not sure if im in the right place

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Regular Member

Date Joined Oct 2010
Total Posts : 155
   Posted 11/13/2010 2:05 PM (GMT -6)   
hi all,
i cant find anywhere else to put this, so here seems appropriate (SP).

I was diagnosed with fibrocystic breast disease last year, after finding a little lump on the side of one of my nipples. It is very painful and sometimes cant even touch them due to the pain.
My doctor didnt tell me much about it, he wrote it down and told me to look on the net for info on it, which I didnt understand why?!!! Im still struggling to understand what it is exactly and what the dangers of it are? confused

Going by what i have read on the internet, you are suppose to have your breasts checked for any abnormal lumps every few months, i havent had any follow up and I dont actually check my breats for lumps.

I dont know if anyone can help, but i need to see if anyone can help.


Forum Moderator

Date Joined Feb 2003
Total Posts : 15831
   Posted 11/13/2010 2:52 PM (GMT -6)   
Hi Amy, yes I am familiar with FBD and so you know it is a very common condition with women something like 60% of all women have it. It is not a malignant condition, not like breast cancer or anything. I worked with a very young girl that had it severely and bless her heart she truly did suffer. Sometimes a person can get the painful lumps in one breast or both and this little gal when she had bad flareups with it she was unable to wear a bra. One of the best things to do is to avoid all caffeine. Avoiding all caffeine will help reduce getting the painful lumps. Also, the lumps seem to appear more before your period starts too. I am going to give you a web site to go to to read up on this condition I think it will help settle your mind and it gives lots of info. The web site is I cannot believe your dr did not tell you to lay off caffeine, every woman I know that has it, that is the first thing the drs tell them, no caffeine of any kind, it seems to trigger it. Yes, you should do the usual self breast exams anyway just as a precaution.

Take care and I hope you can get your pain down.
Moderator Chronic Pain Forum

Retired Mom
Veteran Member

Date Joined Feb 2010
Total Posts : 1753
   Posted 11/13/2010 4:33 PM (GMT -6)   
Hi Amy,
I'd like the second what has already been said.  I also have FBD, as does everyone in my family.  I had to have a lump removed at 19 because it grew very very quickly, however, I've had no other problems to date and that was over 23 years ago.  You should be doing the self examinations every month (check on the internet for the exact's pretty specific about the best way and the best time of the month).  Other than that, you can monitor some foods you eat and simply relax.  It can be painful at times, but most people I know "outgrew" the pains or had very much relief after the birth of a child.  That is certainly not a recommendation that you get PG, but simply additional information.  I had honestly forgotten about the pain when I first noticed the lumps, but the dr can tell these lumps from anything more serious pretty easily during an exam and you will learn to feel the difference as well.  Always check with the Dr if you are concerned, but please don't let this stress you too much. 
As far as immediate pain relief, tylonol or advil (whichever you can take) will take the edge off and warm damp washcloths can also help.  Just be careful not to burn yourself if you are using this because the area is so sensitive.
Best of luck to you!
Retired Mom

Regular Member

Date Joined Oct 2010
Total Posts : 155
   Posted 11/13/2010 4:56 PM (GMT -6)   
thanks so much for the answers.
straydog, my gp didnt tell me anything about no caffeine all he said was to try taking evening primrose, but i found no relief from that. thanks for the site aswell, thats very helpful. its difficult to tell when my time of the month would be due to having an endometrium ablation, but i have sore breasts all the time, so it does get me down at times. some days arnt as bad as others, but its still there.

Retired mom, thanks for your answer, I have had 3 children and this FBD started after my 2nd, so birth of the babies didnt help at all. I have never examined my breasts, purely and simply because 1. i dont think i will get breast cancer, its not in my family, 2. i dont really know how to do it properly and 3. I kinda feel stupid doing it.

Thankyou for the pain relief options, will deffo try them.

I am a 23yo woman from the UK, my husband is my main carer and does alot for me
DX fibromyalgia, depression, anxiety, fatigue, low energy, panic attacks, OCD, borderline personality disorder, IBS, migraines, fibrocystic breat disease.

Meds Citalopram 60mg, Tramadol 50mg x3
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