan. My D was low and my bone scan revealed osteoporosis (at 1/2 the age I'm meant to be at risk for it and as a result of Drs missing the CD for nearly 2 highly symptomatic decades), checking old lab reports I also found out I'd been anemic and they'd neglected to mention it. I'd been complaining of symptoms for years and nothing got done till I was again in crisis and pushed the point this time. Unfortunately not many Drs know much about CD, means their patients have to inform themselves so good on you for speaking up. I get really angry when I hear Drs dismiss patients as "depressed" instead of looking into the cause of the complaint.

I didn't notice much difference in my energy levels when my D went back up, nor my iron levels, my follow up bone scan however I actually had some improvement in bone density (much to the endocrinologists surprise) and the bone pain/ache improved so I did feel more comfortable. That's not to say you won't have more energy when your levels get back up, it did take far too long for me to get diagnosed and treated so improvement for me wasn't really expected.

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/21/2010 1:20 PM (GMT -6)   
 
   Dear Alcie,
 
 You said ~~> "Dani - I'm absolutely not contradicting what your docs prescribe, merely noting that taken daily over a long time 10000 units D3 is toxic. But a jump start is often prescribed, and people seem to be getting good results. 50,000 a week is still not 10,000 a day."
 
   Gosh, you must have misread my post. Terribly sorry I confused you. During normal times I take 50K D2 per week. During "crisis" I am given IV D2 treatments along with my 50K D2 weekly dose. It is done this way to keep me from having the more serious side effects or further complications (tetany in throat, seizures, heart problems). My life literally depends on it. I have to be minotored and treated depening on test out comes, the rest of my life. That is the nature of Inherited (genetic) Hypoparathyroidism on this scale. I was using myself as an example as to why someone would need extremly high amounts for medical necessity. We are just talking about medical reasons for high amounts of D2, and if/when is causes pain/fatigue.
 
 
*hugg*
  dani

 
TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

Alcie
Veteran Member


Date Joined Oct 2009
Total Posts : 5005
   Posted 10/21/2010 3:02 PM (GMT -6)   
Dani -
Basically I understand you. We're not at odds. I hope we haven't confused the rest of the readers with a discussion of D2 and D3. Your case is quite remarkable in needing D2, where most of us only need the D3 or at least we don't know if we need D2 yet.

Usually it's the D3 that is prescribed in 50,000 units once a week. Then there has to be a maintenance dose, which is often not prescribed high enough. It should not be toxic for most people to take 2000 units a day, not the 400 that used to be recommended. We do have to add up all the D in all the calcium, multivitamins, and other sources.

I feel this one vitamin helps with my fibro pain and maybe some of my arthritis pain too.
Alcie
 
 

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/21/2010 6:38 PM (GMT -6)   
 
 
  Dear Alcie,
 
     No worry! That is why we openly discuss topics. So we can all share knowledge and experiences.
 
    The medication we are all referring to is Drisdol (ergocalciferol) aka D2. It is what all of us were/are prescribed for varying medical treatments.  Here is some info about what it is and why it is most commonly prescribed.
    
*hugg*
  dani

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, June 24, 2018 8:52 PM (GMT -6)
There are a total of 2,974,860 posts in 326,216 threads.
View Active Threads


Who's Online
This forum has 161310 registered members. Please welcome our newest member, ejt998.
381 Guest(s), 6 Registered Member(s) are currently online.  Details
mattamx, charles384, Cyclone-ISU, ChickenArise, straydog, BOB 46