Pain from Crohn's

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Medicalkid2
Regular Member


Date Joined Oct 2010
Total Posts : 147
   Posted 11/7/2010 4:20 PM (GMT -6)   
I have crohns. Recently the pain I have has been pretty bad. None understand this, I had to call in sick for work twice (I'm 17 not so bad yet) and none of my bosses understand that even though I'm smiling and happy doesn't mean That can't change or im not in pain. I almost always have pain, many of you guys understand getting used to it but recently it's gotten worse. Had blood tests done nothing showed up so the doctors have no answers because as far as there concerned it's not there.**************************** hyrdrocodone (usually 5 or 7.5mg) if it gets bad like the last few days. I've posted allot in the crohns section as well. The pain I experience is different this time because I don't have any changes in bowel movements but I have increased abdominal pain and lower back pain as well joint pain (though the joint pain could be growing pain)...I literally sit down, lay down, stand and can't find a position that is comfortable :/. Sometimes I'm just mildly uncomfortable and it's fine but sometimes like now I'm sitting here just in a horrible mood. I want to talk to my GI doctor who I have an appointment with in 2 weeks about the pain but there's a few things that concert me:

- I'm 17 and I'm on Ativan and focalin...that seams like it raises allot of red flags I know. I feel like my doctors think I'm too needy or drug seeking I'm not sure but I'm sick of down playing my issues
- even though I don't have any bad GI symptoms I still have pain. I'm so nervous that they are going to literally every gi test AGAIN and of course come back with nothing. I missed allot of school as a result of that (had best grades ever though!) and lots of excess anxiety. I don't want to go through that again. Additionally I'm not interested in immunosuppresants remotely. I think I might bring up prednisone to see if that helps. Last GI appointment he wrote me a prescription for bentyl which has done nothing but constipate me both now and in the past.

Anyways I figured I'd post in here since I've been reading on this section and noticed a few of you crohnic pain patients have crohns. Just looking for advise and well relief. To be honest I am hesitating to even post this because I never like complaining until it gets bad and I'm almost tempted to yet again down play my pain because fear of the unknown I guess. Anyways like I said I'd greatly appreciate any advice :)
 
Dear Med,
 
     I have edited a small portion of your post. Reason for doing so as follows..
 
     1. No discussion of any illegal activity or threats of violence. (ie. illicit drug use or exchange, threats of suicide or self-injury, or threatened or intended physical harm).  Discussions of suicide or self-harm that are deemed negative and therefore potentially injurious to others are also not permitted.
 
     Thank you,
        Dani Henson
 

Post Edited By Moderator (Dani Henson) : 11/8/2010 8:39:27 AM (GMT-7)


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 11/7/2010 5:30 PM (GMT -6)   
 
   ******************************************
 
   Much more importantly if you are having lower back pain without an increase in Chron's activity it is time to see a rhuematologist to at least rule out AS. Many people with one autoimmune disorder have more than one. Please see a rhuemy, and tell him/her about the type, amount and severity of the pain. They may be able to give you something that is less problematic they hydrocodone but more effective then tylenol.
 
Dear SK,
 
     I have edited a small portion of your post. Reason for doing so as follows..
 
     1. No discussion of any illegal activity or threats of violence. (ie. illicit drug use or exchange, threats of suicide or self-injury, or threatened or intended physical harm).  Discussions of suicide or self-harm that are deemed negative and therefore potentially injurious to others are also not permitted.
 
     Thank you,
        Dani Henson

Post Edited By Moderator (Dani Henson) : 11/8/2010 8:44:03 AM (GMT-7)


Medicalkid2
Regular Member


Date Joined Oct 2010
Total Posts : 147
   Posted 11/7/2010 6:03 PM (GMT -6)   
Somebody said...
************************************************

Much more importantly if you are having lower back pain without an increase in Chron's activity it is time to see a rhuematologist to at least rule out AS. Many people with one autoimmune disorder have more than one. Please see a rhuemy, and tell him/her about the type, amount and severity of the pain. They may be able to give you something that is less problematic they hydrocodone but more effective then tylenol.

************************************** I receive no "high" from them I receive pain relief. Considering I can't take NSAIDs, tramadol, or codeine I'm not sure what else to do. If I take Tylenol I seriously do not notice a difference in pain relief it's frustrating to know end and it's always been this way when I've had pain in the past. I do not see how hydrocodone is "problematic" unless your implying I have drug seeking behavior. Regardless I respect your opinion and warning and I will reframe from doing so in the future.

My mom has an autoimmune disorder as well, not crohns...there is basically no opening for a rhuemetologist...at least not in the area for about 5 months (that's the wait time). That said it's possible that it's related and I suspect that's the case. I'm supposed to see my internist yet again tomorrow. Both my GI and Internist said my joints were fine and my blood tests came back fine that includes the c reactive protein test that shows increased signs of inflammation. My doctors probably think I'm A) crazy, B) drug seeking. Rightfully so if I was a physician I'd probably stay the hell away from me. I'm just frustrated now.
 
Dear Med,
 
     I have edited a small portion of your post. Reason for doing so as follows..
 
     1. No discussion of any illegal activity or threats of violence. (ie. illicit drug use or exchange, threats of suicide or self-injury, or threatened or intended physical harm).  Discussions of suicide or self-harm that are deemed negative and therefore potentially injurious to others are also not permitted.
 
     Thank you,
        Dani Henson
 

Post Edited By Moderator (Dani Henson) : 11/8/2010 8:45:14 AM (GMT-7)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/7/2010 6:52 PM (GMT -6)   
First, taking another's percription medication is illegal and therefore against the forum rules.

Second, just ask for pain management, the worst they can say is no.  But they have to have a good reason.
 
Make sure your Mom or some other other adult goes with you to your doctor's appointment so they can advocate for your pain management.  Just tell them that you are willing to go thru (and actually be) whatever hoops you need to in order to cover the doctor's six.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 11/7/2010 5:55:19 PM (GMT-7)


Medicalkid2
Regular Member


Date Joined Oct 2010
Total Posts : 147
   Posted 11/7/2010 6:59 PM (GMT -6)   
Somebody said...
First, taking another's percription medication is illegal and therefore against the forum rules.

Second, just ask for pain management, the worst they can say is no.

I'm sorry I'm just miserable at the moment. Like I said I'll reframe from doing so in the future. And what do you mean ask for pain management? Like ask to see a pain doctor? I'm confused by that confused

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/7/2010 7:19 PM (GMT -6)   
Tell your doctor your symptoms (such as do you have burning gut pain, joint pain, etc) and ask for pain management. It would be great if your primary care could do it, but you understand that there are hoops you may have to jump through to get it, but you need pain management now, and I do not think it is unreasonable that you have pain management as crohns can be like a constant chemical burn and also constant aching joints. I would wonder about your "A.N.A." test? So that might be a blood test to ask for.
 
I would also say that do not overdramatize things, because doctors use that one to 10 scale to justify using pain meds.  So when you answer 9,000 (even if it is true) that does not help them and in fact pisses them off.  Answer within that 1-10 scale, 5-7 would be a new uncasted compound fracture for me. 8 I am asking them to put me in the hospital. 10 I am passing out.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 11/7/2010 6:53:25 PM (GMT-7)


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 11/7/2010 7:31 PM (GMT -6)   
 
    If you are in pain, you have a right to ask for your own prescription of an appropriate pain medication. ******************************************* I understand you are in pain, I have an AI disorder as well-they are miserable and poorly understood.
Five months to see a rhuemy is really a long time-that stinks.
Can your internest at least run the tests? Even if all the tests have been run before, you have new symptoms now and the test results can change. I know. I was RF negative for six months but sick as a dog-then one day my test was very positive. For some reason for most docs that positive test matters-but you are just as sick, and sometimes more so, in the months before the blood work changes.
I hope you are able to find someone who understands what your are going through and is willing to treat you appropriately.
 
Dear SJ,
 
     I have edited a small portion of your post. Reason for doing so as follows..
 
     1. No discussion of any illegal activity or threats of violence. (ie. illicit drug use or exchange, threats of suicide or self-injury, or threatened or intended physical harm).  Discussions of suicide or self-harm that are deemed negative and therefore potentially injurious to others are also not permitted.
 
     Thank you,
        Dani Henson

Post Edited By Moderator (Dani Henson) : 11/8/2010 8:47:48 AM (GMT-7)


Medicalkid2
Regular Member


Date Joined Oct 2010
Total Posts : 147
   Posted 11/7/2010 8:42 PM (GMT -6)   
Somebody said...
If you are in pain, you have a right to ask for your own prescription of an appropriate pain medication.********************************************* I understand you are in pain, I have an AI disorder as well-they are miserable and poorly understood.
Five months to see a rhuemy is really a long time-that stinks.
Can your internest at least run the tests? Even if all the tests have been run before, you have new symptoms now and the test results can change. I know. I was RF negative for six months but sick as a dog-then one day my test was very positive. For some reason for most docs that positive test matters-but you are just as sick, and sometimes more so, in the months before the blood work changes.
I hope you are able to find someone who understands what your are going through and is willing to treat you appropriately.

I actually had blood test done this week...Im not sure what they specifically tested for but everything came back normal (c reactive protein, billrubion that type of thing). My internist could probably run any test if needed and at this point I'm totally open to it. The ONLY reason I'm curious about narcotics is because when I'm in pain I want to function, I miss lifting weights, and not laying down all the time. That said I'm really not interested in everyday use of something like oxycontin, I know some people who have AI disorders and it works for them but being doped up all day is hardly interesting. I'm pushing to become a doctor so ive literally read countless things on various disorders because it interests me but in the process learned some things that might apply to me as well. I'm glad you understand my pain though I appreciate it, if you haven't noticed I'm a little bit grumpy tongue smilewinkgrin cry

EDIT: I just talked to my uncle who's a sports medicine doctor and he discussed it with his wife who's an anesthesiologist and they both agreed with the use of the narcotic and that I should get my own prescription for obvious legal reasons. Unfortunately he does not live in the same state but he wants to confere with my doctors about the pain management. I'm pretty happy this will all work out.

Post Edited By Moderator (Dani Henson) : 11/8/2010 8:49:10 AM (GMT-7)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/7/2010 9:01 PM (GMT -6)   
ANA is not a normal test that they run.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…

Medicalkid2
Regular Member


Date Joined Oct 2010
Total Posts : 147
   Posted 11/7/2010 9:04 PM (GMT -6)   
Somebody said...
ANA is not a normal test that they run.

Hmm can you explain the specifics? I'm curious I might ask for this,more diagnoses might explain my pain to doctors.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 11/7/2010 9:18 PM (GMT -6)   
I do not know what to explain about but here is a link that might cover more then I could:
http://www.mayoclinic.com/health/ana-test/MY00787
 
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…

Medicalkid2
Regular Member


Date Joined Oct 2010
Total Posts : 147
   Posted 11/8/2010 3:37 PM (GMT -6)   
MMMNAVY said...
I do not know what to explain about but here is a link that might cover more then I could:
http://www.mayoclinic.com/health/ana-test/MY00787

Thank you I appreciate it.

Medicalkid2
Regular Member


Date Joined Oct 2010
Total Posts : 147
   Posted 11/9/2010 3:40 AM (GMT -6)   
Well i woke up at 145 with even worse pain and some constipation. :/ im currently in the ER. Drinking some orange drink for the CT scan. They gave me 10mgs of IV morphine feeling allot better just hoping praying my CT scan sheds some light :/
Medication (fiber and probiotics too)
Pentasa 1250mg: for Crohns disease
Fluoxitine 40mg: for crohns and anxiety
Ativan 0.5mg: PRN for insomnia related to anxiety
Focalin XR 20mg
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