Ankylosing Spondylitis

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WillHeal
New Member


Date Joined Oct 2010
Total Posts : 3
   Posted 10/18/2010 7:44 AM (GMT -6)   
Hi, I am new  to this site and I was wondering if anyone here has Ankylosing Spondylitis? I am having lots of problems with biologic therapy and pain management.

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8384
   Posted 10/18/2010 8:47 AM (GMT -6)   
Have you checked over at the Rheumatoid Arthritis forum? Also look at the UC and Crohn's forums.
*******************
48 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (6g/day), Sulfazine (1.5 g/day), Prevacid, vit. D (20K iu), flax seed oil (2 tsp/day), mesalamine enema as needed.

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 10/18/2010 12:19 PM (GMT -6)   
Nice to meet you WillHeal, sure wish it was under better circumstance than chronic pain...
There are a few people here that have ankylosing Spondylitis and will be by to give you
info...do you see a pain management doctor or a rheumatologist or both? Sometimes getting a
good pain management doctor can take time, my first one I had troubles with and
I'm in the search process again for a good doctor...and sometimes a good pain managment psychologists can help.
We are not doctors here, but this is a good support group with good info...
Hope you can get a low pain day soon...
((((((((((((((((((((((((((((WiiHeal)))))))))))))))))))))))))))))))))))))))))))))
healing Hugz
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* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

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Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7149
   Posted 10/18/2010 1:10 PM (GMT -6)   
I have AS. What are your problems with biologic treatments? I have taken Remicade, then Humira, and am now on Simponi. Remicade worked great for a couple years then became ineffective. Humira caused a reaction not long after starting it. I have been on Simponi for 16 months and of all the biologics, this one has helped the inflammation the best. However, I have to take it every 3 weeks instead of the once a month originally prescribed.

With my inflammation under control, I have a lot less pain. A combination of Tramadol, neurontin and Vicodin for flares, I do pretty well. My activities are restricted. I have had to give up some activities that aggravated my joints and back. That was tough at first but I came to realize I would rather limit some of the more vigorous activities that constantly battle the pain.

Can you tell us a little more about what difficulties you are having?
Moderator Crohn's disease and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 10/18/2010 4:03 PM (GMT -6)   
Hello WillHeal and welcome to the forum! You have found a wonderful place with many caring and understanding people! I am still waiting on a dx, but I am sure that I have RA and possibly AS. Sorry you are having the problems you are! I am not familiar with the meds yet.....I wish I was, because then I might be feeling better! I see my new rheumy January 6th! Anyway, I am sorry I can't help, but I wanted to say welcome!

Take care,
Beckey
Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus and Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

bluejet2
Regular Member


Date Joined Feb 2009
Total Posts : 487
   Posted 10/18/2010 10:15 PM (GMT -6)   
Hi Willheal:
 
 
Hi and welcome to HW.
 
My 22 year old son has been diagnosed with AS, and because of his age, no one wants to do anything other than physical therapy.  He is a full time student and works a full time job, and is very athletic, but suffers terribly with constant back pain.  I am also very interested in the different therapies that are available for this condition. 
 
Take care,
Lorie
 
 
 
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