Just got out of the hospital, not a good year.

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BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 11/9/2010 7:46 PM (GMT -6)   
Hi to all who remember me. Haven't been around b/c very sick and in the "Bell Jar" (big ups for all who get that reference). Well, as some of you may remember I have serious bowel disease and in Sept. my stomach just started rejecting food and liquids, couldn't eat for two weeks so was hospitalized and now sitting here trying to recuperate but food still makes me sick--I absolutely have no appetite, no desire to eat, probably b/c anytime I put something in I have really bad pain and I'm totally turned off of even looking at food. Anyway, have had every test imaginable and GI cannot find a reason my stomach is rejecting nutrition, i.e. infection, obstruction, cancer, whatever.
Fifteen years, 15 yrs, 15 yrs and getting worse. I'm SICK of appointments, tests, meds, the well intentioned advice from people who think if I just tried this or that things would get better and I'm sick of my GI MD who is too proud to admit she just doesn't know, that science is not that advanced in this area--she actually suggested that depression may be the reason I'm not healing; yeah, I'm depressed, who wouldn't be, my life SUCKS right now! I have no energy, I take a shower I have to sit down for a half an hour to regain strength.

Oh, and weeks of intravenous pain meds I received in the hospital have been a joy to come off of--even though I take oral pain meds, not the same at all. Whew, thanks to anyone who reads this.

Medicalkid2
Regular Member


Date Joined Oct 2010
Total Posts : 147
   Posted 11/9/2010 8:48 PM (GMT -6)   
Well feel better. I just got out of the hospital...it seams 4 going on 5 doctors don't know what the hell is wrong with me... >:(
Medication (fiber and probiotics too)
Pentasa 1250mg: for Crohns disease
Fluoxitine 40mg: for crohns and anxiety
Ativan 0.5mg: PRN for insomnia related to anxiety
Focalin XR 20mg

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9664
   Posted 11/9/2010 9:18 PM (GMT -6)   
Big Lucy, everyone was thinking of you, so you we're missed.
I sure hope that your feeling better soon, please keep us posted on how your doing okay, we
care about ya...
Prayers and healing hugz
((((((((((((((((((((((((((((((((((Big Lucy))))))))))))))))))))))))))))))))))))))))
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

mylifewithfibro
Regular Member


Date Joined Aug 2010
Total Posts : 101
   Posted 11/9/2010 11:37 PM (GMT -6)   
Hi BigLucy I hope you find some comfort soon i hate hearing that so many of us suffer so much and sometimes a doctor cant even figure out whats wrong with us. Anyways just wanted to say hope you feel better.

Stacy
Dx: Fibro, IBS, Severe Migraines, Chronic Fatigue Syndrome, High Blood Pressure, Low vitamin D levels, Anxiety/Panic Attacks, Severe Depression, ringing in the ears, dizziness, impaired coordination, constant chronic pain all over my body.

Meds: Lyrica 75 mgs twice a day, Neurontin 600mg 3xs a day lunesta 3 mgs at bedtime, NUCYNTA 100mg 1 Tablet 4x's a day

BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 11/10/2010 1:20 AM (GMT -6)   
I should check in more, but I get very overwhelmed with my life being all about my illnesses; b/c I've been sick so long I like to ignore it as long as possible--does that make sense?

BTW where is PaLady, she is always one of the first to lend her support. Nothing happened while I was on my holiday from the forums?

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/10/2010 3:40 AM (GMT -6)   
Lucy!
You won't believe it but I've not been posting or even logging in or reading in a long time myself, and partly for some of the same reasons you mention (a Bell Jar of my own making - ah, dear Sylvia). A few others, but I'm too tired to even post an update thread these days - so I get it.

And I can't believe I clicked on HW tonight and your post was first. So there must be some synchronicity involved here for sure.

I'm so sorry to read all you've been through and wish I had some great idea to suggest....a major teaching hospital (can't remember if you've already gone that route)?

Hope I'm making sense. I don't know if I'll be doing any regular posting, but I'm so glad I saw this.

I will be thinking of you for sure.

((((((((Big Lucy))))))))))
PaLady

Áthas
Regular Member


Date Joined Aug 2010
Total Posts : 55
   Posted 11/10/2010 7:10 AM (GMT -6)   
BigLucy, I'm sorry for what you've been through. I can imagine you're sick of all that. Is there anything you can eat or something rich in calories you can drink? I was just thinking that it's probably not good for the body if it doesn't get nearly enough food.

Retired Mom
Veteran Member


Date Joined Feb 2010
Total Posts : 1753
   Posted 11/10/2010 7:59 AM (GMT -6)   
Big Lucy,
 
I'm so sorry you have been so ill.  Food is such a comfort for so many of us (too much I'm afraid) and for you to be denied even that small pleasure is horrible.  Pain and exhaustion, hospital stays and smells, and then the switch from IV to oral meds.....my friend, you have had too much for any one person.  I sincerely hope you will find the answer and that you will regain your strength soon.
 
 
All my best!
Retired Mom

MsBunky
Veteran Member


Date Joined Jan 2010
Total Posts : 1097
   Posted 11/10/2010 8:20 AM (GMT -6)   
BigLucy, I can completely relate to your food issues. For the past 3 months, I have mostly eaten yogurt with flax and pumpkin seed granola, and ice cream. I look at other food and my stomach turns, I try eating stuff I've always loved and I can't stomach it.

Even on Thanksgiving, when I smelled the turkey, I was overcome with nausea, and had to get my hubby to finish making the meal. I LOVE Turkey!!!!! I especially love turkey the day after, and yet this time, I had to leave the kitchen - I just couldn't handle it.

I hope that you quickly regain your appetite and that you are able to start getting more nutrition into your body. Please watch out for your health as best you can, and take advantage of any and all services offered by your town/city in regards to getting baby clothes, diapers, etc.

I am praying for you!

Hugs,
Pam

BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 11/12/2010 1:58 AM (GMT -6)   
Oh PaLady I knew I'd hear from you AND knew you would get my reference, Sexton is also a fav (what does it mean that I have an affinity for depressed poets who die tragically?)--So it's come down to lurking around like I do, I do stop by on occasion but get overwhelm easily, for me, for everyone living this life. I do think of you, as well as others, that I've come to "know" isn't it funny to have affection for people you've never met before.
I know many of you can relate to my latest struggle: my mind is very active, sharp and wants to go, but the body is sick, tired and needs to rest, feel trapped inside of this vessel and very frustrated. I'm on leave from work right now and all my days are spent in bed, on the couch or at the doctor's, whew I'm bored. Soooooo, tired of T.V., I'm an avid reader and couldn't for awhile because lack of concentration and severe pain, but at least this week I'm able to manage it a little better.
For those who suggested eating ice cream, the last time I was hospitalized I ate a lot of it for approx. six months after b/c it was one of the only thing I tolerated and my cholesterol shot up 50 points--you just can't win--so I'm not going that way again. Chocolate pudding w/bananas seems to be my ticket right now--not too bad.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16768
   Posted 11/13/2010 3:36 PM (GMT -6)   
Hi Big Lucy, oh my heart goes out to you and I do understand where you are coming from. I have both crohns and UC, food is my enemy in many ways. If it weren't for Zofran for the daily nausea I am not sure what I would do. Its like you can never catch a break I do know that. Please take care of yourself. Chocolate, oh I love it but it does not like me, total misery. Sometimes I crater and eat a little of it and you are lucky you can tolerate dairy. Please take care.
Moderator Chronic Pain Forum

PAlady
Veteran Member


Date Joined Nov 2007
Total Posts : 6795
   Posted 11/14/2010 4:34 AM (GMT -6)   
Lucy,
Just wanted to let you know I was thinking of you. My brain is fried but that seems like more the typical state of affairs anymore. I wonder how you're feeling about going back to work FT. Do you think you can handle it? Hopefully, you won't be going back until a lot of things stabilize.

Hugs,

PaLady

BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 11/14/2010 11:20 PM (GMT -6)   
Straydog- just prescribed Zofran and is working wonders. How long have you been taking it and any long term SE?

Going back to work after a major health set-back is tricky. My mind is ready, well, for the most part, but there's the anxiety of what if this time I won't be able to do it. I'm hoping to stay out on medical leave until the first of the year, a friend suggested that I should have a couple of weeks of very good weeks before I attempt FT work, which makes sense; I'm still having to rest after showering so not that far along if I'm being honest about the whole thing. Being able to walk the dog around the neighborhood would be great, but that will take some time to work up to, some days are better than others, but.....

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16768
   Posted 11/15/2010 9:00 PM (GMT -6)   
Lucy I have been on Zofran for about 4 years and it is a wonder drug for me. Use to only cancer people could get Zofran. I have not had any problems with it either. Believe me if anyone was going to react to it, it would be me, I do not tolerate medications well at all. It is very expensive but I have a script card for that. It says it can cause dizziness or drowsiness but that has never happened with me. Keep in mind if this happens to one person and its reported they have to list it as a potential side effect.

Another thing I will pass on to you is when I have to be TPN, while hospitalized my gi orders these drinks for me called Breeze's, I believe is the name. They are a fruit type drink and very, very good tasting. They are made by the people that makes Boost. I cannot stand Ensure or Boosts, none of those creamy type drinks. I cannot find these in the stores but I go online and order them. They are a little pricey but well worth the cost. They have lots of good nutrients in them. Best when ice cold. You can do a google search for Boosts and get their site and order from there by the case. I am never without them because there are just too many times when I cannot eat solids.

I hope you are able to stay off till after the first so that you can get yourself built back up. It is so hard trying to work and be sick at the same time. Crohns is what put me on SSD. It is a wicked disease for sure. Take care.
Moderator Chronic Pain Forum
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