*~ Weekly Roll Call (Stop by for a moment when you can.)

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Mrs. Dani
Veteran Member


Date Joined Jun 2009
Total Posts : 2787
   Posted 10/18/2010 8:29 AM (GMT -6)   
Good Morning Chronic Pain Family!
 
 
 
      It is a beautiful Monday morning! Okay, okay, so it is a stiff, sore & achy Monday morning. Never the less! It is Monday. There are tasks to complete, jobs to do and appointments that need to be kept.
 
      Often times we are so busy supporting others that we forget to update about ourselves. So, before we get too wrapped up in starting out the week... Please, stop by and let us know how you are doing. Give us an update. We want to know how you are doing.
 
What are your major plans for the week?
How are you feeling? What has your pain scale been over the weekend?
(Are you having a hard time with pain + cold tempatures)


TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator
Mail

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 10/18/2010 8:52 AM (GMT -6)   
Good Morning Family,

I've had an up and down past week, so I'm hoping this Monday kicks off a better few days. I need to renew all my meds so will have to get in to the doctor today or tomorrow. I've also got to get the rest of my paperwork for my CPP Disability off to my Case Manager today - all 68 pages of it (I'm glad I don't have to pay for copies of my file at my doctor's office!)

I'm hoping for some slightly warmer weather this week as the snow we had here last week killed what was left of my garden. I want to get the flower bed cleaned out and prepped for winter, so if I do things slowly and carefully, I should be able to manage it through the course of the week (as in, behaving and not trying to do it all in one day. It's a tiny garden, but I know my limits).

Other than that, I'll mostly be working on crafts (tile coasters for Christmas gifts - I sell them, and make them as gifts for my own friends and family). I've got several orders already and hope to finish my website this week as well.

My pain has been it's usual steady 4/10 with no major flares, but the hot flashes and heavy sweating are really uncomfortable and hard to manage. I've started wearing a hat with a sweatband in the house and I'm trying to find moisture wicking head scarves or hats to wear both in and out of public, just to manage how profuse I'm perspiring. It's just awful when it happens, as it usually comes with the shivers at the same time as the sweat is pouring off the back of my neck and my forehead...* UGH*

Anyways, that's what's on my agenda this week. I hope everyone has a good week, with as little pain as possible and lots of rest so you have lots of energy!

hugs,
Pam
DX: Fibro, Severe Myofascial Pain, Chronic Pelvic Pain, Surgical Adhesions, IBS, IC-PBS, Carpal Tunnel (both wrists), FAI, Reynauds, Opthalmic Migraines, Drug Related Hot Flashes, Physically Unable to Vomit due to Nissen Surgery, Extremely tiny and scarred veins (hard start for IV's)

Meds: Oxycontin, Tramacet, Cymbalta, Cesamet, Flexeril, Clonidine plus Vitamin D + Multi daily

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9661
   Posted 10/18/2010 12:09 PM (GMT -6)   
Well this weekend was kinda bad...
Hubby had some pain so I told him to use Ice and heat combo
and would he, not until it got bad...then he was a bear...
I told him to lie down on the floor to rest his neck for a few minutes
and to use ice and heat again and he finally listened and was feeling
better this morning...I don't know why men don't listen, he also took one of my omega 3
and it helped, anyways he's feeling better I just wish I was...
at least his goes away, pretty much just a stiff neck...This week I only have one doctor's appointment...
but next week is the big appointment and I'm apprehensive about it (Rheumy doc)...
I sure wish everyone here can get a low pain day, that will last all week...
(((((((((((((((((((((((((((((((Hugz to All)))))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

Anniewhereugo
Regular Member


Date Joined Oct 2010
Total Posts : 46
   Posted 10/18/2010 12:20 PM (GMT -6)   
Newbie here, after perusing this forum I think I am more depressed than ever. I'm new to this everyday pain thing and after reading all the horror stories of failed surgeries and doctors that hold (or should I say withhold) the quality of folks life in their hands, I must say....this is not a road I want to travel down. Though I'm sure that is true of everyone here. My own DO has pretty much said that I will just have to live with it.

The weekend before last was not so bad and I even got some good rides in on my horse, which may have been a mistake as the whole week and especially this past weekend were awful. I stayed home from work today because I didn't sleep for the past 3 nights and I'm in such pain. My husband thinks I should just get over it and go to work, but when I go to work in pain like this then everyone thinks I am mad at them and they complain to my boss. I'm tired of sounding like a wimp and whiner....this post sounds like one I know....I just want to sleep and enjoy hiking and horses and even work again.

I have read some of the resources here and will follow up with some of the exercises and natural remedies.....thanks for being here!

Annie
protruding discs, c-4, c-5 and c-7 with spinal cord impingement, which is causing numbness, pins and needles and peripheral pain.arthritis of the left knee

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 10/18/2010 3:52 PM (GMT -6)   
Hi Annie!!

And welcome to the Family! I know most of the stories here do sound depressing but think of it this way ~ How may forums are there where people share all of the good health care they have gotten or celebrate how wonderful they feel? It's human nature to get frustrated and talk about the things that go wrong as opposed to those that go right. By sharing the bad, as well as the good, we are better able to help each other because we know what each other is going through. Who else better to teach a blind person than another blind person?!! ;-)

Your lifestyle sounds wonderful, even if you can't enjoy it like you once did. I used to have a farm complete with a Palomino named Candy. She was a doll and a very gentle ride. I didn't give up the farm because of health but when I remarried. But I would think that with some self-care and great doctors to help, I'm going to go out on a limb here and say that, I would think you'd be able to ride again now and then. Have you ever seen the handicapped kids who they take riding? I'm not saying any of us are like them but there are ways and breeds of horses that are much more gentle on our bodies than others. I don't know what breed you have but the Walkers and also the ...umm, can't think of the name...<grrrrr>...lol (see what fibromyalgia does to the brain?) The horses that prance up and down, Spanish/Mexican origin, very gentle ride....

OK, just spent 20 minutes finding the name of the breed...it's Paso Fino! They are wonderful horses and purported to have an easier ride than a Walker or a Morgan. I've seen them preforming on TV (RFD-TV) but never in person, yet. They are truly beautiful and claims that they are the softest ride with the least amount of movement for the rider. Here's a link if you just enjoy looking at beautiful horses.

www.pfha.org/content/about/PasoHorse.aspx

Also, one thing I strongly suggest when people have a doctor who has pretty much given up on them is to get to a teaching/university hospital and get yourself on the cutting edge of technology. There's a link for a list of hospitals around the globe but here's the link so you don't have to go find it. Give the closest one a call and tell them what your needs are. It's why they exist.

en.wikipedia.org/wiki/List_of_university_hospitals

Also give some thought to other ways you can work with horses while you are trying to get help with your back. Walking them? Grooming, feeding and lunge work. Maybe volunteer with an organization who takes disabled kids for rides while you walk the horse. In the mean time you have time to heal and hopefully one day it will be you back in that saddle again.

One more thing before I turn this into a complete chapter or an entire book...lol... Talk to your doctor about possibly applying for disability. There is NO reason you have to feel embarrassed or ashamed to be in pain. You should NEVER be afraid to go to work because you have Chronic Pain. It's no different that someone who has a broken leg or cancer. Who would belittle them? And your darling husband needs some education. Also he needs to go along with you on your adventure to find a doctor or clinic who has some hope for you. As my husband and I remind each other...we made the deal when we got married (and we hold up our hand with the wedding ring on it) We are there to HELP each other...helping is a physical manifestation of Love. If he isn't willing to see your life through your eyes then take yourself to a pain counselor. Yep, there are counselors who deal with pain patients and many of the members here are benefited enormously from seeing one.

OK, I'm off to retrieve another load of dry laundry. Please take care and stay in touch!
Chutz
Moderator on the Fibromyalgia and Chronic Pain forums

“If you want to live a happy life, tie it to a goal, not to people or things.” Albert Einstein

Anniewhereugo
Regular Member


Date Joined Oct 2010
Total Posts : 46
   Posted 10/18/2010 4:27 PM (GMT -6)   
Thanks Chutz....for the words of encouragement. funny you mention a broken leg....I tore my left knee up skiing a few years ago and when I had my surgery I actually used a wheel chair for the 6 week non weighbearing period. I commute an hour on a commuter bus and they were so great helping me out during that period. as for the hubby, he injured his back at work about 9 years ago and does suffer greatly, though he does go to work every day. lucky him, he's retiring at the end of the year. he's one tough cookie, but I do remember he took quite a bit of time off, so i remind him of it when he gripes. he's afraid I will lose my job, since my accident was not job related.

and, i actually have a gaited horse, a missouri fox trotter! she is great and a very smooth ride. i am with you....think positive and things will get better! I am just not a patient person. lol....and some of the stories of how doctors treat people. It scares me.
protruding discs, c-4, c-5 and c-7 with spinal cord impingement, which is causing numbness, pins and needles and peripheral pain.arthritis of the left knee

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 10/18/2010 4:55 PM (GMT -6)   
First off....Hello Annie and welcome to our family! Don't let the bad stuff scare you away... this is an amazing place with amazing people, who really understand and care! I too, have spine problems with nerve impingement...but mine is lower L3-L4-L5 and S1. Stick around and you will see that it is not just bad stuff here!

Secondly...My week was a little better. I feel like I may be going out of this flare...praying! Those of you who remember the wonderful rheumy who is a 31/2 hour drive away....who told me he could not "feel" RA in my hands.....and put me on steroids for a month while he went on vacation....then told me to call when I went into a flare and he would see me right away! Well.....I went a month hurting terribly, spending most my time in bed.....but.....my hands were not hurting except for the normal morning pain! I did not want to see him until my hands were affected because that was the only joints he touched. Well, I got tired of waiting because I was hurting so bad....I got a new referral to a new Rheumy....who is actually closer to me. Only problem....the first available appointment is January 6th. So I put my name on the cancellation waiting list but I am 15th on the list. Anyway.....I went into a complete BAD flare 2 weeks ago, and I went ahead and called the other Rheumy who was going to see me immediately if I went into a flare.....and guess what????? They told me they could see me in 3 weeks!! I was hurting soooo bad and soooo mad that I basically told them where they could go and a few other mean things! So now I am waiting for January 6th appointment or a bunch of cancellations! But since I am on the cancellation list they do not want me taking steroids, because it can skew the tests! Can anything else go wrong right now?? I probably should not ask that, because it will!!

Anyway, with the help of NSAID's I am doing a little better now....and am waiting!

I hope you all have LPD's!

Take care of you....everyone!
Hugs,
Beckey
Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus and Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 14475
   Posted 10/18/2010 6:19 PM (GMT -6)   
Went to the PT today in a high flair (7-8). I had been hurting all day. She was so worried about me she decided not to work me any. She had me to lay in my most comfortable position on her table (on my right side while she did pressure point massages up and down my back until the spasms stopped. We stayed an hour after everybody left.
She convinced me that I really needed a muscle relaxer to stop the spasms and that I needed to take a Loratab when I got home. I wanted to try to do all of this without pain meds. They don't treat my stomach right.
When I sat up from the table the spasms came back at a 4-5. :(
I hobbled out of the clinic to my car to find a half a dozen messages on my phone from my mom wondering why I hadn't came home yet. Family....got to love 'em.
Joy

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 3089
   Posted 10/18/2010 8:57 PM (GMT -6)   
Well, I had another really rotten week last week. My depression is way out of control & my psychiatrist was on vacation all week. I was barely functional at all last week -- just crying, and sleeping all the time, except when I was at work. I seriously thought I was going to have to hospitalize myself, but I hung on by a thread. Fortunately, after a visit with my sister yesterday, I am feeling much better. The depression is still really bad, but I'm functioning better/am not quite at as rock bottom. It think just forcing myself to get out of the house & do something helped break the cycle a bit.

I'm also still recovering from my bout with erhliciosis last weekend. I still feel pretty rotten overall. I was starting to feel better, but then my allergies/sinuses flared & set me way back. I've had a horrible headache for days now. Feeling so rotten physically certainly has not helped my psychological state at all either...

And to top it all off, my pain has been really bad lately too. Today was one of the worst days I've had in months (probably the worst day pain-wise since I got my stimulator in July). I was back up to my old "normal" 8/9 today.

Unfortunately, I can't turn the stimulator up too high during the day/when I'm working because it causes muscle contractions in my face/eye. Usually it's not a big deal, because the lower settings still help enough to get me through the work day, until I can get home & turn up the stimulation. But today, the stimulator felt totally useless.

I felt like I was going to pass out from the pain. I don't know how I made it thorough the day, but I did, and soon as I got home this evening, I cranked up the intensity real high & played around with some of the settings, and almost immediately my pain went down from it's 8/9 to a 5! If I ever had any doubts about the efficacy of my stimulator... I am so thankful for my stimulator, because even pain meds were never able to reduce my pain that much.

Well, the pain is creeping back up again now (back to a 6.5/7), so as soon as I finish writing this/head off to bed, I'm going to turn up the stim some more & hopefully that will bring me back down to a 5 or less. I still have it set low enough now that I can still use my eye to some extent.

I'm really hoping that this week turns out better than the last. At least I don't think that it can get much worse. Nothing too exciting planned, except Friday. On Friday, my mom & I are going to NYC for the day to go to a taping of the Dr. Oz show!! I'm so excited! I love Dr. Oz & it should be a real fun "girls day out" with my mom -- something we haven't done in a long time. I just hope that I am feeling better (both physically and psychologically) by then, or it could be a long day. I've never been in the audience of any tv show before, so it will be interesting to see what happens behind the scenes!

Hugs to all. Hope you all had a better week last week than I did & best wishes for a good week this week!

Skeye
chronic eye pain, depression, and anxiety
recently implanted with a neurostimulator with leads on the supraobrital & infraorbital (ophthalmic) branches of the trigeminal nerve, resulting in a 50% decrease in pain (yippee!)

MIKEL99
Veteran Member


Date Joined Feb 2010
Total Posts : 914
   Posted 10/19/2010 4:15 AM (GMT -6)   
Still waiting for a copy of my birth certificate so I can get my drivers license , which I haven't had since 1987 !!! So I sent for it air express but its the people who search for your records and make a new certificate that are holding things up . Pain in the hip is virtually non-exsistent , now I have pain in the right knee and heel , oh its great !!! Geez I'm hoping its not serious but I feel I'll need more surgery eventually so I'm trying to enjoy this respite . For now its a whole lot better than it was . Mikel
HIV+. meds - epzicom, Kaletra . oxycontin as needed , indothemiacin . hip replacement surgery done !!! Staples out , saw the surgeon he says I'm healing really well , I go back in 2 months . Until then its physical therapy galore !!
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, April 22, 2018 12:38 AM (GMT -6)
There are a total of 2,954,145 posts in 324,083 threads.
View Active Threads


Who's Online
This forum has 162139 registered members. Please welcome our newest member, debg.
219 Guest(s), 3 Registered Member(s) are currently online.  Details
alunke82, Girlie, ltc1225