whats been happening in my life..

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Date Joined Jul 2010
Total Posts : 200
   Posted 11/10/2010 10:46 AM (GMT -6)   
Sorry I Haven't been posting much lately..

Been having a pretty rough time. Been in so much pain and just finding it hard to even think lately! I can't remember half of what has been happening..

My stomach pain has gotten alot worse, turns out I have another internal bleed in the same spot but nothing obvious causing it, the blood vessels just seem to be bursting.

I've been very weak and tired constantly and increasing every day.. and can't sleep much at all from the pain and just feeling sick.. Get about 4 or 5 hours a night and have to then go to school which tires me out so much.

My heart has been going crazy.. pulse rates been up the whole time from the pain but also has been beating irregularly because i have a heart problem but seems to be worse at the moment, not sure exactly why.

My reflux has increased and I am constantly coughing and wake up in the night choking.

I have been getting erythema nodosum (something i have had since i was 8 that should have stopped by now but hasn't) all over my arms and legs which just makes me even more run down

I have been diagnosed with ME (Myalgic Encephalomyelitis) and feel awful.

I have also stopped getting my period, the doctor says its because my bodys working so hard it just doesn't have the power for anything else..

Long story short, i feel so run down and tired and in so much pain at the moment and we still don't know what all of this is, we are waiting for a test to come back.. that should tell us more! for now i guess i just have to hang in there!!

I've been pushing myself through and going to school most days because i don't want to miss much or it will just make next year hell! Did most of my exams, got 87% for science, 76% for maths and 92% for englisih so not tooo bad :) But i've now only managing doing 3 hour days at school otherwise i start fainting and throwing up from the pain and exhaustion..

Don't really know what I'm meant to do if we still can't find answers.. its not just a case of pain and nothing else.. because i start fainting and vomiting in public when i push myself too hard.. and it is so embarrassing as you can imagine!! If it was just pain I could push through until weekends.. Does anyone have any symptoms like me or any advice on how to stop the vomiting and fainting? My doctors said they can up my meds for pain but they screw with my head so much I don't think i want to.. It will make school even harder and concentration and memory impossible!!

Thanks so much everyone and please know I am thinking of you and hopefully soon will be able to postmore often!

I miss you all.. I would love to get emails from you guys, its easier for me to keep in touch via email :)

Hugs to you all

xx Buttercup

Monty's Mom
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Date Joined Aug 2010
Total Posts : 664
   Posted 11/10/2010 1:40 PM (GMT -6)   
I am so sorry that things still are not getting better for you. You have been through quite a lot lately and it stinks that you still don't have answers and are having new things come up. You are in my prayers everyday, even if you or I don't post.
As for the fainting and vomiting after pushing yourself too much I have no advice. Unfortunately I suffer from the same issues. My doctors say the same that upping my dosages would help, but for me that opens up more fuzziness and vomiting which makes the day just as hard to get through. I wish I could give you a remedy or  advice, but all I have is an ear to listen and let you know you are not alone in your struggles. I find that I rest more often than I do anything else in life.
My heart goes out to you. Just keep doing what you can to keep your spirits up.

Retired Mom
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Date Joined Feb 2010
Total Posts : 1753
   Posted 11/10/2010 4:15 PM (GMT -6)   
Buttercup, I think of you so often and hope you are doing better.  Apparently we are are like so many others and still have no relief.
I don't understand much about your school system, but many here in the States will send a special teacher to your house instead of you going in to the classroom when you have problems as severe as yours.   It may be something worth checking on because you would not have to worry about the other students and fixing up or things like that.  School can be done from home in your PJ's if you feel like it.  There are so many options here.  I just don't know what is available to you there.
I have no idea what is going on with you medically.  I can't understand why the Dr's can't find out what is wrong.  I would suspect is was some very strange diagnosis that very few people have.  I'd honestly do as much internet research as I could to see what specialists think.  That was how I found out why my babies were not living in the womb.  After finding a Dr. in New York City, I found a specialist here who worked with her as a research partner.  Now I have an 11 year old daughter (absolutely perfect to me in every way).  I would have never found the answers unless I did the research because the Dr's here made fun of me and told me to "quit reading that junk".  It saved my child's life and I will always advocate for doing research on a medical condition if at all possible.
Keep the faith my friend....I am keeping you in my prayers.  There must be a solution for you somewhere.
Retired Mom

Mrs. Dani
Veteran Member

Date Joined Jun 2009
Total Posts : 2787
   Posted 11/11/2010 11:41 AM (GMT -6)   

Oh ButterCup,

   *Warm hugg* Don't feel embarrassed. Please. I know how hard it can be when you vomit and then pass out (I have seizures and pass outs). But, the people around you when it happens are concerned because they don't know how to help. When I would "pass out" I could hear everything going on around me. I would always think "goodness, I wish they would calm down out there!".

    I am so sorry you have been diagnosed with chronic fatigue syndrome. In all reality you are worn out in only a few hours times. This diagnosis will help your other doctors to quickly know what your other symptoms are. This way you don't have to talk about how tired you are, how little you sleep, how little energy you have. Just say it in one word instead of 15-20min of explanation. Then you can spend time talking about the really important stuff like your pain, stomach, nausea....

     You know, it took nearly 30 years for before a "team" of doctors put the pieces together to realize I have inherited Hypoparathyroidism. It wasn't until my "rate 0.0025" AND the "Hypoparathyroidism" began taking over my body that they "figured it out". I have had cataracts my whole life. It was something I knew about, but it had been that way my whole life and it never bothered me that I couldn't see. I have had seizures my whole life, but it never bothered me. I would just say "Oh I waited to long for lunch" or "Oh I got up to quickly". I had no idea that wasn't normal. My hands and feet would tingle all over my whole life and I seriously thought that was what people meant when they said "My foots asleep or my leg is asleep".   I even keep two full book cases of collage text books so I can look up the things I forget. I had no idea that "I forgot" was different from "I have no memory".   rolleyes   I know, silly hua? My point to all of this is.. Even if they do not find out today, or tomorrow we still have to keep praying and keep hoping that they will find out what is going on at some point. Don't be discouraged. Things will come to light eventually. You are doing a great job and giving each day all you have to give!

    I don't want you to worry about only doing three hours of school. In all reality that 3 hours is more work on your body, than a "normal" persons full day of work on their body. Your doing your very best!

     Has your parents thought about sending you to a pain psychologist? Someone you can talk to about the "medical stuff" that is happening in your life? If not, you might want to approach your parents about it. Even just a counselor. Sometimes it helps to be able to talk to someone about all the scary medical stuff. Might even want to find out if there is a young group for chronic patients at the community center or university hospital.  

    I hope by now you are resting up. And remember, don't worry about the little stuff. Just focus on you! Please, know you are in our hearts and prayers.

*warm hugg*

TWO roads diverged in a yellow wood
And sorry I could not travel both
And be one traveler, long I stood

Chronic Pain Moderator

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Regular Member

Date Joined Jul 2010
Total Posts : 200
   Posted 11/16/2010 6:33 AM (GMT -6)   
Thanks for the replies guys, really helps :) and dani thankyou so much i will take your advice!! Got a call from the doctor saying he has some results back and needs to see me as soon as he can so we are going in this thursday!! Fingers crossed its nothing to worry about.



Veteran Member

Date Joined Sep 2009
Total Posts : 663
   Posted 11/16/2010 7:12 AM (GMT -6)   
Hey Buttercup, I just wanted to let you know that you remain in my thoughts and prayers. I feel so sad when I think of the pain you have to deal with at such a young age. You are one tough cookie! Please let us know what the doc has to say on Thursday, ok? Fingers and toes crossed.
Gentle Hugs,

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Percocet, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 11/16/2010 10:17 AM (GMT -6)   
Buttercup, fingers crossed for you and please keep us posted on the results.
Prayers and healing Hugz
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

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