sustained release med ?

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spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 11/11/2010 12:55 PM (GMT -6)   
i would like to take advantage of all you alls knowledge and experience. i am trying to get myself on a long acting opiate that works well and i'm blessed enough to have a MD that is working with me. i have tried everything for a short time in the past and right now i am using morphine sulfate CR generic by watson 100mg 3/day. it is not giving me pain control like i think that dose should. i don't do well with metadone but other than that can anyone tell me what they think about ORAMORPH SR or OxyContin or the fentanyl patch or anything for long term pain control. at this point cost doesnt much matter. i use dilaudid 8mg for brkt. q6hrs and it seems i am needing most all the doses throughout the day. i would very much appreciate your advice or opinion and i hope a pain free day for all of you.

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 11/12/2010 12:10 AM (GMT -6)   
Hi Spinal Soldier!

Nice to meet you! I take oxycontin and have for several years. I have also tried the extended release morphine and didn't find it near as helpful. If your doctor is willing to work with you it's something you might want to try. I also take percocet for B/T pain.

From the sounds of it, you are aware that no medication is going to make our lives totally pain free. The hope is to be comfortable enough to live with the reduced pain. For the most part oxycontin does this for me. Also I'm guessing you've built up some resistance to the pain medications you take since your doses aren't real low plus dilaudid is a very strong medication.

One thing to think about is that changing medications "can" help bring that resistance down...sometimes. But if all of these different med's you take act on the opioid receptors in the body then it might not make a difference. It's something worth talking to your doctor about.

I hope you can find some answers and ideas that help!
Chutz
Moderator on the Fibromyalgia and Chronic Pain forums

“If you want to live a happy life, tie it to a goal, not to people or things.” Albert Einstein

stingray
Regular Member


Date Joined Oct 2009
Total Posts : 175
   Posted 11/12/2010 12:48 AM (GMT -6)   
Hi Spinal Soldier

I"ll relay my experiences and hope it's helpful in some way. When my back pain started to get bad I used percocet and it was a dream drug to me, but like most people I soon found I needed more to do the same job. I tried the patch which seemed to work well but for only 2 out of the 3 days it says it covers. I also took the percocet at the same time for break through pain. Than I had a spinal fusion done and after a few days out of the hospital my family doc at the time refused to give me anymore pain meds saying I shouldn't need them..Still had the staples in my back and after years of taking pain meds I found it very difficult to stop cold turkey. Fortunately I managed to get through it and did pretty well for a while. Long story short I developed problems a few weeks later and the pain was back only constant instead of periodic like before the surgery. I was put on Oxycontin but found it didn't provide near the relief the same mgs of oxycodone did. Since then I have tried time relief morphine, hydro morph, dilaudid, with little to no success, so back to the Oxycontin and oxycodone. Since the oxycontin doesn't work well for me I take mostly oxycodone in large amounts and just take the oxycontin at night. I guess the best thing I can tell you is to try and be patient and it's just a matter of trial and error to get the right combination that will work for you. Having an understanding doc is worth his weight in gold. Don't think this helped much reading what I wrote but at least your know your not alone. I wish you all the best and hope you find a combination of things that will help real fast. Take care spinal soldier and keep us up to date on how you make out.

.Stingray (Randy)

Post Edited (stingray) : 11/11/2010 11:52:39 PM (GMT-7)


BigLucy
Regular Member


Date Joined Mar 2007
Total Posts : 413
   Posted 11/12/2010 1:46 AM (GMT -6)   
Opinion: Oxycontin is much more effective than Morphine. Your post states you are on very high doses of meds and I'm speculating that this may be a tolerance issue which you should discuss w/your MD, b/c even at max mg there will be no such thing as total pain relief. Are you supplementing your meds with other things such as, meditation, mind-fullness, behavioral changes, breathing exercising, CBT techniques, yoga/stretching for stress relief (these are things that assist me, of course you would have to find what works for your particular situation). When I'm able I enjoy going to a dog park and watching dogs play, very zen/peaceful--this is my favorite.

It's a lot of work this chronic illness thing, isn't it. Good luck to you.

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 11/12/2010 6:38 AM (GMT -6)   
I am also taking oxycontin. This has turned out to be my miracle drug. It is the only thing that has ever gotten my head pain under control! I have been on it for about a year and a half now and it still works wonders. I do have percocet to take for B/T pain, but try to not take too many of those.

Some days are still better than others, but at least I have some quality of life now. Good luck in your search for a new med. I hope you get relief soon. Take care!
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Percocet, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

Monty's Mom
Veteran Member


Date Joined Aug 2010
Total Posts : 664
   Posted 11/12/2010 6:44 AM (GMT -6)   
I am on the fentanyl patch and love it! I don't have the ups and down rollercoaster ride of pain, and notice when a new patch is due. I use very little of the breakthrough meds, and it is simple to stick it on and leave it. I still have bad days, but much less than before. Some people have problems with it sticking to their skin, but some waterproof first aid tape keeps it on for quite some time!

I do have some issues adjusting when starting the patch or increasing the doseage. It causes me nausea and drowsiness, but I have this with all pain medications and some depression medicines. Morphine CR did not help me as much as the doctor's had hoped and caused other issues also, and it took almost 2 years to find a mix of meds that worked well for me!

Good luck on your search for relief. I will be praying for you

Mindy
The worst sin towards our fellow creatures is not to hate them, but to be indifferent to them. That's the essence of inhumanity. George Bernard Shaw


Pelvic adhesive disease, Irritable bowel syndrome, SI joint pain, 7 pelvic surgeries for pain, ovarian cysts, adhesions, and a kidney stone! Wait, future medial transcriptionist I must say ureteral calculus!

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 11/12/2010 10:25 AM (GMT -6)   
first off thank you all for taking time to give me some advice and i think you'alll are cool folks and even with the levels of pain we live in still you still are thinking about the well-being of others; to bad everyone is not like that but i think once you experience pain on these levels it makes you a compassionate person almost instantly. when i was younger and stupid i thought people were just complaining but when the sciatica hit i changed my tune real quick and apologized to some about my past arrogance. Hi Chutz, its nice to formally meet you. i have read your post for i guess 2 years now and you are a very supportive person and knowledgeable about this chronic pain thing we do. and Stingray your post was absolutley helpful and what you feel kind agrees with everyone else, and i think the Oxycontin/oxycodone may be the top 1-3 pain drugs for the majority. and yes BIGLUCY i try to relax but that is a problem for me, i come from a long line of high strung people so it's hard sometimes and it is a reason my pain increases. i also think i have borderline depression due to chronic pain for going on 10 years and anxiety. Damouthy1 is a name i like. i have recently acquired cervical pain up near c1, c2 and that is almost worse than lummbar and sciatic pain. and hello MONTY'S MOM nice to talk to ya. i can get the darn patch to stick or else that would probably be my preference because it does take out the peaks and valleys. i also am returning the prayer. recently i did the Oxycontin 60mg q12 but i needed q8 and that would have been around 325.00 in co-pay. it did work pretty good and my doc gave a trial Rx so i could try q8hrs and now i can afford it. from the concencus so far Oxycontin seems to work best with people who have tolerance. what do you all think of the new formulation "OP' ONES? i did not have a problem with them but some people don't think they are as good. my typing endurance is running out but ther are now some more questions i have for some of you. thank you so much! and i wish you a pain free day. God bless
L4,L5,S1 bilateral Laminectomies, Foraminotomies 2002
L4-S1 PLIF with instumentation 2008,

current Rx: morphine sulfate ER 10OMg q8 , roxicodone 30-60mg prn,vistaril50mg prn nausea, Lyrica 150mg 2x,Adderall 20mgs 1x A.M. 10mg PM prn, Soma 350 mg 3X, Relafen 1000mg 1x, alprazolam o.5 mg, Supplements: CO-Q10 100mg, Vitamin D 2000IU, Fish-Oil1000mg EFA, B-Complex50 3x/day, GABA 750mg,

damouthy1
Veteran Member


Date Joined Sep 2009
Total Posts : 663
   Posted 11/13/2010 7:16 AM (GMT -6)   
I thought I would put in my 2 cents regarding the OP oxycontin. When I first got them I felt like they took a little longer to start working (like close to an hour as opposed to around 40 minutes for the old version). I could only tell with the morning dose because I wake up in such horrible pain that every minute seems like an eternity! As far as how long they last and how well they control the pain, I feel it is the same if not better.

The reason being is, on my last refill my pharmacist had a few of the old ones left and put them in my script. I use a weekly pill box and as luck would have it, the old ones ended up together. I took all of the OC version over a 3 day time period. By the 3rd day I was in horrible pain. I thought I was just having a bad flair until I took my next dose which happened to be an OP and within the hour I felt so much better!

Don't know if the new ones are actually better or if my body just got used to the new formulation. I know I will make sure I always get the OP's from here on out. That was a horrible experience, the pain was crazy! Good luck with your desicion, I hope you get relief soon. Take care.
Gentle Hugs,
Shannon

Fibromyalgia, Chronic daily headaches, Migraines, Possible Graves Disease, GERD, High blood pressure, Depression and Anxiety

Oxycontin, Percocet, Lopressor, Lexapro, Omeprazole, Promethazine as needed for nausea, Ventolin inhaler and Vitamin D3

spinal soldier
Veteran Member


Date Joined Dec 2009
Total Posts : 687
   Posted 11/13/2010 1:00 PM (GMT -6)   
damouthy1 i remember your post on this suject a few days back because i could have written it myself. i think your exactly right about the OP. i'm leaning to do a trial with them as my first try. what i would love is a med that would cruise right through the night and still be at the normal level in the AM because we surley have the morning exp. in common. technically the oxycontin should still be hangin in there in the morning from the night dose but they don't. Exalgo is my other idea to trial but it is expensive. in the past when avinza was first put on the market the 60mg 1 per day did a half-way good job staying level but the dose of avinza i need now is to much money and i think there are 1 or 2 better products. i hope your morning pain control continues to be successful or maybe you could put a 4-8mg dilaudid or a 15-30mg roxicodone with it. i take a soma first thing also and relafen and adderall 20mg because with the pain meds i still feel drowsy and coffee doesnt do the trick. i was taking wellbutrin 150mg SR for alertness also and i think i may help the pain control also in a direct way. anyway thanks for letting me know i'm not the only one with a identical morning routine.
L4,L5,S1 bilateral Laminectomies, Foraminotomies 2002
L4-S1 PLIF with instumentation 2008,

current Rx: morphine sulfate ER 10OMg q8 , roxicodone 30-60mg prn,vistaril50mg prn nausea, Lyrica 150mg 2x,Adderall 20mgs 1x A.M. 10mg PM prn, Soma 350 mg 3X, Relafen 1000mg 1x, alprazolam o.5 mg, Supplements: CO-Q10 100mg, Vitamin D 2000IU, Fish-Oil1000mg EFA, B-Complex50 3x/day, GABA 750mg,
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