New here, posted in fibromyalgia as well.

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breezyP
Regular Member


Date Joined Nov 2010
Total Posts : 85
   Posted 11/15/2010 10:49 AM (GMT -6)   
My nickname is Breezy and I found this site from googling it.

What a tough decision it was on deciding which place to introduce myself as I suffer from multiple issues. My story is a bit long but I thought I would share it and see what kind of insight you all might have for me.

My stats are 5'3 128lbs, age 33 female.

August 20th of this year, I had an altercation where I received a nice whiplash injury. I felt fine for the first 5 days but after that my pain was extreme! I was at the doctors and hospital a couple of times. My doctor put me on all different kinds of medication. methoxisal, percocet, fironol and valium. I had a cervical MRI that showed ligament damage, both old and new, osteophytes and ligamentum flavour hypertrophy. Every single ligament in my neck is damaged except c1-c2. I then had another MRI on my thoracic spine where they found 2 bulging discs at t67-t89 and a mild disc protrusion at t11-12.

My doctor sent me to a spine clinic where I was told the bulging discs would heal on their own but the spine specialist wanted me to see a physiatrist. I seen the physiatrist whom decided to take me off all the other medication and put me on lyrica and tramadol. I hate the medication I really do. I have often wondered if I have fibromyalgia. He put me on an elderly multivitamin and is sending me for a bone scan with spect. He is also sending me for epidural cervical injections but I do not have a date for those injections at this time.

I have suffered multiple other problems and uncommon infections.

vaginal swelling without infection
migraines
IBS
heart palpitations
anxiety
panic attacks

I had a yeast infection in my esophagus which is rarely seen in healthy adults.

I had a head on collision in Nov 2008 which I did suffer a concussion, bruises and ligament damage in my left hip. I never sought out treatment and think Im paying the price.

I have been deteriorating over the last 3 months and I am having a hard time coping. I have 3 children and Im married. I had a life and dealt with pains that I had but I no longer can deal with any pain that comes my way, wether it's mild or severe I can't cope. I don't go out, have a hard time cleaning, cooking and cant walk for long distances. My pain basically is from my jaw to my mid back (just under bra strap) I guess Im just looking for support because when you have a chronic illness or injury people start thinking it's all in your head. That's the last thing I need is for people to tell me my pain isn't real when it really is there!

Thank you for taking the time to read and if you have any questions to ask please feel free. Hope to hear from some of you soon


Cheers, BreezyP

Screaming Eagle
Forum Moderator


Date Joined Sep 2009
Total Posts : 5005
   Posted 11/15/2010 1:45 PM (GMT -6)   
 
    Hello breezyP!
 
      Welcome to the CP forum! You have come to the right place for support, and I'm sure your will enjoy it here. The members are simply wonderful, and of course we all suffer from some sort of chronic pain.
 
       As I read through your history of injuries and health issues, I'm thinking OH MY....this poor girl! shakehead
 
       One med that you mentioned, that I have not seen in 30yrs is Fironol. I had that when they cut out my Wisdom teeth, and it is known to induce amnesia at times. It did for me anyway! wink
 
      I'm not sure who is telling you that your pain is in your head, but I would certianlly shove the MRI report in their face and tell them to read it for themselves.
 
       An Epidural can help some Patients but not everyone, but I would take the opportunity to have it done. I have had success with them in my neck, but then again, it did nothing for my lower back.
 
       The members here know full well what chronic pain is like and can relate with your feelings on this. I have at times call Chronic Pain the Termite Disease, in that while the exterior of the house may look fine, underneath those little critters are wrecking havoc with the structure. shakehead
 
     Again!...I want to welcome you, and please to keep posting here on the forum. We learn from your experiences as well as you do from us. It is all a learning and sharing process.
 
        SE wink       

breezyP
Regular Member


Date Joined Nov 2010
Total Posts : 85
   Posted 11/15/2010 2:19 PM (GMT -6)   
Thank you very much! I have also reposted my information in the fibro area as well. I wasn't sure where to put my "issues".

Has anyone had a bone scan with spect? If so, what are they usually looking for? Or does it depend on your symptoms and results for other tests?

antbuggey
Veteran Member


Date Joined May 2010
Total Posts : 594
   Posted 11/15/2010 3:34 PM (GMT -6)   
Hi breezyP,

Welcome to our forum! I am happy that you found us but sorry that you had the need to look for us! Do not let people make you feel like your pain is in your head! We have all been there but this is one place where everyone knows the pain is real....very real! I can not help with the bone scan questions because I am not familiar with that, but hopefully someone will come on that can! We seem to have everything here in our family! lol

Anyway, I just wanted to welcome you and tell you to stick around....you will like it here! Look forward to getting to know you!

Hugs,
Beckey
Spinal Stenosis L3/L4, L4/L5 & L5/S1 with Nerve Impingement, Fibromyalgia, TMJ, GERD, Severe Depression, VERY Large Cyst Right Ovary causing mild twisting, Small Cysts Left Ovary & 3 Large Cysts Uterus and Possible RA

Medications - MS-Contin, Cymbalta, Famotidine and currently Prednisone

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16019
   Posted 11/15/2010 6:47 PM (GMT -6)   
Hi Breezy and welcome to Healing Well's chronic pain forum. I am glad that you found us but sorry that you have to be here. Everyone here has a story to tell as to what led them to this site, we all suffer with one thing, pain. At least by coming here you will discover that you are not alone in your pain. Pain does have a way of making us feel that way.

You are so right, your old head on collision has a lot to do with what is going on with you today and yes you are sort of paying the price of it again. I am shocked that you did not have a lot of headaches, neck and shoulder pain from that accident. Generally that type of accident will bring on an array of different types of problems. My very first neck problems started from being rear ended while stopped at a red light.

As SE stated many times epidurals can help with a person's pain, then sometimes they do nothing. Its a real crap shoot on whether they will work or not. They are usually done in a series of 3 spread out over a few weeks apart. I do not see that you have consulted with a PM dr. In the event the epidurals do nothing for your pain and you feel the dr treating you is getting no where, then you may want to consider having your PCP refer you for a consult with a pain mgt dr. Pain mgt drs know our pain is real and they have different approaches of trying to get a person pain levels down. They do have more insight on medication used to treat pain and sometimes it may be a combination of medications used to treat a persons pain. They also do the epidurals, radio frequency ablations of the nerve endings and other types of procedures. Most people with true CP are never pain free, those days are over. We will always suffer with pain just on a smaller scale is our dream.

You spoke of feeling depressed. CP and depression seem to go hand in hand. Many of us have to take something for it, so don't let it get out of hand.There are many types of meds used today to treat depression. I don't know how well the Tramadol is on helping with your pain, many people say it does not help them. You may need to see if the dr can rx something else if its not helping. Lyrica is usually given for nerve pain and for people with Fibro it is used widely. A lot of times people do not know how well the Lyrica is working until they try to stop taking it. Also try to do some home remedies like a moist heating pad. If you don't have one, you can wet hand towels and nuke them in the microwave and make hot packs. Or, ice packs may make you feel better. Some people get relief with a TENS Unit, I have one and it does help me. Just be very careful not to burn yourself. Try to do things that will help take your mind off of the pain, like listening to certain music, reading a book, you would be amazed at some of the things we can do to help get our minds off of the pain, it can help. Sometimes we seek professional help in dealing with CP and there is nothing wrong with that either. I had a wonderful psychologist that helped me a lot.

Forget about people not understanding when you say I have pain. Don't sweat the small stuff. No one but someone else that suffers with CP can begin to understand what pain can do to a person's life. Family and friends rarely get it, they don't see it so they don't understand it. And you know sometimes we don't understand pain so how can we expect someone else to. One thing I don't do is discuss my physical problems with anyone and that includes my family. If your family understands that great you are ahead of the game. Husbands are fixers and they are use to fixing things and they sometimes don't understand why they can't fix the wife. A lot of time people lose friends because they are not able to get out and run like they use to. This is all just part of it.

Anyway, I wanted to pop on and welcome you aboard. Please keep us posted on how you are coming along.
Moderator Chronic Pain Forum

breezyP
Regular Member


Date Joined Nov 2010
Total Posts : 85
   Posted 11/15/2010 7:24 PM (GMT -6)   
Wow I really appreciate all the welcomes and contributions to my posts.

Straydog, I was sent to a pain management doctor (physiatrist) He is in charge of my pain at the moment. My doctor was the one who sent me to the spine clinic because she was at a point where it was out of her realm.

I hate taking the tramadol. Is does nothing for me. It does make me tired, and feel weird but in regards to the pain it hasn't really helped much. The lyrica is being taken at a low dose and then keeps going up. Im feeling a lot of pain. The only way to explain it is I feel crippled. I did like taking fironol and valium together; those 2 drugs gave me the most relief. I found over time though that the fironol and valium just wasn't enough, so I would take percocet with valium. If I switch my drugs every so often I get a bit of relief.

I did suffer from lots of headaches and started to get aura migraines. One of my migraine bouts lasted 9 days straight. I went into the hospital and they tried a bunch of different migraine drugs that didn't work but morphine and steroids helped. Im sorry if I seem like Im rambling.

I am becoming depressed because I go from having a life to not having one at all and having people invalidate my feelings and pain. It has been the hardest road for me so far but I still have hope that one day, I will be able to manage my pain. I just don't understand how I can go from dancing, shopping, having fun to "just existing". Having a family (3 children and married) it's taking it's toll.

I am so glad I found this forum
Lyrica-tramadol hydrochloride-Zopiclone
Waiting for bone scan 23rd nov
Waiting for epidural cervical injections
Not yet diagnosed.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16019
   Posted 11/15/2010 7:36 PM (GMT -6)   
Breezy one thing I want to mention and forgot, is all PM drs are not created equal. Meaning, many times we have to try a few of them out before we find one that listens to us and wants to help us. Is your dr not willing to try something other than Tramadol? He should be trying you on different meds to find which one works the best. If the guy is not willing to try you on other pain meds then you may need to kick him to the curb and find another one. You may want to let your PCP know what is going on with your care with this dr, she may know of someone else to get you in to see. Not many drs will think about doing bone scans, yes, I have had them before and there is not much to having one. What is he looking for when he said he wanted you to have one? Many times we do have to advocate for our own care too.

Have you ever heard of yeast over growth, Its fairly common and happens in women a lot. You may need to start looking into ways of cutting things out to lessen the yeast. My sister went through this a couple of years ago.

Take care.
Moderator Chronic Pain Forum

breezyP
Regular Member


Date Joined Nov 2010
Total Posts : 85
   Posted 11/15/2010 7:52 PM (GMT -6)   
I guess you are right about not all doctors being created equally. He is seeing me on dec 8th for a follow up. I guess I will tell him that the drugs are not working and I will demand something else or be put back on the "old" drugs. He said fironol is so outdated. I was kinda shocked by that considering it has bulbital and codeine (hope Im spelling the right words)

He said he is sending me for a bone scan to see if my bones and bone marrow are inflamed. So if it was inflamed would that give him a better way to diagnose me? He is not doing a full body bone scan just my spine.

I have done a lot of research on yeast over growth. I was diagnosed by a radiologist with pelvic congestion syndrome but my jerk off gyno told me it only exists because doctors in the states like to do invasive and expensive procedures for no reason. I have decreased my sugar, bread and beer. Anything that contains yeast. I also don't have bubble baths and stuff like that. Thank you so much for corresponding with me
Lyrica-tramadol hydrochloride-Zopiclone
Waiting for bone scan 23rd nov
Waiting for epidural cervical injections
Not yet diagnosed.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16019
   Posted 11/15/2010 8:25 PM (GMT -6)   
Breezy why not put a call in to the PM drs office and speak with his nurse and let her know how miserable and how bad you are hurting. Let her know the pain meds are not touching your pain and see if he will either change it to something else or move your appt up, there is no point in letting yourself suffer till December. Sometimes being a little assertive is all it takes.

Take care.
Moderator Chronic Pain Forum

tmjpain
Veteran Member


Date Joined Oct 2008
Total Posts : 2024
   Posted 11/15/2010 9:05 PM (GMT -6)   
I just wanted to welcome you breezy. I know you will love it here. Everyone is so wonderful.

Keep on posting and join in on the conversations. Glad you came here!
SUZANE

One day at a time!!

Chartreux
Veteran Member


Date Joined Aug 2006
Total Posts : 9661
   Posted 11/16/2010 9:15 AM (GMT -6)   
Breezy, wanted to welcome you and say sure wish it was under better
circumstances than chronic pain..I agree with straydog/susie in that maybe you
should get into your doctor and be assertive about how you
need better pain control..Good luck and well wishes on that
and hope you can get a low pain day soon.
(((((((((((((((((((((((((((((((((Breezy)))))))))))))))))))))))))))))))))))
Healing Hugz
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc (Lower Lumbar S1-L3 and Cervical C5,C6, C8 and T1), Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's, Ocular Migraines, mild carpel tunnel, ect.... "Would be nice if we could use the edit button in real life"...

********>^..^<********>^..^<********>^..^<********

breezyP
Regular Member


Date Joined Nov 2010
Total Posts : 85
   Posted 11/16/2010 10:28 AM (GMT -6)   
Thank you everyone :)

Yesterday my pain took a turn for the worst. I felt as if every muscle in my upper back, neck and bicep area have gone into full spasm. I was in bed all last night, waking up in extreme pain, crying in my sleep. I called my PM doctor to call me back. Im on the verge of a nervous break down. I hope he calls. I called at 7, 8 and they opened at 9. I told the receptionist that he NEEDS to call me, Im in enough pain to go to the hospital at the moment. The tramadol and lyrica is not working :(
Lyrica-tramadol hydrochloride-Zopiclone
Waiting for bone scan 23rd nov
Waiting for epidural cervical injections
Not yet diagnosed.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16019
   Posted 11/16/2010 1:30 PM (GMT -6)   
Breezy I hope your PM dr got your messages, I see you called before his office actually opened. If you have not heard back from them by noon, I would make a call and talk to someone live in that office, not a answering service.

Take care.
Moderator Chronic Pain Forum

breezyP
Regular Member


Date Joined Nov 2010
Total Posts : 85
   Posted 11/16/2010 1:45 PM (GMT -6)   
I haven't heard from him yet but I took it upon myself to take a percocet. I needed some relief and took my pain down from an 11 out of 10 to a 7-8. I will call again at 2 pm my time. Thank you for your advice
Lyrica-tramadol hydrochloride-Zopiclone
Waiting for bone scan 23rd nov
Waiting for epidural cervical injections
Not yet diagnosed.
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